Voluntary Health Associations & Medical Disciplines
Epilepsy Support Network Of Orange County
COSTA MESA, CA
Total revenue
$342K
Total expenses
$348K
Net assets
$387K
Grants received
$233K
8 grants
EIN
270681680
Tax year
2024
Mission
Committed to building a community of support for those affected by epilepsy through educational programs, support groups and community advocacy. Our goal is to help those affected with epilepsy control the frequency and intensity of epileptic seizure and provide a safe and supportive environment to sort through the medical, educational, social and emotional aspects of this complex neurological condition.
Programs
3 programs
Intake and referral program: immediate support provided to first time callers through individualized attention for best possible seizure and symptom control. Callers are connected to our most appropriate programs and referred to epilepsy specialists. Program accomplishment: provided information, referrals and support to newly diagnosed individuals with epilepsy and those experiencing a reoccurrence of seizures to get them to local epilepsy centers for best outcomes to 135 families.
Community education presentations: free community presentations for epilepsy education to create seizure safe zones around the county. We participated in health fairs, conferences and community events for epilepsy awareness and advocacy. Presentations include: seizure recognition and first aid, building a healthy brain, epilepsy 101, esn programs. Program accomplishments: educated 6,123 community members through our presentations.
Parent educational expert series: an educational support group for parents with a child or teen diagnosed with epilepsy to learn about the most up to date information, treatments and research in the field of epilepsy. Program accomplishments: educated 445 parents.teen club: social skills group helping teens with epilepsy to build self esteem, friendship skills and stay socially connected in a safe and supportive environment. Typical teens serve as peer role models to teach appropriate social behaviors. Program accomplishments: facilitated successful teen outing, served 174 teens. Friday friends club: while parents of children with epilepsy and adults with epilepsy attend our programs, ffc provides play and social skills time for developing friendships in a safe, accepting, playful and purposeful environment for both special needs and typical children. Siblings of affected children attend to serve as neurotypical role models. Program accomplishment: expanded lesson plans with themes, character building, enrichment activities; served 1,551 children.adult educational expert series: an educational support group for adults diagnosed with epilepsy to learn about the most up to date information, treatments and research in the field of epilepsy. Program accomplishment: educated 356 adult social: this monthly social group provides the opportunity to meet other adults with epilepsy to share experiences, answer questions and meet new friends; enables adults with epilepsy to connect, share resources and challenges with one another as they are usually socially isolated. Program accomplishment: connected 129 adults throughout the year to meaningul relationships.parent educational expert series - spanish an educational support group for parents with a child or teen diagnosed with epilepsy to learn about the most up to date information, treatments and research in the field of epilepsy with spanish translation to meet the needs of our spanish speaking families in the community. Program accomplishments: expanded group; educated 88 parents.emotional support groups for parents: an encouraging and uplifting support group facilitated by a licensed, clinical psychologist who specializes in epilepsy. Parents met monthly to discuss all areas of life affected by epilepsy. Program accomplishments: counseled 55 parents.online support group for parents: provided 7-days a week, 24 hour online access to parents with diverse experience in pediatric epilepsy. Program accomplishment: newly diagnosed parents quickly connected with online support.
Financials
FY 2024
Revenue
Expenses
People
7 listed
JANNA L MOORE
EXECUTIVE DIRECTOR
$70K
40 hrs/wk
KATHY NICHOLS
PRESIDENT
—
3 hrs/wk
SCOTT JENSEN
TREASURER
—
1 hrs/wk
MALENA CLEMENTS
SECRETARY
—
2 hrs/wk
DEBBIE MERCED
BOARD MEMBER
—
2 hrs/wk
MEGHAN METZGER
BOARD MEMBER
—
2 hrs/wk
DAWN O'CONNER
BOARD MEMBER
—
2 hrs/wk
Grants received
Showing 8 of 8
Funded by
$233K from 4 funders · 8 grants · 2020–2024
$175K · 4 grants · 2020–2024
$28K · 1 grant · 2023
$25K · 2 grants · 2023–2024
$5K · 1 grant · 2020