Hemophilia Foundation Of Northern California

Spring/winter family educational gatherings: the organization sponsors two annual gatherings to include an annual holiday gathering and a springfest allowing participants to share in a day of education and connection. The gatherings foster connections between the individuals with bleeding disorders, their families and their caregivers. Nclb actually hosts three holiday gatherings in the cities of oakland, modesto and fresno, california.

Annual family camp-hosted by the taylor family foundation, family camp brings together approximately 40 families each year for a weekend of arts and crafts, family games, a campfire, a talent show, yoga, educational seminars and more. Family camp provides a unique opportunity to meet other families in the bleeding disorders community, learn from each other, and participate in fun activities in a harmonious and relaxing environment.

Educational outreach: ncbd strives to provides relevant information to the blood disorder community, donors and other interested parties about foundation activities, treatment advances and available resources, as well as current events and legislations. This is achieved thru sponsoring world hemophilia day, hosting educational dinners, and publishing a quarterly newsletter.

Emergency assistance program - ncbd provides cash grants annually to individuals living with bleeding disorders and experiencing a financial crisis. Grants range between $250 and $500 and cover basic life necessities such as rent, food and utilities.

Women's/men's groups - designed to provide support to people facing the same or similar challenges relating to bleeding disorders through meetings, online forums,webinars, and other educational and recreational activities that are available throughout the year.

Familia de sangre (fds) - an educational symposium for our spanish speaking families affected by bleeding disorders and is designed to bridge the cultural and linguistic gaps that exist among the spanish speaking bleeding disorders community and the general bleeding disorders community.

Hemophilia council of california advocacy summit - an advocacy summit for key stakeholders (meeting participants include representatives from all manufacturers of hemophilia clotting factors, national specialty pharmacy providers, hemophilia treatment centers, psi, ppta and nhf and hfa). The purposes are:1) to discuss policy issues that may impact our community, and2) to develop priorities for a plan of action.