NonprofitsGlobal Genes

Voluntary Health Associations & Medical Disciplines

Global Genes

WASHINGTON, DC

Total revenue

$7.1M

Total expenses

$7.4M

Net assets

$187K

Grants received

$3.2M

28 grants

EIN

263331487

Tax year

2024

Mission

Global genes strives to connect, empower and inspire the rare disease community.

Financials

FY 2024

Revenue

Contributions & grants$5.7M
Program service revenue$1.4M
Investment income$9K
Other revenue
Total revenue$7.1M

Expenses

Grants paid$175K
Salaries & benefits$4.0M
Fundraising$600K
Other expenses$3.3M
Total expenses$7.4M
Total assets$1.5M
Net assets$187K

People

26 listed

NameRoleCompensation

CHARLENE SON RIGBY

CEO

Board

$319K

40 hrs/wk

NICOLE R BOICE

FOUNDER & CHIEF MISSION OFFICER

Board

$254K

40 hrs/wk

VICTORIA WEISS

SENIOR DIRECTOR, FINANCE

Board

$137K

24 hrs/wk

PETER GOODHAND

DIRECTOR

Board

1 hrs/wk

HUGH HEMPEL

DIRECTOR

Board

1 hrs/wk

RAM IYER

DIRECTOR

Board

1 hrs/wk

NEIL KUMAR

DIRECTOR

Board

1 hrs/wk

CAROLINE LOEWY

DIRECTOR

Board

1 hrs/wk

INDU NAVAR

DIRECTOR

Board

1 hrs/wk

DAVID PEARCE

DIRECTOR

Board

1 hrs/wk

JOHN REYNDERS

DIRECTOR

Board

1 hrs/wk

MORRIE RUFFIN

DIRECTOR

Board

1 hrs/wk

ALVIN SHIH

DIRECTOR

Board

1 hrs/wk

KELLY MCVEARRY

DIRECTOR

Board

1 hrs/wk

KHRYSTAL DAVIS

DIRECTOR

Board

1 hrs/wk

BETSY BOGARD

DIRECTOR

Board

1 hrs/wk

CHRISTINA HARTMAN

SECRETARY

Board

1 hrs/wk

SIMON FROST

CFO

Board

1 hrs/wk

KATHERINE MAYNARD

VICE CHAIR

Board

1 hrs/wk

ILANA FOGELMAN

DIRECTOR

Board

1 hrs/wk

WALT KOWTONIUK

CHAIR

Board

1 hrs/wk

ZOHREH TALEBIZADEH

SENIOR DIRECTOR, RARE-X RESEARCH PROGRAM

Staff

$180K

40 hrs/wk

KARMEN TRZUPEK

SENIOR DIRECTOR, SCIENTIFIC PROGRAMS

Staff

$179K

40 hrs/wk

LAUREN ALFORD

SENIOR DIRECTOR, MARKETING

Staff

$169K

40 hrs/wk

TIMOTHY EHRHARD

SENIOR DIRECTOR, IT (TERM 12/24)

Staff

$152K

40 hrs/wk

CHWENWOAN KUAN

DIRECTOR, PROGRAM OPERATIONS

Staff

$146K

40 hrs/wk

Independent contractors

ADJUVANT PARTNERS LLC

CONSULTING SERVICES

$180K

MSG CONSULTING GROUP LLC

CONSULTING SERVICES

$162K

T3 DYNAMICS LLC

CONSULTING SERVICES

$143K

LEVINE MEDIA GROUP

EDITORIAL SERVICES

$113K

Grants received

Showing 28 of 28

FromAmountPurposeYear
$100K
MEDICAL / PUBLIC SERVICES
2024
$55K
TERMEER SCHOLAR AWARD
2024
$15K
UNRESTRICTED GENERAL SUPPORT
2024
$165K
GRANT WILL SUPPORT THE PROJECT TITLED RARE MENTAL HEALTH IMPACT GRANTS PROGRAM WHICH PROVIDES AN OPPORTUNITY FOR FOUNDATION LEADERS TO APPLY FOR GRANTS TO ASSIST IN CREATING PROGRAMS, EDUCATIONAL TOOLS/MATERIALS, AND SUPPORT NETWORKS TO ADDRESS UNMET MENTAL HEALTH AND SOCIAL SUPPORT NEEDS OF THEIR COMMUNITY. THE GOAL OF THE IMPACT GRANTS PROGRAM IS TO EQUIP PATIENT COMMUNITIES TO EXPAND AVAILABILITY AND EFFECTIVENESS OF TOOLS AND CAPABILITIES THAT ADDRESS CRITICAL MENTAL HEALTH NEEDS. A SECONDARY GOAL IS TO UTILIZE, PROMOTE AND MAKE AVAILABLE THE OUTPUTS FROM THE GRANT-FUNDED PROJECTS TO THE LARGER RARE COMMUNITY.
2023
$15K
General Support
2023
$10K
AN UNRESTRICTED GRANT TO FURTHER THE DONEE'S EXEMPT PURPOSE
2023
$2K
PAYMENTS FOR COMMUNITY IMPROVEMENTS
2023
$100K
Data Collection & Biorepository
2022
$5K
GENERAL NEEDS
2022
$3K
PAYMENTS FOR COMMUNITY IMPROVEMENTS
2022
$2K
FUNDS ARE DONATED WITHOUT RESTRICTION ON USAGE
2022
$350
GENERAL PURPOSE
2022
$6K
General Support
2021
$500K
GLOBAL GENE'S CONTINUITY OF CARE RARE IMPACT GRANT PROGRAM IS DESIGNED TO SUPPORT RARE FOUNDATION ALLIANCE MEMBERS, AS WELL AS RARE PATIENTS, CAREGIVERS AND SIBLINGS NOT AFFILIATED WITH A FOUNDATION, TO HELP PROVIDE FINANCIAL AND RESOURCE SUPPORT FOR PSYCHOSOCIAL, EDUCATION AND ACCESS TO CARE DUE TO THE DIVERSION OF RESOURCES DUE TO THE COVID-19 PANDEMIC.
2020
$50K
Diversity in Rare Disease Diagnosis
2020
$300
GENERAL PURPOSE
2020
$50K
For grant recipient's exempt purposes
2018
$6K
General & Unrestricted
2018
$2K
General & Unrestricted
2018
$8K
Community Health
2017

Funded by

$3.2M from 20 funders · 28 grants · 2017–2024

Silicon Valley Community Foundation

$1.9M · 3 grants · 2020–2024

The Alexion Charitable Foundation Inc

$665K · 2 grants · 2020–2023

Festival of Children Foundation

$183K · 1 grant · 2018

Project 8p Foundation

$100K · 1 grant · 2022

Gs Donor Advised Philanthropy Fund

$100K · 1 grant · 2024

Illumina Corporate Foundation

$58K · 3 grants · 2018–2020

The Termeer Institute Inc

$55K · 1 grant · 2024

Details

EIN263331487
NTEE codeG12
Subsection03
Ruling date2009-01
Formed2008
Employees38
Volunteers42
GLOBAL GENES — Mission, Financials & Grants Received | Grantivo