NonprofitsEpilepsy Foundation New England Inc

Epilepsy Foundation New England Inc

LOWELL, MA

Total revenue

$7.5M

Total expenses

$6.8M

Net assets

$13.8M

Grants received

$1.4M

87 grants

EIN

222505819

Tax year

2024

Mission

Epilepsy foundation new england's (efne) mission is to improve the lives of people affected by epilepsy through education, advocacy, research, and connection.

Programs

2 programs

Resource and support services: efne provides epilepsy resource rooms in about 13 hospitals across new england. Thousands of clients receive active listening and mentoring, education, and info/referrals. In fiscal year 2024, efne provided one-time grants of $50-$1,000 to 45 families affected by epilepsy and in financial crisis. Efne provides approximately 30 support groups per month, serving 400-500 people per year. Efne provides educational programs about epilepsy and seizure first aid to approximately 5,000 people per year, including school children, school personnel, first responders, parents and the general public. We maintain an online knowledge center and resource library.

Expenses: $2.3MGrants: $228K

Youth services: efne provides sleepaway and day camps each year, serving more than 200 participants each year. Clients receive mentoring from staff, volunteers, americorps member, and interns. Young adult retreats provide transition age youth with community building skills as they transition to adulthood. Hundreds of online virtual support groups and meet-ups provide support our youth. Efne's hope lion campaign has reached more than 1,000 families to provide support, education, and community as they move through their journey with epilepsy.

Expenses: $308K

Financials

FY 2024

Revenue

Contributions & grants$2.1M
Program service revenue$5.1M
Investment income$508K
Other revenue
Total revenue$7.5M

Expenses

Grants paid$228K
Salaries & benefits$4.5M
Fundraising$1.5M
Other expenses$2.1M
Total expenses$6.8M
Total assets$15.4M
Net assets$13.8M

People

25 listed

NameRoleCompensation

SUSAN LINN

FORMER PRESIDENT & CEO - EFNE THRU MAY25

Board

$279K

50 hrs/wk

MARC FIRENZE

FORMER VICE CHAIR

Board

0.4 hrs/wk

PHILIP HAYDON PHD

DIRECTOR

Board

0.4 hrs/wk

JOHN GAITANIS MD

FORMER DIRECTOR

Board

0.4 hrs/wk

DARA FREEDMAN-WEISS

FORMER DIRECTOR

Board

0.4 hrs/wk

DON HOLMES

DIRECTOR

Board

0.4 hrs/wk

ALISON ZETTERQUIST

CHAIR

Board

0.4 hrs/wk

TIM YOUNG

TREASURER

Board

0.4 hrs/wk

TAMARA SACHARCZYK

DIRECTOR

Board

0.4 hrs/wk

AIMEE STEVENS

FORMER DIRECTOR

Board

0.4 hrs/wk

KIMBERLEE SCHUMACHER

DIRECTOR THRU JUN25

Board

0.4 hrs/wk

DARLENE WILSON

DIRECTOR

Board

0.4 hrs/wk

ANDREW COLE MD

DIRECTOR

Board

1.5 hrs/wk

STEVE SIRAVO

DIRECTOR

Board

1.5 hrs/wk

JOE SIRAVO

DIRECTOR

Board

1.5 hrs/wk

BRADLEY RICH

PRESIDENT - DC

Board

1 hrs/wk

KIMBERLEE SCHUMACHER

INTERIM-PRESIDENT & CEO BEGINNING JUN25

Board

40 hrs/wk

IKA NOVIAWATY

DIRECTOR

Board

0.4 hrs/wk

JASON BOURQUE

CLERK

Board

0.4 hrs/wk

JENNIFER CARDILLO

DIRECTOR

Board

0.4 hrs/wk

BRETT DOWNING

DIRECTOR

Board

0.4 hrs/wk

JEFFREY GANZ

CHIEF OPERATING OFFICER -

Staff

$153K

40 hrs/wk

DAVID SEARLES

VP FOR DEVELOPMENT & COMMUNICATIONS - EFNE

Staff

$104K

40 hrs/wk

CHANDA LINN

VP OF PROGRAMS & SERVICES - EFNE

Staff

$100K

40 hrs/wk

JACQUELYN BREAULT

DIRECTOR OF OPERATIONS - D

Staff

1 hrs/wk

Independent contractors

NON PROFIT CAPITAL MANAGEMENT LLC

ACCOUNTING & TAX

$124K

Grants received

Showing 87 of 87

FromAmountPurposeYear
$25K
GENERAL SUPPORT
2024
$12K
GENERAL SUPPORT
2024
$10K
PROGRAM SUPPORT
2024
$5K
CHARITABLE CONTRIBUTION
2024
$2K
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
$25
MATCHING GIFTS
2024
$27K
For grant recipient's exempt purposes
2023
$10K
Program Support
2023
$5K
CHARITABLE CONTRIBUTION
2023
$1K
General Operating Support
2023
$1K
General Fund
2023
$606
MG LOVE EPILEPSY NEW ENGLAND WALK
2023
$500
SUPPORT PEOPLE LIVING WITH EPILEPSY
2023
$439
MATCHING GIFTS
2023
$400
General & Unrestricted
2023
$250
Charitable Event
2023
$200
FOR OPERATING SUPPORT
2023
$100
FOR CIVIC & COMMUNITY ENGAGEMENT
2023
$53
GENERAL PURPOSE
2023
$50
VOLUNTEER PROGRAM
2023
$54K
SUB-GRANT OF CNCS FEDERAL FUNDING AWARD
2022
$27K
For grant recipient's exempt purposes
2022
$8K
As recommended by donor via platform
2022
$1K
Program Support
2022
$1K
UNRESTRICTED / GENERAL
2022
$250
General Operating Support
2022
$250
GENERAL OPERATING PURPOSES
2022
$100
General & Unrestricted
2022
$53
GENERAL PURPOSE
2022
$50
EXEMPT PURPOSE
2022
$222K
SUB-GRANT OF CNCS FEDERAL FUNDING AWARD
2021
$39K
For grant recipient's exempt purposes
2021
$39K
For grant recipient's exempt purposes
2021
$11K
General support
2021
$10K
CHARITABLE
2021
$7K
COMMUNITY IMPACT
2021
$246K
SUB-GRANT OF CNCS FEDERAL FUNDING AWARD
2020
$46K
For grant recipient's exempt purposes
2020
$15K
US - COMMUNITY GRANT SUPPORT
2020
$10K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
$7K
Operating Support/Annual Fund
2020
$7K
COMMUNITY IMPACT
2020
$5K
GENERAL SUPPORT
2020
$53
GENERAL PURPOSE
2020
$56K
For grant recipient's exempt purposes
2019
$38K
SUB-GRANT OF CNCS FEDERAL FUNDING AWARD
2019
$5K
General support
2019
$48K
For grant recipient's exempt purposes
2018
$13K
General support
2018
$7K
Unrestricted
2018
$256
PROGRAM/OPERATING SUPPORT
2018
$75
PROGRAM/OPERATING SUPPORT
2018
$25
PROGRAM/OPERATING SUPPORT
2018
$20
Matching Grant
2018
$57K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
$12K
SOCIAL SERVICES/SOCIAL BENEFITS
2017
$6K
COMMUNITY BENEFIT PROGRAM
2017

Funded by

$1.4M from 44 funders · 87 grants · 2017–2024

Massachusetts Service Alliance Inc

$560K · 4 grants · 2019–2022

Fidelity Investments Charitable Gift Fund

$338K · 8 grants · 2017–2023

National Philanthropic Trust

$161K · 5 grants · 2019–2023

American Online Giving Foundation Inc

$81K · 6 grants · 2019–2024

TD Securities Underwriting Hope Fund Inc

$40K · 2 grants · 2023–2024

CH Neurology Foundation Inc

$28K · 3 grants · 2018–2021

The Mugar Foundation

$25K · 1 grant · 2024

Details

EIN222505819
Subsection03
Ruling date1984-06
Formed1983
Employees124
Volunteers100
EPILEPSY FOUNDATION NEW ENGLAND INC — Mission, Financials & Grants Received | Grantivo