NonprofitsFoundation For Ichthyosis And Related Skin Types

Foundation For Ichthyosis And Related Skin Types

LANSDALE, PA

Total revenue

$2.0M

Total expenses

$1.2M

Net assets

$3.2M

Grants received

$272K

28 grants

EIN

942738019

Tax year

2023

Mission

To improve lives and seek cures for those affected by ichthyosis and related skin types.

Programs

1 program

One of the cornerstones of first is its emphasis on research and its support of the yale ichthyosis registry both financially and through its promotion accross its communication channels. Critical to improving the management of their condition, participation in the yale registry provides each affected individual a genetic diagnosis of their particular type of ichthyosis or other skin type. The registry is also vitally important to the research community and continues to be referenced in numerous studies and manuscripts. The registry also serves to provide research opportunities for training the next generation of physician scientists.

Expenses: $139KGrants: $107K

Financials

FY 2023

Revenue

Contributions & grants$1.9M
Program service revenue
Investment income$56K
Other revenue
Total revenue$2.0M

Expenses

Grants paid$209K
Salaries & benefits$393K
Fundraising$101K
Other expenses$581K
Total expenses$1.2M
Total assets$3.3M
Net assets$3.2M

People

18 listed

NameRoleCompensation

CHRISTOPHER BOYNTON

CHIEF EXEC.

Board

$208K

40 hrs/wk

SARAH AUGHENBAUGH

BOARD MEMBER

Board

1 hrs/wk

JACKIE BARRETT

BOARD MEMBER

Board

1 hrs/wk

JEFFREY BLAKE

BOARD MEMBER

Board

1 hrs/wk

JOLIE CINA

BOARD MEMBER

Board

1 hrs/wk

MARK EVANS

VICE PRESIDE

Board

2 hrs/wk

BETH HAMPSHIRE

BOARD CHAIR

Board

2 hrs/wk

TEJAL KAMDAR

SECRETARY

Board

2 hrs/wk

SEAN MCTERNAN

CHAIR

Board

3 hrs/wk

BRITTANY CRAIGLOW MD

BOARD MEMBER

Board

1 hrs/wk

LATANYA BENJAMIN MD

BOARD MEMBER

Board

1 hrs/wk

SARAH ASCH MD

BOARD MEMBER

Board

1 hrs/wk

KEITH CHOATE MD PHD

BOARD MEMBER

Board

1 hrs/wk

BAILEY PRETAK

SECRETARY

Board

2 hrs/wk

JASON THOGMARTIN

CFO

Board

2 hrs/wk

FULVIA VERONESE

BOARD MEMBER

Board

1 hrs/wk

JENNIE WIKLOW-RILEY

BOARD MEMBER

Board

1 hrs/wk

LOWELL WRIGHT

BOARD MEMBER

Board

1 hrs/wk

Grants received

Showing 28 of 28

FromAmountPurposeYear
$1K
General & Unrestricted
2024
$15K
GENERAL SUPPORT
2023
$9K
For grant recipient's exempt purposes
2023
$5K
General & Unrestricted
2023
$9K
For grant recipient's exempt purposes
2022
$8K
GENERAL SUPPORT
2022
$8K
General Support
2022
$5K
General & Unrestricted
2022
$5K
General & Unrestricted
2021
$5K
General & Unrestricted
2020
$5K
MATCHING GIFTS
2020
$500
General & Unrestricted
2020
$110
MIP PAYOUT FOR 01/14/20
2020
$5K
Education
2019
$10K
Unrestricted
2018
$5K
CHARITABLE
2018

Funded by

$272K from 15 funders · 28 grants · 2018–2024

American Online Giving Foundation Inc

$133K · 5 grants · 2020–2024

Donor Advised Charitable Giving Inc

$29K · 3 grants · 2020–2023

Denman Family Foundation

$21K · 5 grants · 2020–2024

Fidelity Investments Charitable Gift Fund

$18K · 2 grants · 2022–2023

Foundation For Appalachian Ohio

$15K · 1 grant · 2023

Network For Good

$10K · 1 grant · 2018

The Blackbaud Giving Fund

$8K · 1 grant · 2022

Details

EIN942738019
Subsection03
Ruling date1981-06
Formed1981
Employees3
Volunteers80
FOUNDATION FOR ICHTHYOSIS AND RELATED SKIN TYPES — Mission, Financials & Grants Received | Grantivo