Dystrophic Epidermolysis Bullosa Research Assn Of America Inc
BOULDER, CO
Total revenue
$3.2M
Total expenses
$3.6M
Net assets
$1.3M
Grants received
$2.6M
64 grants
EIN
112519726
Tax year
2024
Mission
Debra is dedicated to finding a cure for eb thru research eb affects 1 out of every 50,000 live births in the u.s.
Programs
3 programs
Patient & family services - provide services for the people with eb and their families through newsletters, counseling, peer support services, conferences and seminars
Advocacy - network with other professional organizations and meet key legislators to inform them of eb and secure research funds
Research
Financials
FY 2024
Revenue
Expenses
People
12 listed
BRETT KOPELAN
EXECUTIVE DIRECTOR
$305K
40 hrs/wk
J ALEC ALEXANDER
TREASURER
—
1 hrs/wk
RICHARD GALLAGHER
CHAIR EMERITUS
—
1 hrs/wk
ROBERT RYAN Ph D
DIRECTOR
—
1 hrs/wk
JOHN LEE
SECRETARY
—
1 hrs/wk
WILLIAM CORNMAN
DIRECTOR
—
1 hrs/wk
JAMES WETRICH
DIRECTOR
—
1 hrs/wk
LESLIE RADER
DIRECTOR
—
1 hrs/wk
ANGELA CHRISTIANO PhD
DIRECTOR
—
1 hrs/wk
RYAN FULLMER
President
—
1 hrs/wk
ROB RAYL
Vice President
—
1 hrs/wk
Jouni Uitto
Director
—
1 hrs/wk
Grants received
Showing 64 of 64
Funded by
$2.6M from 25 funders · 64 grants · 2017–2024
$706K · 8 grants · 2017–2023
$427K · 3 grants · 2021–2023
$400K · 4 grants · 2017–2020
$300K · 3 grants · 2022–2024
$250K · 1 grant · 2024
$193K · 6 grants · 2019–2024
$186K · 6 grants · 2018–2023
$26K · 3 grants · 2020–2024