Nonprofits›Hereditary Disease Foundation

Medical Research

Hereditary Disease Foundation

NEW YORK, NY

WebsiteView as a funder

Total revenue

$7.9M

Total expenses

$4.5M

Net assets

$19.1M

Grants received

$5.4M

111 grants

EIN

237376197

Tax year

2024

Mission

To fund transformative research to find treatments, and ultimately a cure, for huntington's disease.

Financials

FY 2024

Revenue

Contributions & grants$6.6M
Program service revenue—
Investment income$1.2M
Other revenue$83K
Total revenue$7.9M

Expenses

Grants paid$2.9M
Salaries & benefits$654K
Fundraising$295K
Other expenses$1.0M
Total expenses$4.5M
Total assets$22.0M
Net assets$19.1M

People

23 listed

NameRoleCompensation

MEGHAN DONALDSON

CEO

Board

$110K

40 hrs/wk

TIM KELLEHER

CFO

Board

$43K

6 hrs/wk

KAREN NEWMAN

CHAIR

Board

$12K

24 hrs/wk

C FRANK BENNETT PHD

DIRECTOR

Board

—

1 hrs/wk

ROBI BLUMENSTEIN

DIRECTOR

Board

—

1 hrs/wk

SANDY FOX

DIRECTOR

Board

—

1 hrs/wk

TACIE FOX

DIRECTOR

Board

—

1 hrs/wk

BERTA A GEHRY

DIRECTOR

Board

—

1 hrs/wk

FRANK O GEHRY

DIRECTOR

Board

—

1 hrs/wk

DAVID HOUSMAN PHD

DIRECTOR

Board

—

1 hrs/wk

BRUCE DONALDSON

TREASURER

Board

—

1 hrs/wk

HERBERT PARDES MD

DIRECTOR (THROUGH 4/24)

Board

—

1 hrs/wk

LAUREN BAKER PINKUS

DIRECTOR

Board

—

1 hrs/wk

LESLIE M THOMPSON PHD

DIRECTOR

Board

—

1 hrs/wk

DAVID ZWALLY

DIRECTOR

Board

—

1 hrs/wk

MELISSA MOSER

DIRECTOR

Board

—

1 hrs/wk

ANNE B YOUNG MD PHD

VICE CHAIR

Board

—

1 hrs/wk

NANCY S WEXLER PHD

PRESIDENT

Board

—

1 hrs/wk

JOAN LEIMAN PHD

DIRECTOR

Board

—

1 hrs/wk

ALICE WEXLER PHD

SECRETARY

Board

—

1 hrs/wk

SARAH HERNANDEZ

DIR. OF RESEARCH PROGRAMS

Staff

$144K

40 hrs/wk

JULIE PORTER

DIR. OF ADMINISTRATION

Staff

$116K

40 hrs/wk

ERICA MATISZ

DIR. OF DEVELOPMENT

Staff

$109K

40 hrs/wk

Grants received

Showing 111 of 111

FromAmountPurposeYear
MR AND MRS ROBERT C BAKER FAMILY FDN
$250K
TO FURTHER DONEES EXEMPT PURPOSE
2024
THE FOX FAMILY FOUNDATION
$132K
GENERAL FUND
2024
CO-TR UART 19 OW MAE STONE GOODE 12-208920
$50K
GENERAL CHARITABLE PURPOSES
2024
PETER SOLOMON FOUNDATION
$30K
GENERAL OPERATING SUPPORT
2024
THE ALBERT PARVIN FOUNDATION
$10K
CHARITABLE GIVING AND SUPPORT
2024
THE BESSEMER GIVING FUND
$10K
GENERAL SUPPORT
2024
AMERICAN ONLINE GIVING FOUNDATION INC
$7K
GENERAL SUPPORT
2024
MURIEL F SIEBERT FOUNDATION INC
$1K
GENERAL SUPPORT
2024
FALCONWOOD FOUNDATION
$1K
GENERAL SUPPORT, UNRESTRICTED
2024
MR AND MRS ROBERT C BAKER FAMILY FDN
$250K
TO FURTHER DONEES EXEMPT PURPOSE
2023
THE FOX FAMILY FOUNDATION
$90K
GENERAL FUND
2023
PETER SOLOMON FOUNDATION
$90K
GENERAL OPERATING SUPPORT
2023
ALEXANDER AND JANE BOYD TA FOUNDATION
$75K
MEDICAL
2023
ALEXANDER AND JANE BOYD TA FOUNDATION
$75K
MEDICAL
2023
HARRY A LIEBERMAN FOUNDATION
$30K
MEDICAL
2023
LEONA AND HARRY B HELMSLEY FOUNDATION
$20K
General charitable purpose
2023
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$18K
For grant recipient's exempt purposes
2023
THE GLORIA AND HILLIARD FARBER
$15K
MEDICAL RESEARCH
2023
THE CLEVELAND CLINIC FOUNDATION
$10K
COMMUNITY SUPPORT
2023
THE ALBERT PARVIN FOUNDATION
$10K
CHARITABLE GIVING AND SUPPORT
2023
JEWISH COMMUNAL FUND
$8K
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
2023
SUSAN S AND KENNETH L WALLACH
$5K
GENERAL SUPPORT
2023
KEITH & MARY KAY MCCAW FAMILY FOUND
$5K
MEDICAL RESEARCH
2023
CHDI Foundation Inc
$5K
Support for a fundraising event
2023
FALCONWOOD FOUNDATION
$1K
GENERAL SUPPORT, UNRESTRICTED
2023
THE HISLOP FAMILY FOUNDATION INC
$1K
FUNDING RESEARCH TO CUREHUNTINGTONS DISEASE AND OTHERBRAIN DISORDERS
2023
MURIEL F SIEBERT FOUNDATION INC
$1K
GENERAL SUPPORT
2023
CITIZENS CHARITABLE FOUNDATION
$200
MATCHING GIFTS
2023
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$1.0M
For grant recipient's exempt purposes
2022
GEHRY FAMILY FOUNDATION
$100K
TO FUND INNOVATIVE RESEARCH TO CURE HUNTINGTON'S DISEASE AND OTHER HEREDITARY DISEASES.
2022
THE FOX FAMILY FOUNDATION
$78K
GEBERAL FUND
2022
ALEXANDER AND JANE BOYD TA FOUNDATION
$75K
MEDICAL
2022
PETER SOLOMON FOUNDATION
$40K
General Operating Support
2022
HARRY A LIEBERMAN FOUNDATION
$30K
MEDICAL
2022
THE ALBERT PARVIN FOUNDATION
$25K
CHARITABLE GIVING AND SUPPORT
2022
LEONA AND HARRY B HELMSLEY FOUNDATION
$20K
General charitable purpose
2022
JEWISH COMMUNAL FUND
$18K
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
2022
THE STARR FOUNDATION
$15K
GENERAL OPERATING SUPPORT
2022
THE STARR FOUNDATION
$10K
GENERAL OPERATING SUPPORT
2022
AMERICAN ONLINE GIVING FOUNDATION INC
$9K
GENERAL SUPPORT
2022
KEITH & MARY KAY MCCAW FAMILY FOUND
$5K
MEDICAL RESEARCH
2022
THE GLORIA AND HILLIARD FARBER
$5K
MEDICAL RESEARCH
2022
SUSAN S AND KENNETH L WALLACH
$5K
GENERAL PURPOSE
2022
FALCONWOOD FOUNDATION
$1K
GENERAL SUPPORT, UNRESTRICTED
2022
SARA CHAIT MEMORIAL FOUNDATION INC
$1K
CHARITABLE
2022
FREDERICK R WEISMAN PHILANTHROPIC
$1K
CAUSES OF HUNGTINTON DISEASE
2022
MURIEL F SIEBERT FOUNDATION INC
$1K
GENERAL SUPPORT
2022
INGRAM FAMILY FOUNDATION
$500
FOR EDUCATION AND RESEARCH ACTIVITY
2022
THE HISLOP FAMILY FOUNDATION INC
$500
FUNDING RESEARCH TO CUREHUNTINGTONS DISEASE AND OTHERBRAIN DISORDERS
2022
MR AND MRS ROBERT C BAKER FAMILY FDN
$250K
TO FURTHER DONEES EXEMPT PURPOSE
2021
ALEXANDER AND JANE BOYD TA FOUNDATION
$75K
MEDICAL
2021
THE FOX FAMILY FOUNDATION
$50K
General Fund
2021
HARRY A LIEBERMAN FOUNDATION
$30K
MEDICAL
2021
THE SPEYER FAMILY FOUNDATION INC
$25K
GENERAL SUPPORT
2021
DONOR ADVISED CHARITABLE GIVING INC
$22K
HEALTH
2021
JEWISH COMMUNAL FUND
$20K
GENERAL SUPPORT
2021
LEONA AND HARRY B HELMSLEY FOUNDATION
$20K
General charitable purpose
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$19K
For grant recipient's exempt purposes
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$19K
For grant recipient's exempt purposes
2021
AMERICAN ONLINE GIVING FOUNDATION INC
$14K
GENERAL SUPPORT
2021
THE GLORIA AND HILLIARD FARBER
$13K
MEDICAL RESEARCH
2021
VANGUARD CHARITABLE ENDOWMENT PROGRAM
$11K
For recipient's exempt purpose
2021
THE ALBERT PARVIN FOUNDATION
$10K
CHARITABLE GIVING AND SUPPORT
2021
SUSAN S AND KENNETH L WALLACH
$5K
GENERAL PURPOSE
2021
KEITH & MARY KAY MCCAW FAMILY FOUND
$5K
MEDICAL RESEARCH
2021
THE RELIEF FOUNDATION
$5K
GENERAL
2021
FREDERICK R WEISMAN PHILANTHROPIC
$1K
CAUSES OF HUNGTINTON DISEASE
2021
THE ROBERT AND JOYCE MENSCHEL FAMILY
$1K
GENERAL/UNRESTRICTED SUPPORT
2021
The Seidenberg Family Foundation Inc
$1K
Research
2021
SARA CHAIT MEMORIAL FOUNDATION INC
$1K
CHARITABLE
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$1.0M
For grant recipient's exempt purposes
2020
ALEXANDER AND JANE BOYD TA FOUNDATION
$75K
MEDICAL
2020
THE FOX FAMILY FOUNDATION
$75K
General Fund
2020
ATTIAS FAMILY FOUNDATION
$50K
SUPPORTS ORGANIZATION'S CHARITABLE PURPOSE
2020
JEWISH COMMUNAL FUND
$35K
General support
2020
HARRY A LIEBERMAN FOUNDATION
$30K
MEDICAL
2020
PETER SOLOMON FOUNDATION
$30K
General Operating Support
2020
LEONA AND HARRY B HELMSLEY FOUNDATION
$20K
General charitable purpose
2020
AMERICAN ONLINE GIVING FOUNDATION INC
$14K
GENERAL SUPPORT
2020
SUSAN S AND KENNETH L WALLACH
$10K
GENERAL PURPOSE
2020
LUBIN FAMILY FOUNDATION
$10K
GENERAL USE
2020
THE GLORIA AND HILLIARD FARBER
$10K
MEDICAL RESEARCH
2020
DONOR ADVISED CHARITABLE GIVING INC
$7K
HEALTH
2020
THE ALBERT PARVIN FOUNDATION
$5K
CHARITABLE GIVING AND SUPPORT
2020
The Andrew And Ann Tisch Foundation
$5K
To further educational, religious, medical, cultural, societal and environmental causes.
2020
FALCONWOOD FOUNDATION
$5K
GENERAL SUPPORT, UNRESTRICTED
2020
KEITH & MARY KAY MCCAW FAMILY FOUND
$5K
MEDICAL RESEARCH
2020
THE HISLOP FAMILY FOUNDATION INC
$1K
FUNDING RESEARCH TO CUREHUNTINGTONS DISEASE AND OTHERBRAIN DISORDERS
2020
FREDERICK R WEISMAN PHILANTHROPIC
$1K
MEDICAL RESEARCH-HUNGTINTON DISEASE
2020
The Seidenberg Family Foundation Inc
$1K
Research
2020
The Seidenberg Family Foundation Inc
$1K
Research
2020
WYMAN YOUTH TRUST
$250
SOCIAL HEALTH
2020
DUKE ENERGY FOUNDATION
$100
EMPLOYEE MATCHING GIFTS
2020
AMERICAN ONLINE GIVING FOUNDATION INC
$28K
GENERAL SUPPORT
2019
LEONA AND HARRY B HELMSLEY FOUNDATION
$20K
Generalcharitable purpose
2019
JEWISH COMMUNAL FUND
$18K
General support
2019
THE RELIEF FOUNDATION
$15K
GENERAL
2019
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$10K
For grant recipient's exempt purposes
2019
THE DONALD M KARP AND MARGERY LESNIK
$100
AID DONEE ORGANIZATION IN PURSUIT OF ITS TAX EXEMPT STATUS
2019
JPMORGAN CHASE FOUNDATION
$25
GENERAL OPERATING SUPPORT
2019
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$255K
For grant recipient's exempt purposes
2018
HARRY A LIEBERMAN FOUNDATION
$30K
MEDICAL
2018
DONOR ADVISED CHARITABLE GIVING INC
$11K
HEALTH
2018
NETWORK FOR GOOD
$7K
Unrestricted
2018
THE ALBERT PARVIN FOUNDATION
$5K
CHARITABLE GIVING AND SUPPORT
2018
The Seidenberg Family Foundation Inc
$2K
Research
2018
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$257K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
JEWISH COMMUNAL FUND
$25K
General Support
2017
LEONA AND HARRY B HELMSLEY FOUNDATION
$20K
charitableGeneralpurpose
2017
DONOR ADVISED CHARITABLE GIVING INC
$10K
HEALTH & HUMAN SERVICES
2017
THE RELIEF FOUNDATION
$5K
GENERAL
2017

Funded by

$5.4M from 40 funders · 111 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$2.6M · 8 grants · 2017–2023

Mr And Mrs Robert C Baker Family Fdn

$750K · 3 grants · 2021–2024

The Fox Family Foundation

$425K · 5 grants · 2020–2024

Alexander And Jane Boyd Ta Foundation

$375K · 5 grants · 2020–2023

Peter Solomon Foundation

$190K · 4 grants · 2020–2024

Harry A Lieberman Foundation

$150K · 5 grants · 2018–2023

Jewish Communal Fund

$123K · 6 grants · 2017–2023

Leona And Harry B Helmsley Foundation

$120K · 6 grants · 2017–2023

Details

EIN237376197
NTEE codeH200
Subsection03
Ruling date1974-06
Formed1968
Employees4
Volunteers50
HEREDITARY DISEASE FOUNDATION — Mission, Financials & Grants Received | Grantivo