Voluntary Health Associations & Medical Disciplines
Fabry Support & Information Group
CONCORDIA, MO
Total revenue
$645K
Total expenses
$608K
Net assets
$732K
Grants received
$22K
8 grants
EIN
431890134
Tax year
2024
Mission
Our mission is to provide information, advocacy, education, and compassionate support to improve the quality of life and care for those individuals suffering with Fabry.
Programs
2 programs
WEBSITE EDUCATION - FSIG maintains an online platform that connects Fabry patients and caregivers, providing reliable educational resources and opportunities for peer support. In 2024, the website received 23,400 visits and continued to serve as a trusted source of Fabry-related information.
EXPERT FABRY CONFERENCE FEFC-FSIG organizes the annual Expert Fabry Conference, offering patients, families, and professionals the opportunity to learn about the latest research and treatment options. In 2024, approximately 150 attendees participated in the conference, which included presentations from leading medical experts.
Financials
FY 2024
Revenue
Expenses
People
8 listed
AMY YOUNG
PRESIDENT
—
0.5 hrs/wk
JASON FRETT
VICE PRESIDENT
—
0.25 hrs/wk
DEBRA JOHNSON
SECRETARY/TREASURER
—
15 hrs/wk
FREDDY BATTAH
BOARD MEMBER
—
0.1 hrs/wk
MARK GELFOND
BOARD MEMBER
—
0.1 hrs/wk
JEAN CAMPBELL
BOARD MEMBER
—
0.1 hrs/wk
ANITA BRANDT BURGOYNE
BOARD MEMBER
—
0.1 hrs/wk
JACK JOHNSON
CHIEF EXECUTIVE OFFICER
$83K
40 hrs/wk
Grants received
Showing 8 of 8
Funded by
$22K from 4 funders · 8 grants · 2020–2024
$20K · 2 grants · 2023–2024
$2K · 4 grants · 2020–2023
$348 · 1 grant · 2020
$50 · 1 grant · 2023