NonprofitsDown Syndrome Diagnosis Network

Voluntary Health Associations & Medical Disciplines

Down Syndrome Diagnosis Network

STILLWATER, MN

Total revenue

$562K

Total expenses

$619K

Net assets

$608K

Grants received

$1.2M

35 grants

EIN

463042112

Tax year

2023

Mission

To connect, support, and provide accurate information to families with a down syndrome diagnosis

Programs

2 programs

Inform - dsdn's board members and volunteers attend down syndrome related conferences to share information about dsdn's services to families, local down syndrome organizations, and medical professionals. Dsdn team members also attend national medical conferences to advocate for an unbiased, up-to-date and factual down syndrome diagnosis forfamilies, as well as to share about dsdn's services. Dsdn also creates and distributes materials on delivering a down syndrome diagnosis to local organizations and medical professionals.

Support - dsdn provides support to expectant and new families through online support groups, which are now part of a dsdn mobile app. Dsdn also provides pregnancy gifts, new baby gifts, and welcome gifts when a new family joins our community, as well as care packages when a child is in the hospital, and memorial gifts when a child passes away. Each year, dsdn also offers adoption grants for families in the process of adopting a child with down syndrome. Also part of our support services, dsdn offers scholarships to attend the dsdn rockin' mom and rockin' dad retreats. Dsdn also awarded grants to local down syndrome organizations.

Financials

FY 2023

Revenue

Contributions & grants$416K
Program service revenue$135K
Investment income$7K
Other revenue$5K
Total revenue$562K

Expenses

Grants paid$14K
Salaries & benefits$149K
Fundraising$59K
Other expenses$456K
Total expenses$619K
Total assets$628K
Net assets$608K

People

13 listed

NameRoleCompensation

MELISSA SHUTWELL

EXECUTIVE DIRECTOR

Board

$80K

32 hrs/wk

PATRICIA NESBITT

VICE PRESIDENT

Board

1 hrs/wk

JULIA KAUFMAN

TREASURER

Board

1 hrs/wk

TARYN LAGONIGRO

SECRETARY

Board

1 hrs/wk

JENNY DI BENEDETTO

DIRECTOR

Board

1 hrs/wk

CASSANDRA DRAKE

DIRECTOR

Board

1 hrs/wk

KATHLEEN SEITZ

PRESIDENT

Board

1 hrs/wk

MICHAEL PASCUAL

DIRECTOR

Board

1 hrs/wk

JENNIFER DINGMAN

DIRECTOR

Board

1 hrs/wk

TONY NOWICKI

DIRECTOR

Board

1 hrs/wk

ANNA YEN KIM

DIRECTOR

Board

1 hrs/wk

SARAH MESA-HAAS

DIRECTOR

Board

1 hrs/wk

BEN HUGHES

DIRECTOR

Board

1 hrs/wk

Grants received

Showing 35 of 35

FromAmountPurposeYear
$149K
UNRESTRICTED
2024
$68K
GENERAL SUPPORT
2024
$5K
FINANCIAL ASSISTANCE
2024
$500
MATCHING GIFTS
2024
$192K
UNRESTRICTED
2023
$10K
EXPAND OUTREACH AND TRAINING FOR MEDICAL PROFESSIONALS WHEN THEY COMMUNICATE A DOWN SYNDROME DIAGNOSIS
2023
$9K
ENVIRONMENT, ANIMALS
2023
$8K
CHARITABLE DONATION
2023
$5K
FINANCIAL ASSISTANCE
2023
$1K
OTHER CIVIC / COMMUNITY
2023
$360
DISEASES, DISORDERS, MEDICAL DISCIPLINES
2023
$25
GENERAL OPERATING SUPPORT
2023
$112K
UNRESTRICTED
2022
$1K
MIP PAYOUT FOR 05/04/2022
2022
$50
MATCHING GIFTS
2022
$98K
UNRESTRICTED
2021
$3K
Program Support
2021
$93K
Unrestricted
2020
$5K
GENERAL OPERATING SUPPORT
2020
$2K
PROGRAM SUPPORT
2020
$2K
PROGRAM SUPPORT
2020
$2K
Program Support
2019
$306K
Unrestricted
2018
$500
CHARITABLE
2018
$50
Matching Grant
2018
$6K
HEALTH & HUMAN SERVICES
2017

Funded by

$1.2M from 19 funders · 35 grants · 2017–2024

Network For Good

$951K · 6 grants · 2018–2024

Paypal Charitable Giving Fund

$144K · 2 grants · 2023–2024

American Online Giving Foundation Inc

$69K · 5 grants · 2019–2024

The Dayton Foundation

$10K · 1 grant · 2023

National Down Syndrome Congress

$10K · 2 grants · 2023–2024

National Philanthropic Trust

$9K · 1 grant · 2023

Charities Aid Foundation America

$8K · 1 grant · 2023

Enterprise Holdings Foundation

$7K · 4 grants · 2019–2021

Details

EIN463042112
NTEE codeG25
Subsection03
Ruling date2014-07
Formed2013
Employees4
Volunteers150
DOWN SYNDROME DIAGNOSIS NETWORK — Mission, Financials & Grants Received | Grantivo