NonprofitsFamilial Dysautonomia Now Foundation

Medical Research

Familial Dysautonomia Now Foundation

BUFFALO GROVE, IL

Total revenue

$289K

Total expenses

$234K

Net assets

$1.1M

Grants received

$389K

21 grants

EIN

263531031

Tax year

2024

Mission

To discover new treatments and cures for patients with famalial dysautonomia, a rare, fatal, genetic disease present at birth

Financials

FY 2024

Revenue

Contributions & grants$245K
Program service revenue
Investment income$44K
Other revenue$54
Total revenue$289K

Expenses

Grants paid$176K
Salaries & benefits
Fundraising
Other expenses$58K
Total expenses$234K
Total assets$1.1M
Net assets$1.1M

People

8 listed

NameRoleCompensation

ANN SLAW JD

PRESIDENT

Board

40 hrs/wk

KEN SLAW PHD

VICE PRESIDENT

Board

4 hrs/wk

ANDREA GREENFIELD

TREASURER

Board

4 hrs/wk

RUTH WOODRUFF JD

ADVISORY BOARD

Board

1 hrs/wk

TARA D SCHIMMEL MS ED

NY REGIONAL REPRESENTATIVE

Board

1 hrs/wk

CAROL ALTERMAN RN

fl regional representative

Board

1 hrs/wk

pat white

advisory board

Board

1 hrs/wk

Terry finesmith horwich jd

aDVISORY BOARD

Board

1 hrs/wk

Grants received

Showing 21 of 21

FromAmountPurposeYear
$25K
GENERAL PURPOSES
2024
$25K
GENERAL PURPOSES
2024
$5K
CHARITABLE SUPPORT. ANY RESTRICTIONS HAVE BEEN COMMUNICATED TO THE GRANTEE.
2024
$52K
GENERAL PURPOSES
2023
$18K
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
2023
$18K
MEDICAL / PUBLIC SERVICES
2023
$16K
CHARITABLE SUPPORT. ANY RESTRICTIONS HAVE BEEN COMMUNICATED TO THE GRANTEE.
2023
$25K
GENERAL PURPOSES
2022
$20K
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
2022
$21K
GENERAL SUPPORT
2021
$10K
For grant recipient's exempt purposes
2021
$10K
For grant recipient's exempt purposes
2021
$2K
GENERAL OPERATING SUPPORT
2021
$39K
General support
2020
$25K
GENERAL PURPOSES
2020
$17K
General Support
2018
$5K
Unrestricted
2018
$18K
General Support
2017

Funded by

$389K from 9 funders · 21 grants · 2017–2024

Foundation For Jewish

$152K · 5 grants · 2020–2024

Jewish Communal Fund

$134K · 6 grants · 2017–2023

The Slomo And Cindy Silvian Foundation

$35K · 2 grants · 2020–2021

Community Foundation For Greater Buffalo

$21K · 2 grants · 2023–2024

Gs Donor Advised Philanthropy Fund

$18K · 1 grant · 2023

Network For Good

$5K · 1 grant · 2018

Details

EIN263531031
NTEE codeH110
Subsection03
Ruling date2009-04
Formed2009
Employees0
Volunteers8
FAMILIAL DYSAUTONOMIA NOW FOUNDATION — Mission, Financials & Grants Received | Grantivo