Hemophilia Federation Of America Inc

Outreach - helps individuals with bleeding disorders and their caregivers learn how to become advocates on their own behalf through in-person and online training, tool kits, and web resources. Education and tools are provided to participate in monitoring, learning to self-advocate, and educating about federal and state public policies that impact the lives of people living with bleedidng disorders. Social and print media are actively utilized to extend outreach efforts and bring community together. Four programs are included in outreach: blood brotherhood, blood sisterhood, hfa families, and outreach education.

Other activities - provides educational and artistic scholarships to members of the bleeding disorders community, a resource guide for the consumers, and maintains a website with information about the organization's programs and services. The organization also publishes a quarterly newsletter called "dateline federation". In addition, the organization covers the cost of attendance to meetings of the department of health and human services, the blood products advisory committee of the fda, and the advisory committee on blood safety and availability, and participation in conferences at the invitation of the center for disease control.

Gears for good charity bike ride - encourages people with bleeding disorders to live healthy, active lifestyles. Gears for good is a charity bike ride offered to raise funds for the helping hands program. Riders enjoy meeting new people and building stronger friendships along the way while raising funds for this important cause.

Hfa research - a community centered, community focused, and community driven program aimed at improving the lives of bleeding disorders community members. Research topics are identified by the community population and focused on patient/community data. Data is collected nationally online as well as locally through hfa's 50-plus member organizations across the country.

Helping hands - designed to establish a rapid, non-invasive source of relief for emergency situations for individuals and families in the bleeding disorders community. Each application is given careful consideration as to the personal circumstances, while ensuring a minimum invasion of privacy for community members. The program also assists individuals with the costs of medically necessary items and durable medical equipment.