Medical Research
Fore Batten Foundation
SCOTTSDALE, AZ
Total revenue
$1.1M
Total expenses
$2.7M
Net assets
$383K
Grants received
$580K
32 grants
EIN
822661656
Tax year
2024
Mission
This organization is organized exclusively for educational and charitable purposes, including to educate the public about and to obtain funding for research to cure rare diseases, including specifically juvenile batten disease.
Programs
2 programs
The forebatten foundation received ind clearance from the food and drug administration to proceed with the clinical investigation for fbf-010 (zebronkysen) paving the way to treat patients with the unique cln3 c.569dupg mutation. Zebronkysen is paving a path towards a better future for newly diagnosed children and will be part of the evolving story of personalized medicine. This effort also provides proof of concept to develop an aso treatment for the common cln3 mutation and creates a roadmap to future treatments.
N/A
Financials
FY 2024
Revenue
Expenses
People
5 listed
DAVID KAHN
DIRECTOR
—
4 hrs/wk
KAREN KAHN
PRESIDENT/CEO
—
10 hrs/wk
KATHRYN NIEDERER
DIRECTOR
—
2 hrs/wk
JENNIFER MCGINN
DIRECTOR
—
2 hrs/wk
MARLENA KAHN
SECRETARY
—
1 hrs/wk
Grants received
Showing 32 of 32
Funded by
$580K from 21 funders · 32 grants · 2017–2024
$291K · 6 grants · 2017–2023
$50K · 1 grant · 2024
$32K · 3 grants · 2022–2023
$28K · 1 grant · 2020
$27K · 3 grants · 2020–2022
$24K · 1 grant · 2022
$22K · 1 grant · 2022
$20K · 1 grant · 2023