Voluntary Health Associations & Medical Disciplines
Hope For Javier
EAST SETAUKET, NY
Total revenue
$60K
Total expenses
$640
Net assets
$256K
Grants received
$348K
9 grants
EIN
262346544
Tax year
2024
Mission
Hope for javier's mission is to create hope where none (yet) exists. Because duchenne muscular dystrophy is considered an orphan disease, one that pharmaceutical companies consider least profitable and therefore not worthy of their attention, it is up to private individuals to fund much of the research. Through fundraising and raising awareness, hope for javier is changing the outcome for boys diagnosed with this devastating disease in two ways: by funding translational research that focuses on moving science from the lab into human clinical trials and by funding initiatives that make improvements to the standard of care, the quality of life, and the general outlook for all those diagnosed.
Financials
FY 2024
Revenue
Expenses
People
4 listed
Ricardo Romero
Vice President
—
3 hrs/wk
David Merzin
Secretary
—
3 hrs/wk
Jennifer Portnoy
President
—
8 hrs/wk
Anastasia Portnoy
Treasurer
—
3 hrs/wk
Grants received
Showing 9 of 9
Funded by
$348K from 2 funders · 9 grants · 2017–2023
$348K · 8 grants · 2017–2023
$100 · 1 grant · 2018