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Nonprofits›Foundation For Children With Neuroimmune Disorders Inc

Voluntary Health Associations & Medical Disciplines

Foundation For Children With Neuroimmune Disorders Inc

ST AUGUSTINE, FL

Website View as a funder

Total revenue

$588K

Total expenses

$366K

Net assets

$845K

Grants received

$1.4M

24 grants

EIN

823128162

Tax year

2024

Mission

Earned guidestar's platinum seal of transparency, an honor held by fewer than 1% of nonprofits, for the past six years. Neuroimmune foundation is also the only pans-focused nonprofit to receive charity navigator's highest rating, 4/4 stars with a 99% rating.

Programs

2 programs

Offered free support and high quality education to 30k + patients and families. Connected 2000+ patients/families with clinicians and grew our network of clinicians who can support patients/families. Family support programs included running a private group for 6500 patients and families, providing moderation and support in that group, responding to emails to assist with finding physicians, providing educational webinars with therapists and physicians. Costs included platform fees, honorarium, materials.

Expenses: $16K

Funded a biostatistician at harvard to complete work on arfid related to pans.

Expenses: $10KGrants: $10K

Financials

FY 2024

Revenue

Contributions & grants$379K

Program service revenue$174K

Investment income$35K

Other revenue—

Total revenue$588K

Expenses

Grants paid$10K

Salaries & benefits$177K

Fundraising—

Other expenses$179K

Total expenses$366K

Total assets$845K

Net assets$845K

People

5 listed

NameRoleCompensation

JOHANNA CONKEY

PRESIDENT

Board

$117K

40 hrs/wk

DR PIERRE KORY

TREASURER

Board

—

1 hrs/wk

TRAVIS CONKEY

SECRETARY

Board

—

1 hrs/wk

JOHNNA WORKMAN

OFFICER

Board

—

1 hrs/wk

LESLIE PHILLIPS

VICE PRESIDENT

Board

—

1 hrs/wk

Grants received

Showing 24 of 24

FromAmountPurposeYear

The Riedman Foundation

$50K

General & Unrestricted

2024

JPMORGAN CHASE FOUNDATION

$1K

MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)

2024

DONOR ADVISED CHARITABLE GIVING INC

$51K

HEALTH

2023

FIDELITY INVESTMENTS CHARITABLE GIFT FUND

$19K

For grant recipient's exempt purposes

2023

CHARITIES AID FOUNDATION AMERICA

$14K

CHARITABLE DONATION

2023

PAYPAL CHARITABLE GIVING FUND

$11K

—

2023

AMERICAN ONLINE GIVING FOUNDATION INC

$8K

GENERAL SUPPORT

2023

NORTH CAROLINA MEDICAL SOCIETY

$967K

TO CREATE A CONTINUING MEDICAL EDUCATION PROGRAM FOR NC PHYSICIANS FOR PEDIATRIC ACUTE ONSET NEUROPSYCHIATRIC SYNDROME (PANS) AND PEDIATRIC AUTOIMMUNE NEUROPSYCHIATRIC DISORDERS ASSOCIATED WITH STREPTOCOCCAL INFECTIONS (PANDAS).

2022

DONOR ADVISED CHARITABLE GIVING INC

$41K

HEALTH

2022

Jewish Community Foundation of Greater

$25K

General charitable purposes

2022

FIDELITY INVESTMENTS CHARITABLE GIFT FUND

$23K

For grant recipient's exempt purposes