NonprofitsHope For Javier

Voluntary Health Associations & Medical Disciplines

Hope For Javier

EAST SETAUKET, NY

Total revenue

$60K

Total expenses

$640

Net assets

$256K

Grants received

$348K

9 grants

EIN

262346544

Tax year

2024

Mission

Hope for javier's mission is to create hope where none (yet) exists. Because duchenne muscular dystrophy is considered an orphan disease, one that pharmaceutical companies consider least profitable and therefore not worthy of their attention, it is up to private individuals to fund much of the research. Through fundraising and raising awareness, hope for javier is changing the outcome for boys diagnosed with this devastating disease in two ways: by funding translational research that focuses on moving science from the lab into human clinical trials and by funding initiatives that make improvements to the standard of care, the quality of life, and the general outlook for all those diagnosed.

Financials

FY 2024

Revenue

Contributions & grants$60K
Program service revenue
Investment income
Other revenue
Total revenue$60K

Expenses

Grants paid
Salaries & benefits
Fundraising
Other expenses$640
Total expenses$640
Total assets$256K
Net assets$256K

People

4 listed

NameRoleCompensation

Ricardo Romero

Vice President

Board

3 hrs/wk

David Merzin

Secretary

Board

3 hrs/wk

Jennifer Portnoy

President

Board

8 hrs/wk

Anastasia Portnoy

Treasurer

Board

3 hrs/wk

Grants received

Showing 9 of 9

FromAmountPurposeYear
$62K
For grant recipient's exempt purposes
2023
$7K
For grant recipient's exempt purposes
2022
$52K
For grant recipient's exempt purposes
2021
$52K
For grant recipient's exempt purposes
2021
$7K
For grant recipient's exempt purposes
2020
$56K
For grant recipient's exempt purposes
2019
$58K
For grant recipient's exempt purposes
2018
$100
PROGRAM/OPERATING SUPPORT
2018
$57K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017

Funded by

$348K from 2 funders · 9 grants · 2017–2023

Details

EIN262346544
NTEE codeG12
Subsection03
Ruling date2008-08
HOPE FOR JAVIER — Mission, Financials & Grants Received | Grantivo