NonprofitsGorlin Syndrome Alliance

Voluntary Health Associations & Medical Disciplines

Gorlin Syndrome Alliance

AUSTIN, TX

Total revenue

$490K

Total expenses

$430K

Net assets

$395K

Grants received

$1.0M

12 grants

EIN

341915691

Tax year

2024

Mission

To thoughtfully support, comprehensively educate, and aggressively seek the best treatments and a cure for those affected by gorlin syndrome.

Financials

FY 2024

Revenue

Contributions & grants$481K
Program service revenue
Investment income$10K
Other revenue
Total revenue$490K

Expenses

Grants paid
Salaries & benefits$323K
Fundraising$81K
Other expenses$108K
Total expenses$430K
Total assets$670K
Net assets$395K

People

13 listed

NameRoleCompensation

JULIA BRENEISER

EXECUTIVE DIRECTOR

Board

$85K

32 hrs/wk

MEREDITH WEISS

EXECUTIVE DIRECTOR

Board

$41K

32 hrs/wk

BETH SPIEGEL

TREASURER

Board

1.5 hrs/wk

RONI RUBENSTEIN

SECRETARY

Board

2 hrs/wk

DR JIM SWIFT

DIRECTOR

Board

0.5 hrs/wk

JENNI WERKMEISTER

DIRECTOR ROLLED OFF BOARD IN JUNE

Board

1 hrs/wk

STACY BISSELL

DIRECTOR

Board

2 hrs/wk

MICHAEL RAINEN

DIRECTOR

Board

1.5 hrs/wk

SAMUEL BRENEISER

DIRECTOR

Board

0.5 hrs/wk

DR ELENA HAWRYLUK

DIRECTOR

Board

2 hrs/wk

ALIX ALDERMAN

DIRECTOR JOINED BOARD IN SEP.

Board

1 hrs/wk

KEVIN GULLATT

PRESIDENT STARTING IN MARCH

Board

3 hrs/wk

TAYLOR HODGE

VICE PRESIDENT

Board

2.5 hrs/wk

Grants received

Showing 12 of 12

FromAmountPurposeYear
$200
HEALTH AND HUMAN SERVICES
2023
$200
HEALTH AND HUMAN SERVICES
2022
$10K
GENERAL SUPPORT
2021
$9K
UNRESTRICTED
2021
$100
ETHNIC AND RELIGIOUS
2021
$100
HEALTH AND HUMAN SERVICES
2020
$20K
General support
2019
$8K
Unrestricted
2018
$20K
General Support
2017

Funded by

$1.0M from 5 funders · 12 grants · 2017–2024

Silicon Valley Community Foundation

$800K · 1 grant · 2024

Kathleen L And Michael J Rainen Family

$149K · 2 grants · 2020–2022

Jewish Communal Fund

$50K · 3 grants · 2017–2021

Network For Good

$16K · 2 grants · 2018–2021

Baird Foundation Inc

$600 · 4 grants · 2020–2023

Details

EIN341915691
NTEE codeG80
Subsection03
Ruling date2024-03
Formed2000
Employees3
Volunteers29
GORLIN SYNDROME ALLIANCE — Mission, Financials & Grants Received | Grantivo