Voluntary Health Associations & Medical Disciplines
Down Syndrome Diagnosis Network
STILLWATER, MN
Total revenue
$562K
Total expenses
$619K
Net assets
$608K
Grants received
$1.2M
35 grants
EIN
463042112
Tax year
2023
Mission
To connect, support, and provide accurate information to families with a down syndrome diagnosis
Programs
2 programs
Inform - dsdn's board members and volunteers attend down syndrome related conferences to share information about dsdn's services to families, local down syndrome organizations, and medical professionals. Dsdn team members also attend national medical conferences to advocate for an unbiased, up-to-date and factual down syndrome diagnosis forfamilies, as well as to share about dsdn's services. Dsdn also creates and distributes materials on delivering a down syndrome diagnosis to local organizations and medical professionals.
Support - dsdn provides support to expectant and new families through online support groups, which are now part of a dsdn mobile app. Dsdn also provides pregnancy gifts, new baby gifts, and welcome gifts when a new family joins our community, as well as care packages when a child is in the hospital, and memorial gifts when a child passes away. Each year, dsdn also offers adoption grants for families in the process of adopting a child with down syndrome. Also part of our support services, dsdn offers scholarships to attend the dsdn rockin' mom and rockin' dad retreats. Dsdn also awarded grants to local down syndrome organizations.
Financials
FY 2023
Revenue
Expenses
People
13 listed
MELISSA SHUTWELL
EXECUTIVE DIRECTOR
$80K
32 hrs/wk
PATRICIA NESBITT
VICE PRESIDENT
—
1 hrs/wk
JULIA KAUFMAN
TREASURER
—
1 hrs/wk
TARYN LAGONIGRO
SECRETARY
—
1 hrs/wk
JENNY DI BENEDETTO
DIRECTOR
—
1 hrs/wk
CASSANDRA DRAKE
DIRECTOR
—
1 hrs/wk
KATHLEEN SEITZ
PRESIDENT
—
1 hrs/wk
MICHAEL PASCUAL
DIRECTOR
—
1 hrs/wk
JENNIFER DINGMAN
DIRECTOR
—
1 hrs/wk
TONY NOWICKI
DIRECTOR
—
1 hrs/wk
ANNA YEN KIM
DIRECTOR
—
1 hrs/wk
SARAH MESA-HAAS
DIRECTOR
—
1 hrs/wk
BEN HUGHES
DIRECTOR
—
1 hrs/wk
Grants received
Showing 35 of 35
Funded by
$1.2M from 19 funders · 35 grants · 2017–2024
$951K · 6 grants · 2018–2024
$144K · 2 grants · 2023–2024
$69K · 5 grants · 2019–2024
$10K · 1 grant · 2023
$10K · 2 grants · 2023–2024
$9K · 1 grant · 2023
$8K · 1 grant · 2023
$7K · 4 grants · 2019–2021