Voluntary Health Associations & Medical Disciplines
Global Genes
WASHINGTON, DC
Total revenue
$7.1M
Total expenses
$7.4M
Net assets
$187K
Grants received
$3.2M
28 grants
EIN
263331487
Tax year
2024
Mission
Global genes strives to connect, empower and inspire the rare disease community.
Financials
FY 2024
Revenue
Expenses
People
26 listed
CHARLENE SON RIGBY
CEO
$319K
40 hrs/wk
NICOLE R BOICE
FOUNDER & CHIEF MISSION OFFICER
$254K
40 hrs/wk
VICTORIA WEISS
SENIOR DIRECTOR, FINANCE
$137K
24 hrs/wk
PETER GOODHAND
DIRECTOR
—
1 hrs/wk
HUGH HEMPEL
DIRECTOR
—
1 hrs/wk
RAM IYER
DIRECTOR
—
1 hrs/wk
NEIL KUMAR
DIRECTOR
—
1 hrs/wk
CAROLINE LOEWY
DIRECTOR
—
1 hrs/wk
INDU NAVAR
DIRECTOR
—
1 hrs/wk
DAVID PEARCE
DIRECTOR
—
1 hrs/wk
JOHN REYNDERS
DIRECTOR
—
1 hrs/wk
MORRIE RUFFIN
DIRECTOR
—
1 hrs/wk
ALVIN SHIH
DIRECTOR
—
1 hrs/wk
KELLY MCVEARRY
DIRECTOR
—
1 hrs/wk
KHRYSTAL DAVIS
DIRECTOR
—
1 hrs/wk
BETSY BOGARD
DIRECTOR
—
1 hrs/wk
CHRISTINA HARTMAN
SECRETARY
—
1 hrs/wk
SIMON FROST
CFO
—
1 hrs/wk
KATHERINE MAYNARD
VICE CHAIR
—
1 hrs/wk
ILANA FOGELMAN
DIRECTOR
—
1 hrs/wk
WALT KOWTONIUK
CHAIR
—
1 hrs/wk
ZOHREH TALEBIZADEH
SENIOR DIRECTOR, RARE-X RESEARCH PROGRAM
$180K
40 hrs/wk
KARMEN TRZUPEK
SENIOR DIRECTOR, SCIENTIFIC PROGRAMS
$179K
40 hrs/wk
LAUREN ALFORD
SENIOR DIRECTOR, MARKETING
$169K
40 hrs/wk
TIMOTHY EHRHARD
SENIOR DIRECTOR, IT (TERM 12/24)
$152K
40 hrs/wk
CHWENWOAN KUAN
DIRECTOR, PROGRAM OPERATIONS
$146K
40 hrs/wk
Independent contractors
ADJUVANT PARTNERS LLC
CONSULTING SERVICES
MSG CONSULTING GROUP LLC
CONSULTING SERVICES
T3 DYNAMICS LLC
CONSULTING SERVICES
LEVINE MEDIA GROUP
EDITORIAL SERVICES
Grants received
Showing 28 of 28
Funded by
$3.2M from 20 funders · 28 grants · 2017–2024
$1.9M · 3 grants · 2020–2024
$665K · 2 grants · 2020–2023
$183K · 1 grant · 2018
$100K · 1 grant · 2022
$100K · 1 grant · 2024
$58K · 3 grants · 2018–2020
$55K · 1 grant · 2024
$50K · 1 grant · 2018