NonprofitsEpilepsy Association

Disease & Medical Research

Epilepsy Association

CLEVELAND, OH

Total revenue

$642K

Total expenses

$691K

Net assets

$1.3M

Grants received

$170K

36 grants

EIN

237198807

Tax year

2024

Mission

Providing specialized services for children, teens, adults and families affected by epilepsy.

Programs

2 programs

Public health education: the association provides educational presentations to a variety of community groups, students, teachers, and the general public to increase the awareness and understanding of epilepsy. Education is provided about epilepsy facts, seizure recognition, and epilepsy first aid. 56,736 individuals were reached through community education programs and another 151 individuals accessed assistance through information and referral programming.

Expenses: $104K

Kids and family: the association provides support for families who have a child with epilepsy. The association staff assess the needs of each family member with one-on-one support and connects them with community services, provides general assistance, epilepsy education and advocacy. Services are tailored to meet the unique needs of each family. In 2024, there were 273 children and families who were served through programming and 84 visits provided to individuals and schools.

Expenses: $119K

Financials

FY 2024

Revenue

Contributions & grants$447K
Program service revenue$199K
Investment income$39K
Other revenue
Total revenue$642K

Expenses

Grants paid
Salaries & benefits$486K
Fundraising$99K
Other expenses$205K
Total expenses$691K
Total assets$1.4M
Net assets$1.3M

People

31 listed

NameRoleCompensation

PATRICIA VARANESE

EXECUTIVE DIRECTOR

Board

$84K

40 hrs/wk

BEN YOUNG

DIRECTOR

Board

1 hrs/wk

BRITTANY FOLINO

DIRECTOR

Board

1 hrs/wk

LOUIS BROUSSARD

DIRECTOR

Board

1 hrs/wk

MIKE BARRETT

DIRECTOR

Board

1 hrs/wk

RICHARD BASS

DIRECTOR

Board

1 hrs/wk

KAREN JOHNSON

DIRECTOR

Board

1 hrs/wk

SEAN MEDINA

DIRECTOR

Board

1 hrs/wk

JEFFERY KARLOVEC

DIRECTOR

Board

1 hrs/wk

SUSAN KRANTZ

DIRECTOR

Board

1 hrs/wk

TAKIYAH DURHAM

DIRECTOR

Board

1 hrs/wk

MICHAEL SLAGLE

DIRECTOR

Board

1 hrs/wk

MARQUETTES ROBINSON

DIRECTOR

Board

1 hrs/wk

ADAM ZUCCARO

DIRECTOR

Board

1 hrs/wk

ROCCO DIPUCCIO

DIRECTOR

Board

1 hrs/wk

SUSAN STAMBERGER

DIRECTOR

Board

1 hrs/wk

GUADALUPE FERNANDEZ-BACA VACA

DIRECTOR

Board

1 hrs/wk

JUN PARK MD

DIRECTOR

Board

1 hrs/wk

DIANE SPIRNAK

DIRECTOR

Board

1 hrs/wk

LINDA WIESER

DIRECTOR

Board

1 hrs/wk

TRAVIS OKEL

DIRECTOR

Board

1 hrs/wk

MARVIN ROSSI

DIRECTOR

Board

1 hrs/wk

DEANNA MURLIN

DIRECTOR

Board

1 hrs/wk

SHERYL NEHAMKIN

DIRECTOR

Board

1 hrs/wk

NATALIA JAMISON

DIRECTOR

Board

1 hrs/wk

DIANA CIPRIANI

DIRECTOR

Board

1 hrs/wk

JOSEPH MURLIN

TREASURER

Board

1 hrs/wk

SARAH SALISBURY

VICE PRESIDENT

Board

1 hrs/wk

MARK HOLCOMB

PRESIDENT

Board

1 hrs/wk

APRIL KINGSBURY WALSH

SECRETARY

Board

1 hrs/wk

STEPHEN HANTUS MD

DIRECTOR

Board

1 hrs/wk

Grants received

Showing 36 of 36

FromAmountPurposeYear
$5K
GENERAL OPERATIONS
2024
$50
MATCHING GIFTS
2024
$10K
SERVING INDIVDUALS IMPACTED BY EPILE
2023
$10K
SERVING INDIVDUALS IMPACTED BY EPILE
2023
$5K
GENERAL OPERATIONS
2023
$2K
MEDICAL RESEARCH
2023
$14K
GENERAL SUPPORT
2022
$8K
For grant recipient's exempt purposes
2022
$5K
GENERAL OPERATIONS
2022
$3K
GENERAL OPERATING
2022
$2K
MEDICAL RESEARCH
2022
$50
PROGRAM/OPERATING SUPPORT
2022
$10K
SERVING INDIVDUALS IMPACTED BY EPILE
2021
$10K
SERVING INDIVDUALS IMPACTED BY EPILE
2021
$2K
MEDICAL RESEARCH
2021
$12K
HELP INDIVIDUALS IN CUYAHOGA COUNTY WITH EPILEPSY WHO NEED ASSISTANCE WITH BASIC NEEDS SUCH AS UTILITIES, MEDICATION, HOUSING, CLEANING SUPPLIES, PPE, FOOD AND TRANSPORTATION.
2020
$10K
GENERAL OPERATIONS
2020
$8K
SERVING INDIVDUALS IMPACTED BY EPILE
2020
$8K
SERVING INDIVDUALS IMPACTED BY EPILE
2020
$5K
UNRESTRICTED
2020
$5K
2020 CONTRIBUTION
2020
$2K
MEDICAL RESEARCH
2020
$1K
MATCHING GIFTS
2020
$15K
SERVING INDIVDUALS IMPACTED BY EPILE
2018
$2K
MEDICAL RESEARCH
2018
$200
Matching Grant
2018

Funded by

$170K from 16 funders · 36 grants · 2018–2024

Ridgecliff Foundation

$70K · 7 grants · 2018–2023

Pella Rolscreen Foundation

$25K · 4 grants · 2020–2024

The Blackbaud Giving Fund

$14K · 1 grant · 2022

The Cleveland Foundation

$12K · 1 grant · 2020

The Sk Wellman Foundation

$10K · 5 grants · 2018–2023

Lincoln Electric Fdn Pfdn

$8K · 2 grants · 2020–2022

National Philanthropic Trust

$6K · 1 grant · 2019

Details

EIN237198807
NTEE codeG54Z
Subsection03
Ruling date1972-11
Formed1972
Employees8
Volunteers110
EPILEPSY ASSOCIATION — Mission, Financials & Grants Received | Grantivo