Nonprofits›Dysautonomia International Inc

Voluntary Health Associations & Medical Disciplines

Dysautonomia International Inc

EAST MORICHES, NY

WebsiteView as a funder

Total revenue

$1.1M

Total expenses

$1.2M

Net assets

$2.6M

Grants received

$1.6M

115 grants

EIN

455437249

Tax year

2024

Mission

To increase awareness of Dysautonomia within the medical community and the general public and raise funds for dysautonomia research.

Programs

4 programs

Advocacy Initiatives - Patient Support and Empowerment programs.

Expenses: $254K

Providing research funding for projects at major University Research Centers.

Expenses: $214KGrants: $111K

Clinician education.

Expenses: $189K

Dysautonomia Awareness promotion, hosting events in cities across the country and lighting monuments and landmarks.

Expenses: $122K

Financials

FY 2024

Revenue

Contributions & grants$874K
Program service revenue$159K
Investment income$97K
Other revenue—
Total revenue$1.1M

Expenses

Grants paid$111K
Salaries & benefits$581K
Fundraising$152K
Other expenses$523K
Total expenses$1.2M
Total assets$2.7M
Net assets$2.6M

People

7 listed

NameRoleCompensation

LAUREN STILES JD

President & CEO

Board

$135K

70 hrs/wk

AMY KOHUT JD

Director

Board

—

2 hrs/wk

LIZA FISHER MBA

Secretary

Board

—

2 hrs/wk

JACQUELINE RUTTER GULLY

Vice President

Board

—

10 hrs/wk

IRENE COLLINS

Director

Board

—

2 hrs/wk

SHANNON KOPLITZ

Treasurer & CFO

Board

—

10 hrs/wk

SALVATORE DESENA MD

Director

Board

—

2 hrs/wk

Grants received

Showing 115 of 115

FromAmountPurposeYear
PAYPAL CHARITABLE GIVING FUND
$42K
GENERAL SUPPORT
2024
AMERICAN ENDOWMENT FOUNDATION
$41K
DISEASE/DISORDER
2024
THE GEATON AND JOANN DECESARIS
$20K
CHARITY
2024
AMERICAN ONLINE GIVING FOUNDATION INC
$14K
GENERAL SUPPORT
2024
THE STARKE FOUNDATION
$11K
GENERAL PURPOSE
2024
FISHER GLOBAL FOUNDATION
$10K
Support medical research
2024
THE TOBY AND NATALY RITTER
$9K
TO HELP SUPPORT CHARITABLE ORGANIZATIONS
2024
THOMPSON FAMILY FOUNDATION
$5K
UNRESTRICTED
2024
CHRISTIAN FAMILY FOUNDATION
$5K
HEALTH CARE
2024
STEVEN AND LENORE NEWMAN FAMILY
$3K
ANNUAL FUND
2024
THE JULIAN J LEAVITT
$1K
CHARITABLE
2024
SAUL & MARION KLEINKRAMER FOUNDATION
$1K
GENERAL
2024
THE CUMMINS FAMILY FOUNDATION INC
$500
DONATION TO SUPPORT RESEARCH AND DEVELOPMENT INTO P.O.T.S.
2024
DONOR ADVISED CHARITABLE GIVING INC
$135K
HEALTH
2023
BNY MELLON CHARITABLE GIFT FUND
$100K
TO FURTHER THE ORGANIZATION'S EXEMPT PURPOSE
2023
AMERICAN ENDOWMENT FOUNDATION
$51K
DISEASE/DISORDER
2023
THE AUSTIN MEMORIAL FOUNDATION
$50K
EDUCATIONAL
2023
AMERICAN ONLINE GIVING FOUNDATION INC
$25K
GENERAL SUPPORT
2023
THE GEATON AND JOANN DECESARIS
$20K
CHARITY
2023
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$18K
For grant recipient's exempt purposes
2023
PAYPAL CHARITABLE GIVING FUND
$16K
—
2023
TISBEST PHILANTHROPY
$11K
SEE TISBEST MISSION
2023
DEL CORAZON
$10K
SUPPORT THE ORGANIZATION.
2023
THE SAN FRANCISCO FOUNDATION
$10K
FOR GENERAL SUPPORT.
2023
JEWISH COMMUNITY FOUNDATION OF SAN DIEGO
$10K
GENERAL
2023
GERALD OPPENHEIMER FAMILY FOUNDATION
$10K
GENERAL SUPPORT
2023
WEBSTER FAMILY FOUNDATION (FKA
$5K
GENERAL
2023
POWER FOR GOOD FOUNDATION
$5K
TO FUND THE POTS WALK TO RAISE AWARENESS FOR DYSAUTONOMIA
2023
CHRISTIAN FAMILY FOUNDATION
$5K
HEALTH CARE
2023
STEVEN AND LENORE NEWMAN FAMILY
$3K
ANNUAL FUND
2023
Marilyn Augur Family Foundation
$1K
General Fund
2023
SAUL & MARION KLEINKRAMER FOUNDATION
$1K
GENERAL
2023
Overhills Foundation
$500
GENERAL FUND
2023
THE BULLITT FOUNDATION
$375
MATCHING GRANTS
2023
JPMORGAN CHASE FOUNDATION
$200
GENERAL OPERATING SUPPORT
2023
The Bank of America Charitable Foundation Inc
$100
PROGRAM/OPERATING SUPPORT
2023
THE PFIZER FOUNDATION INC
$100
MATCHING GIFTS
2023
Lincoln Financial Foundation Inc
$62
Matching Gift
2023
COOPER FAMILY FOUNDATION INC
$50
GENERAL PURPOSE
2023
DONOR ADVISED CHARITABLE GIVING INC
$88K
HEALTH
2022
AMERICAN ONLINE GIVING FOUNDATION INC
$33K
GENERAL SUPPORT
2022
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$28K
For grant recipient's exempt purposes
2022
THE GEATON AND JOANN DECESARIS
$20K
CHARITY
2022
THE BLACKBAUD GIVING FUND
$11K
GENERAL SUPPORT
2022
JEWISH COMMUNITY FOUNDATION OF SAN DIEGO
$10K
GENERAL
2022
DEL CORAZON
$10K
SUPPORT THE ORGANIZATION.
2022
THE SAN FRANCISCO FOUNDATION
$10K
ADVISED - FOR GENERAL OPERATING SUPPORT.
2022
CHARITIES AID FOUNDATION AMERICA
$7K
CHARITABLE DONATION
2022
CHRISTIAN FAMILY FOUNDATION
$6K
HEALTH CARE
2022
WEBSTER FAMILY FOUNDATION (FKA
$5K
GENERAL
2022
THE DIGGS FAMILY FOUNDATION
$3K
COMMUNITY ORGANIZATION - GENERAL FUND
2022
STEVEN AND LENORE NEWMAN FAMILY
$3K
ANNUAL FUND
2022
THE TOBY AND NATALY RITTER
$2K
TO HELP SUPPORT CHARITABLE ORGANIZATIONS
2022
Marilyn Augur Family Foundation
$1K
General Fund
2022
SAUL & MARION KLEINKRAMER FOUNDATION
$1K
GENERAL
2022
LAWRENCE AND REBECCA STERN FAMILY
$1K
UNRESTRICTED
2022
SHELL USA COMPANY FOUNDATION
$500
MEF
2022
JPMORGAN CHASE FOUNDATION
$500
GENERAL OPERATING SUPPORT
2022
SHELL USA COMPANY FOUNDATION
$500
MEF
2022
THE RALPH C WILSON JR FOUNDATION
$500
MATCHING GIFTS PROGRAM
2022
Zakaria Family Foundation
$350
To help increase awareness of Dysautonomia within the medical community and the general public.
2022
Bernard and Sylvia Witt Foundation Inc
$250
Operational Support
2022
CHARLES STEWART MOTT FOUNDATION
$150
For the general purposes or other charitable purposes of the organization.
2022
THE PFIZER FOUNDATION INC
$100
MATCHING GIFTS
2022
The Bank of America Charitable Foundation Inc
$100
PROGRAM/OPERATING SUPPORT
2022
DUKE ENERGY FOUNDATION
$72
EMPLOYEE MATCHING GIFT DONATION
2022
ASSURANT FOUNDATION
$50
Financial Assistance
2022
DONOR ADVISED CHARITABLE GIVING INC
$46K
HEALTH
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$32K
For grant recipient's exempt purposes
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$32K
For grant recipient's exempt purposes
2021
AMERICAN ONLINE GIVING FOUNDATION INC
$30K
GENERAL SUPPORT
2021
DEL CORAZON
$10K
SUPPORT THE ORGANIZATION.
2021
CHARITIES AID FOUNDATION AMERICA
$10K
CHARITABLE DONATION
2021
PAYPAL CHARITABLE GIVING FUND
$8K
General Support
2021
CHRISTIAN FAMILY FOUNDATION
$5K
HEALTH CARE
2021
WEBSTER FAMILY FOUNDATION (FKA
$5K
GENERAL
2021
THE DIGGS FAMILY FOUNDATION
$3K
COMMUNITY ORGANIZATION - GENERAL FUND
2021
THE TOBY AND NATALY RITTER
$2K
TO HELP SUPPORT CHARITABLE ORGANIZATIONS
2021
THE DAMIEN FOUNDATION
$1K
GENERAL OPERATIONS
2021
Joseph and Vera Zilber Family Foundation Inc
$1K
General Operations
2021
THE PCK&F HOMER FAMILY FOUNDATION
$1K
GENERAL CHARITABLE PURPOSE
2021
JOHN OSTER FAMILY FOUNDATION INC
$500
ENHANCEMENT OF HEALTH
2021
SHELL USA COMPANY FOUNDATION
$206
MG
2021
The Bank of America Charitable Foundation Inc
$100
OPERATIONAL SUPPORT
2021
JPMORGAN CHASE FOUNDATION
$100
GENERAL OPERATING SUPPORT
2021
The Bank of America Charitable Foundation Inc
$65
OPERATIONAL SUPPORT
2021
RAYMOND JAMES CHARITABLE ENDOWMENT FUND
$100K
GENERAL USE AND/OR SPECIAL FUND/PROJECT
2020
GS DONOR ADVISED PHILANTHROPY FUND
$50K
COMMUNITY & HUMAN SERVICES
2020
SJOGREN'S FOUNDATION INC
$50K
RESEARCH GRANT
2020
DONOR ADVISED CHARITABLE GIVING INC
$46K
HEALTH
2020
AMERICAN ONLINE GIVING FOUNDATION INC
$26K
GENERAL SUPPORT
2020
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$23K
For grant recipient's exempt purposes
2020
THE GEATON AND JOANN DECESARIS
$20K
CHARITY
2020
CHARITIES AID FOUNDATION AMERICA
$10K
CHARITABLE DONATION
2020
VANGUARD CHARITABLE ENDOWMENT PROGRAM
$6K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
THE TOBY AND NATALY RITTER
$3K
TO HELP SUPPORT CHARITABLE ORGANIZATIONS
2020
THE DIGGS FAMILY FOUNDATION
$3K
COMMUNITY ORGANIZATION - GENERAL FUND
2020
SUNNEN FOUNDATION
$3K
COMMUNITY SUPPORT
2020
LYNNE & RICHARD KAISER FAMILY FOUNDATION
$2K
CHARITABLE
2020
DANA CHERYL BEITSCHER CHARITABLE FDN
$1K
SUPPORT STUDIES AND EDUCATION
2020
DUKE ENERGY FOUNDATION
$642
EMPLOYEE MATCHING GIFTS
2020
Lincoln Financial Foundation Inc
$500
Matching Gifts Program
2020
SHULAMIT & JEHUDA REINHARZ FAMILY
$300
EDUCATION AND AWARENESS
2020
AETNA FOUNDATION INC
$158
GENERAL PURPOSE
2020
SYNCHRONY FOUNDATION
$104
EMPLOYER MATCHING GIFT PROGRAM
2020
DONOR ADVISED CHARITABLE GIVING INC
$25K
HEALTH
2019
AMERICAN ONLINE GIVING FOUNDATION INC
$20K
GENERAL SUPPORT
2019
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$17K
For grant recipient's exempt purposes
2019
SOUTH HIGH MARATHON DANCE INC
$10K
—
2019
CHARITIES AID FOUNDATION AMERICA
$10K
Charitable Donation
2019
CHARITIES AID FOUNDATION AMERICA
$100K
GENERAL SUPPORT
2018
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$17K
For grant recipient's exempt purposes
2018
DONOR ADVISED CHARITABLE GIVING INC
$16K
HEALTH
2018
SHULAMIT & JEHUDA REINHARZ FAMILY
$200
HEALTH
2018
AbbVie Foundation
$20
Matching Grant
2018

Funded by

$1.6M from 59 funders · 115 grants · 2018–2024

Donor Advised Charitable Giving Inc

$356K · 6 grants · 2018–2023

Fidelity Investments Charitable Gift Fund

$166K · 7 grants · 2018–2023

American Online Giving Foundation Inc

$146K · 6 grants · 2019–2024

Charities Aid Foundation America

$136K · 5 grants · 2018–2022

Bny Mellon Charitable Gift Fund

$100K · 1 grant · 2023

American Endowment Foundation

$91K · 2 grants · 2023–2024

The Geaton And Joann Decesaris

$80K · 4 grants · 2020–2024

Details

EIN455437249
NTEE codeG19
Subsection03
Ruling date2018-06
Formed2012
Employees10
Volunteers300
DYSAUTONOMIA INTERNATIONAL INC — Mission, Financials & Grants Received | Grantivo