NonprofitsHairy Cell Leukemia Foundation

Hairy Cell Leukemia Foundation

NEW YORK, NY

Total revenue

$2.8M

Total expenses

$1.8M

Net assets

$4.9M

Grants received

$7.8M

41 grants

EIN

363327001

Tax year

2024

Mission

Dedicated to improving outcomes for patients by advancing research into the causes and treatment of hairy cell leukemia, as well as educational resources and comfort.

Programs

1 program

Annual conference each fall for doctors, as well as educational webinars and forums for patients throughout the year. Facilitation of regional support networks for patients. Responding to patient inquiries and referrals to hcl centers of excellence. Facilitation of scientific advisory groups and peer-to-peer doctor support. Administrative, editorial and technical support in the preparation and submission of relevant manuscripts.

Expenses: $1.5MGrants: $1.2M

Financials

FY 2024

Revenue

Contributions & grants$2.6M
Program service revenue
Investment income$197K
Other revenue
Total revenue$2.8M

Expenses

Grants paid$1.4M
Salaries & benefits$210K
Fundraising$52K
Other expenses$183K
Total expenses$1.8M
Total assets$4.9M
Net assets$4.9M

People

12 listed

NameRoleCompensation

ANNA LAMBERTSON

EXECUTIVE DIRECTOR

Board

$144K

40 hrs/wk

ADI WEBER

VICE PRESIDENT

Board

1.5 hrs/wk

MICHAEL MARGOLIN

VICE PRESIDENT

Board

2 hrs/wk

MARC STADTMAUER

SECRETARY

Board

3 hrs/wk

KEN JENSEN

TREASURER

Board

12 hrs/wk

BRIAN FRIEDMAN

BOARD MEMBER

Board

1 hrs/wk

KEITH MARKBREITER

PRESIDENT

Board

1.5 hrs/wk

SCOTT SVOBODA

BOARD MEMBER

Board

1.5 hrs/wk

KIRK ZACHARY

BOARD MEMBER

Board

1.5 hrs/wk

BOBBY PATRICK

BOARD MEMBER

Board

1 hrs/wk

SARAH NAPERALA

BOARD MEMBER

Board

1 hrs/wk

TIM MAHER

BOARD MEMBER

Board

1 hrs/wk

Grants received

Showing 41 of 41

FromAmountPurposeYear
$25K
UNRESTRICTED GENERAL SUPPORT
2024
$1K
MATCHING GIFTS
2024
$1.5M
For grant recipient's exempt purposes
2023
$15K
UNRESTRICTED GENERAL SUPPORT
2023
$1K
MATCHING GIFTS
2023
$300
CHARITABLE CONTRIBUTION
2023
$20K
General charitable purposes
2022
$13K
For grant recipient's exempt purposes
2022
$11K
UNRESTRICTED
2022
$300
CHARITABLE CONTRIBUTION
2022
$1.5M
For grant recipient's exempt purposes
2021
$1.5M
For grant recipient's exempt purposes
2021
$25K
General charitable purposes
2021
$1.0M
For grant recipient's exempt purposes
2020
$289K
RESEARCH AND EDUCATION - TO FUND RESEARCH PROJECTS TO COMBAT CANCER AND OTHER RELATED DISEASES
2020
$30K
General Charitable Purposes
2020
$7K
Unrestricted
2020
$210
CHARITABLE CONTRIBUTION
2020
$125K
RESEARCH AND EDUCATION - TO FUND RESEARCH PROJECTS TO COMBAT CANCER AND OTHER RELATED DISEASES
2019
$30K
General Charitable Purposes
2019
$12K
For grant recipient's exempt purposes
2019
$186K
RESEARCH AND EDUCATION - TO FUND RESEARCH PROJECTS TO COMBAT CANCER AND OTHER RELATED DISEASES
2018
$5K
Unrestricted
2018
$100
Matching Grant
2018
$200K
RESEARCH AND EDUCATION - TO FUND RESEARCH PROJECTS TO COMBAT CANCER AND OTHER RELATED DISEASES
2017
$15K
General Charitable Purposes
2017

Funded by

$7.8M from 14 funders · 41 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$5.6M · 6 grants · 2019–2023

The Sass-Arena Foundation For Medical

$800K · 4 grants · 2017–2020

Brian P Friedman Family Foundation

$500K · 1 grant · 2022

Kritchman Family Foundation Inc

$354K · 6 grants · 2018–2024

Silicon Valley Community Foundation

$250K · 1 grant · 2023

Jewish Community Foundation of Greater

$141K · 6 grants · 2017–2023

The Kenneth A Horowitz Family

$100K · 4 grants · 2021–2024

Morgan Stanley Global Impact Funding Trust Inc

$40K · 2 grants · 2023–2024

Details

EIN363327001
Subsection03
Ruling date1985-09
Formed1984
Employees3
Volunteers20
HAIRY CELL LEUKEMIA FOUNDATION — Mission, Financials & Grants Received | Grantivo