NonprofitsDysphonia International Inc

Voluntary Health Associations & Medical Disciplines

Dysphonia International Inc

ITASCA, IL

Total revenue

$753K

Total expenses

$588K

Net assets

$3.3M

Grants received

$147K

12 grants

EIN

863907079

Tax year

2024

Mission

Dysphonia international is dedicated to improving the lives of people affected by spasmodic dysphonia and related voice conditions through research, education, awareness, and support.

Programs

2 programs

Dysphonia international also strengthened its support programs by organizing 64 virtual, 31 in-person, and four hybrid support group meetings. An in-person skill-building leadership workshop was held for 27 participants, and regular virtual meetings continued for support network leaders, including area contact leaders and support group leaders. The leadership library was expanded to offer enhanced resources for volunteer leaders. A virtual workshop with certified coach trish jordan provided additional training and support. Volunteer excellence was recognized with the midge kovacs award and the dot sowerby awareness award. The quarterly voices of support online newsletter highlighted the activities and achievements of the volunteer support network.

Expenses: $72K

Dysphonia international advanced its research mission by funding two new research grants and continuing support for a second-year project. The organization streamlined its grant application process by introducing a preliminary letter of inquiry stage. Thirteen travel awards and two conference awards were given to individuals presenting at major professional voice association meetings. Dysphonia international also co-presented and sponsored a workshop at the annual bridge to ai conference with the founders of the whispp app. Regular engagement with the scientific advisory board and researchers encouraged the development of new voice research projects. Additionally, planning began for a virtual research workshop for funded investigators in mid-2025, and the organization continued its support of the brain bank and global dystonia registry.

Expenses: $238KGrants: $199K

Financials

FY 2024

Revenue

Contributions & grants$603K
Program service revenue$11K
Investment income$135K
Other revenue$3K
Total revenue$753K

Expenses

Grants paid$199K
Salaries & benefits$210K
Fundraising$39K
Other expenses$179K
Total expenses$588K
Total assets$3.3M
Net assets$3.3M

People

13 listed

NameRoleCompensation

KIMBERLY KUMAN

EXECUTIVE DIRECTOR

Board

$96K

52 hrs/wk

CHARLES REAVIS

PRESIDENT

Board

15 hrs/wk

MARY BIFARO

SUPPPORT NETWORK DIRECTOR

Board

10 hrs/wk

MARCIA STERLING

DIRECTOR

Board

2 hrs/wk

BEVERLY MATTHEWS

TREASURER

Board

3 hrs/wk

SUSAN BECK

VICE PRESIDENT

Board

3 hrs/wk

DOT SOWERBY

DIRECTOR

Board

2 hrs/wk

BRUCE MENK

DIRECTOR

Board

2 hrs/wk

CHARLIE WOMBLE

DIRECTOR

Board

3 hrs/wk

SUE PAYNE

DIRECTOR

Board

2 hrs/wk

SCOTT FLANAGAN

DIRECTOR

Board

2 hrs/wk

DOROTHY TANNAHILL-MORAN

DIRECTOR

Board

3 hrs/wk

DENNIS KASZETA

DIRECTOR

Board

2 hrs/wk

Grants received

Showing 12 of 12

FromAmountPurposeYear
$15K
GENERAL OPERATIONS
2024
$20K
GENERAL OPERATIONS
2023
$7K
For grant recipient's exempt purposes
2023
$300
PROGRAM/OPERATING SUPPORT
2023
$15K
For grant recipient's exempt purposes
2022
$250
FOR THE WALK FOR TALK EVENT.
2022

Funded by

$147K from 8 funders · 12 grants · 2022–2024

Silicon Valley Community Foundation

$39K · 2 grants · 2023–2024

Edwardson Family Foundation

$35K · 2 grants · 2023–2024

Donor Advised Charitable Giving Inc

$30K · 2 grants · 2022–2023

Fidelity Investments Charitable Gift Fund

$22K · 2 grants · 2022–2023

Details

EIN863907079
NTEE codeG40
Subsection03
Ruling date2021-12
Formed2020
Employees4
Volunteers300
DYSPHONIA INTERNATIONAL INC — Mission, Financials & Grants Received | Grantivo