NonprofitsFoundation For Sarcoidosis Research

Community Foundations

Foundation For Sarcoidosis Research

CHICAGO, IL

Total revenue

$13.6M

Total expenses

$3.4M

Net assets

$16.0M

Grants received

$12.6M

102 grants

EIN

364378232

Tax year

2024

Mission

The foundation for sarcoidosis research (fsr) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients through research, education, and support. Since its establishment in 2000, fsr has fostered over $7.5 million in sarcoidosis specific research efforts.

Programs

2 programs

Fsr provides research funding through our fellowship, cardiac grant, and pilot grant funding program. Through the fsr clinical studies network, fsr funds and facilitates a 12 site international study seeking to understand the diagnosis of cardiac sarcoidosis. Fsr has also significantly increased participation in the fsr patient reported outcomes registry in order to increase understanding of patient's lived experience with sarcoidosis.

Expenses: $1.4MGrants: $952K

Fsr works directly with industry partners leveraging its expertise, contacts, the fsr patient reported outcomes registry, and its database in support of academic and industry sponsored research efforts. Through this program fsr helps to review protocols, connect industry with possible investigators and research sites, and support the recruitment and enrollment of sarcoidosis-related industry sponsored trials.

Expenses: $219K

Financials

FY 2024

Revenue

Contributions & grants$13.0M
Program service revenue$192K
Investment income$364K
Other revenue$4K
Total revenue$13.6M

Expenses

Grants paid$952K
Salaries & benefits$1.3M
Fundraising$212K
Other expenses$1.1M
Total expenses$3.4M
Total assets$17.2M
Net assets$16.0M

People

15 listed

NameRoleCompensation

MARY MCGOWAN

PRESIDENT & CEO

Board

$256K

40 hrs/wk

TRICHA SHIVAS

CHIEF OF STAFF AND STRATEGY

Board

$201K

40 hrs/wk

MICHAEL KAPLAN

TREASURER (THRU DEC-2024)

Board

5 hrs/wk

JOEL ROSEN

SECRETARY

Board

5 hrs/wk

YVETTE C COZIER

DIRECTOR

Board

1 hrs/wk

EMERSON RANDY HALL JR

DIRECTOR

Board

1 hrs/wk

CALVIN HARRIS

DIRECTOR

Board

1 hrs/wk

MARY COBB

PRESIDENT

Board

10 hrs/wk

JEFFREY RAICH

DIRECTOR

Board

1 hrs/wk

LOUISE M PERKINS

DIRECTOR

Board

1 hrs/wk

CRAIG LIPSET

DIRECTOR

Board

1 hrs/wk

LESLIE SERCHUCK

DIRECTOR

Board

1 hrs/wk

REV MICHAEL A WALROND JR

DIRECTOR (THRU NOV-24)

Board

1 hrs/wk

MICHAEL KLINGHER

DIRECTOR

Board

1 hrs/wk

HEIDI W JUNK

VICE PRESIDENT (THRU DEC-2024)

Board

5 hrs/wk

Grants received

Showing 102 of 102

FromAmountPurposeYear
$50K
UNRESTRICTED GENERAL SUPPORT
2024
$34K
GENERAL SUPPORT
2024
$4K
PROGRAM SUPPORT
2024
$3K
TO FURTHER ITS CHARITABLE PURPOSE
2024
$50
Financial Assistance
2024
$10M
GENERAL USE
2023
$85K
UNRESTRICTED GENERAL SUPPORT
2023
$80K
For grant recipient's exempt purposes
2023
$66K
PUBLIC, SOCIETAL BENEFIT
2023
$50K
IMPROVING CARE FOR SARCOIDOSIS PATIENTS AND TO FINDING A CURE FOR THIS DISEASE
2023
$30K
UNRESTRICTED
2023
$25K
General Operating Support
2023
$18K
To support operations to prevent the disease from spreading
2023
$10K
GENERAL SUPPORT
2023
$10K
TO FURTHER ITS CHARITABLE PURPOSE
2023
$5K
GENERAL/OPERATING
2023
$4K
General & Unrestricted
2023
$2K
Program Support
2023
$1K
FUNDING RESEARCH ON SARCOIDOSIS
2023
$200
MEMORIAL
2023
$350K
GENERAL USE
2022
$50K
IMPROVING CARE FOR SARCOIDOSIS PATIENTS AND TO FINDING A CURE FOR THIS DISEASE
2022
$45K
PUBLIC, SOCIETAL BENEFIT
2022
$44K
UNRESTRICTED
2022
$25K
UNRESTRICTED GENERAL SUPPORT
2022
$25K
General Operating Support
2022
$12K
For grant recipient's exempt purposes
2022
$10K
General Operating Support
2022
$10K
IN HONOR OF JANET MOCKOVCIAK
2022
$10K
GENERAL SUPPORT
2022
$10K
TO FURTHER ITS CHARITABLE PURPOSE
2022
$9K
GENERAL SUPPORT
2022
$8K
FAIR GRANT
2022
$7K
Financial Assistance
2022
$2K
HEALTH AND HUMAN SERVICES
2022
$1K
Program Support
2022
$200
Sarcoidosis research
2022
$125
DONATION
2022
$50
COMMUNITY SUPPORT
2022
$62K
UNRESTRICTED
2021
$39K
For grant recipient's exempt purposes
2021
$39K
For grant recipient's exempt purposes
2021
$30K
IMPROVING CARE FOR SARCOIDOSIS PATIENTS AND TO FINDING A CURE FOR THIS DISEASE
2021
$24K
PUBLIC, SOCIETAL BENEFIT
2021
$10K
General operating support
2021
$10K
GENERAL SUPPORT
2021
$10K
General operating support
2021
$5K
PURPOSE FOR WHICH ORGANIZATION EXISTS. PURPOSE "SAME" FOR CONTINUING GRANTS.
2021
$3K
GENERAL OPERATING
2021
$1K
501(C)(3) QUALIFIED CHARITY
2021
$90K
Unrestricted
2020
$50K
UNRESTRICTED GENERAL SUPPORT
2020
$44K
For grant recipient's exempt purposes
2020
$23K
PUBLIC, SOCIETAL BENEFIT
2020
$20K
GENERAL OPERATING SUPPORT
2020
$20K
IMPROVING CARE FOR SARCOIDOSIS PATIENTS AND TO FINDING A CURE FOR THIS DISEASE
2020
$20K
CORE OPERATING SUPPORT
2020
$10K
GENERAL SUPPORT
2020
$9K
PROGRAM SUPPORT
2020
$5K
UNRESTRICTED SUPPORT
2020
$5K
Cardiac Sarcoidosis Research FUND
2020
$3K
General & Unrestricted
2020
$2K
TO FURTHER DONEES EXEMPT PURPOSE IN HEALTH
2020
$800
MATCHING GRANTS
2020
$500
DONATION
2020
$50
COMMUNITY SUPPORT
2020
$50
GENERAL OPERATING PURPOSES
2020
$50
COMMUNITY SUPPORT
2020
$40K
For grant recipient's exempt purposes
2019
$25K
UNRESTRICTED GENERAL SUPPORT
2019
$10K
GENERAL OPERATING SUPPORT
2019
$10K
GENERAL SUPPORT
2019
$215K
TO FURTHER CRITICAL MEDICAL RESEARCH
2018
$90K
Unrestricted
2018
$15K
For grant recipient's exempt purposes
2018
$10K
GENERAL OPERATING SUPPORT
2018
$7K
PUBLIC, SOCIETAL BENEFIT
2018
$200
SARCOIDOSIS RESEARCH
2018
$50
Matching Grant
2018
$10K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
$10K
GENERAL SUPPORT
2017
$10K
GENERAL OPERATING SUPPORT
2017
$9K
HEALTH & HUMAN SERVICES
2017

Funded by

$12.6M from 47 funders · 102 grants · 2017–2024

Druckenmiller Foundation

$10.3M · 2 grants · 2022–2023

Silicon Valley Community Foundation

$424K · 1 grant · 2024

Network For Good

$315K · 5 grants · 2018–2023

Fidelity Investments Charitable Gift Fund

$280K · 8 grants · 2017–2023

Morgan Stanley Global Impact Funding Trust Inc

$235K · 5 grants · 2019–2024

Ann Theodore Foundation

$215K · 1 grant · 2018

Donor Advised Charitable Giving Inc

$173K · 6 grants · 2017–2023

Harlene & Marvin Wool Foundation

$150K · 4 grants · 2020–2023

Details

EIN364378232
NTEE codeT31
Subsection03
Ruling date2012-02
Formed2000
Employees18
Volunteers125
FOUNDATION FOR SARCOIDOSIS RESEARCH — Mission, Financials & Grants Received | Grantivo