Foundation For Ichthyosis And Related Skin Types
LANSDALE, PA
Total revenue
$2.0M
Total expenses
$1.2M
Net assets
$3.2M
Grants received
$272K
28 grants
EIN
942738019
Tax year
2023
Mission
To improve lives and seek cures for those affected by ichthyosis and related skin types.
Programs
1 program
One of the cornerstones of first is its emphasis on research and its support of the yale ichthyosis registry both financially and through its promotion accross its communication channels. Critical to improving the management of their condition, participation in the yale registry provides each affected individual a genetic diagnosis of their particular type of ichthyosis or other skin type. The registry is also vitally important to the research community and continues to be referenced in numerous studies and manuscripts. The registry also serves to provide research opportunities for training the next generation of physician scientists.
Financials
FY 2023
Revenue
Expenses
People
18 listed
CHRISTOPHER BOYNTON
CHIEF EXEC.
$208K
40 hrs/wk
SARAH AUGHENBAUGH
BOARD MEMBER
—
1 hrs/wk
JACKIE BARRETT
BOARD MEMBER
—
1 hrs/wk
JEFFREY BLAKE
BOARD MEMBER
—
1 hrs/wk
JOLIE CINA
BOARD MEMBER
—
1 hrs/wk
MARK EVANS
VICE PRESIDE
—
2 hrs/wk
BETH HAMPSHIRE
BOARD CHAIR
—
2 hrs/wk
TEJAL KAMDAR
SECRETARY
—
2 hrs/wk
SEAN MCTERNAN
CHAIR
—
3 hrs/wk
BRITTANY CRAIGLOW MD
BOARD MEMBER
—
1 hrs/wk
LATANYA BENJAMIN MD
BOARD MEMBER
—
1 hrs/wk
SARAH ASCH MD
BOARD MEMBER
—
1 hrs/wk
KEITH CHOATE MD PHD
BOARD MEMBER
—
1 hrs/wk
BAILEY PRETAK
SECRETARY
—
2 hrs/wk
JASON THOGMARTIN
CFO
—
2 hrs/wk
FULVIA VERONESE
BOARD MEMBER
—
1 hrs/wk
JENNIE WIKLOW-RILEY
BOARD MEMBER
—
1 hrs/wk
LOWELL WRIGHT
BOARD MEMBER
—
1 hrs/wk
Grants received
Showing 28 of 28
Funded by
$272K from 15 funders · 28 grants · 2018–2024
$133K · 5 grants · 2020–2024
$29K · 3 grants · 2020–2023
$21K · 5 grants · 2020–2024
$18K · 2 grants · 2022–2023
$15K · 1 grant · 2023
$10K · 1 grant · 2018
$10K · 1 grant · 2023
$8K · 1 grant · 2022