NonprofitsDysautonomia Foundation Inc

Disease & Medical Research

Dysautonomia Foundation Inc

NEW YORK, NY

Total revenue

$1.6M

Total expenses

$2.0M

Net assets

$834K

Grants received

$1.9M

124 grants

EIN

136145280

Tax year

2024

Mission

The dysautonomia foundation supports and operates programs focused on the medical care, research, social services, and public education for the benefit of people affected by or at risk for familial dysautonomia fd.

Financials

FY 2024

Revenue

Contributions & grants$730K
Program service revenue
Investment income$54K
Other revenue$774K
Total revenue$1.6M

Expenses

Grants paid$1.2M
Salaries & benefits$484K
Fundraising$75K
Other expenses$298K
Total expenses$2.0M
Total assets$1.1M
Net assets$834K

People

16 listed

NameRoleCompensation

LANIE ETKIND

Executive Dir.

Board

$267K

40 hrs/wk

FAYE GINSBURG

President

Board

5 hrs/wk

ALLAN COHEN

Treasurer

Board

1 hrs/wk

EDWARD BARANOFF

Vice President

Board

1 hrs/wk

LAURENT LANDAU

Vice President

Board

1 hrs/wk

JEFFREY GOLDBERGER

Vice President

Board

1 hrs/wk

STEVEN KIETZ

Vice President

Board

1 hrs/wk

LISA NEWMAN

Vice President

Board

1 hrs/wk

PAUL B WEXLER

Vice President

Board

1 hrs/wk

STEVEN S FASS

Secretary

Board

1 hrs/wk

JENNIFER SONENSHEIN

Director

Board

1 hrs/wk

GERALD ADLER

Director

Board

1 hrs/wk

GREGG MEYERS

Director

Board

0

DANIEL LANDAU

Director

Board

0

BRIAN STILLMAN

Director

Board

0

REBECCA SERNOVITZ

Director

Board

0

Grants received

Showing 124 of 124

FromAmountPurposeYear
$63K
MEDICAL / PUBLIC SERVICES
2024
$58K
GENERAL SUPPORT
2024
$4K
UNRESTRICTED GRANT TO FURTHER THE DONEE'S EXEMPT PURPOSE.
2024
$3K
Cash Contribution
2024
$154
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2024
$60K
MEDICAL / PUBLIC SERVICES
2023
$55K
For grant recipient's exempt purposes
2023
$38K
MEDICAL RESEARCH
2023
$15K
THE PURPOSE OF THESE CONTRIBUTIONS IS TO AID THE DONEE PUBLIC ORGANIZATIONS TO CARRY OUT THEIR EXEMPT CHARITABLE FUNCTIONS.
2023
$10K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
$9K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
$9K
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
2023
$5K
GENERAL SUPPORT
2023
$3K
Cash Contribution
2023
$3K
General & Unrestricted
2023
$1K
UNRESTRICTED
2023
$100
OTHER CIVIC / COMMUNITY
2023
$80
PROGRAM/OPERATING SUPPORT
2023
$50
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2023
$100K
TO FUND THE RECIPIENTS OPERATING BUDGET
2022
$89K
For grant recipient's exempt purposes
2022
$20K
TO FUND THE RECIPIENTS OPERATING BUDGET
2022
$15K
THE PURPOSE OF THESE CONTRIBUTIONS IS TO AID THE DONEE PUBLIC ORGANIZATIONS TO CARRY OUT THEIR EXEMPT CHARITABLE FUNCTIONS.
2022
$12K
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
2022
$10K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
$10K
COMMUNITY / CIVIC
2022
$8K
General charitable purposes
2022
$5K
GENERAL SUPPORT
2022
$5K
Tilsitt Fund for Medical Care and Clinical Research
2022
$3K
Cash Contribution
2022
$1K
TO FURTHER ITS CHARITABLE PURPOSE
2022
$975
MAKE LIFE BETTER FORPEOPLE LIVING WITHFAMILIAL DYSAUTONOMIA
2022
$875
GENERAL SUPPORT
2022
$400
UNRESTRICTED
2022
$300
General Operating Support
2022
$250
PROGRAM/OPERATING SUPPORT
2022
$200
CHARITABLE PURPOSE
2022
$200
CHARITABLE PURPOSE
2022
$180
General & Unrestricted
2022
$100
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2022
$57K
For grant recipient's exempt purposes
2021
$57K
For grant recipient's exempt purposes
2021
$15K
THE PURPOSE OF THESE CONTRIBUTIONS IS TO AID THE DONEE PUBLIC ORGANIZATIONS TO CARRY OUT THEIR EXEMPT CHARITABLE FUNCTIONS.
2021
$10K
GENERAL SUPPORT
2021
$8K
For recipient's exempt purpose
2021
$8K
General charitable purposes
2021
$5K
GENERAL SUPPORT
2021
$3K
DONATION
2021
$1K
General & Unrestricted
2021
$975
TO FURTHER ITS CHARITABLE PURPOSE
2021
$820
UNRESTRICTED
2021
$775
RELIGIOUS, CHARITABLE, SCIENTIFIC, LITERARY OR EDUCATIONAL
2021
$63K
For grant recipient's exempt purposes
2020
$52K
MEDICAL / PUBLIC SERVICES
2020
$35K
General support
2020
$18K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
$15K
THE PURPOSE OF THESE CONTRIBUTIONS IS TO AID THE DONEE PUBLIC ORGANIZATIONS TO CARRY OUT THEIR EXEMPT CHARITABLE FUNCTIONS.
2020
$11K
General Charitable Purposes
2020
$8K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2020
$3K
COMMUNITY OUTREACH & ENRICHMENT PROGRAMS
2020
$1K
PROGRAM SUPPORT
2020
$370
GENERAL OPERATING SUPPORT
2020
$100
GENERAL
2020
$71K
For grant recipient's exempt purposes
2019
$8K
General support
2019
$6K
General Charitable Purposes
2019
$400
GENERAL OPERATING SUPPORT
2019
$72K
For grant recipient's exempt purposes
2018
$52K
GENERAL SUPPORT
2018
$15K
THE PURPOSE OF THESE CONTRIBUTIONS IS TO AID THE DONEE PUBLIC ORGANIZATIONS TO CARRY OUT THEIR EXEMPT CHARITABLE FUNCTIONS.
2018
$11K
General Support
2018
$8K
PROGRAM SUPPORT
2018
$7K
Unrestricted
2018
$6K
GENERAL AND/OR PROGRAM SUPPORT - DONOR ADVISED FUNDS
2018
$5K
EXEMPT PURPOSE OF ORGANIZATION
2018
$5K
GENERAL SUPPORT
2018
$5K
GENERAL SUPPORT
2018
$2K
GENERAL PURPOSEGENERAL PURPOSE
2018
$1K
TO FURTHER ITS CHARITABLE PURPOSE
2018
$1K
GENERAL OPERATING SUPPORT
2018
$1K
ANNUAL SUPPORT
2018
$500
UNRESTRICTED
2018
$430
PROGRAM/OPERATING SUPPORT
2018
$360
UNRESTRICTED GENERAL SUPPORT
2018
$250
Unrestricted contribution
2018
$100
GENERAL OPERATIONAL SUPPORT
2018
$100
MEDICAL RESEARCH
2018
$13K
PUBLIC, SOCIETAL BENEFIT
2017
$9K
HEALTH & HUMAN SERVICES
2017
$500
GENERAL OPERATIONS
2017

Funded by

$1.9M from 57 funders · 124 grants · 2016–2024

Fidelity Investments Charitable Gift Fund

$464K · 7 grants · 2018–2023

Gs Donor Advised Philanthropy Fund

$342K · 6 grants · 2018–2024

Donor Advised Charitable Giving Inc

$198K · 7 grants · 2017–2023

American Online Giving Foundation Inc

$135K · 3 grants · 2022–2024

The Kopelman Foundation

$120K · 2 grants · 2022

Jewish Communal Fund

$84K · 6 grants · 2018–2023

Aw Dormeuil & R Dormeuil Foundation

$75K · 5 grants · 2018–2023

National Philanthropic Trust

$73K · 6 grants · 2017–2023

Details

EIN136145280
NTEE codeG50Z
Subsection03
Ruling date1976-10
Formed1954
Employees5
DYSAUTONOMIA FOUNDATION INC — Mission, Financials & Grants Received | Grantivo