NonprofitsHuntington Study Group Ltd

Voluntary Health Associations & Medical Disciplines

Huntington Study Group Ltd

ROCHESTER, NY

Total revenue

$5.0M

Total expenses

$4.9M

Net assets

$6.8M

Grants received

$148K

7 grants

EIN

455557987

Tax year

2024

Mission

See schedule o for organization's mission and most significant activities.the organization aims to advance knowledge about the cause(s), disease progression and treatment of huntington disease and related disorders.

Financials

FY 2024

Revenue

Contributions & grants$347K
Program service revenue$4.4M
Investment income$220K
Other revenue$56K
Total revenue$5.0M

Expenses

Grants paid
Salaries & benefits$1.6M
Fundraising
Other expenses$3.3M
Total expenses$4.9M
Total assets$8.1M
Net assets$6.8M

People

12 listed

NameRoleCompensation

SHARI KINEL JD

CEO/SECRETARY (UNTIL 7/3/24)

Board

$253K

40 hrs/wk

MICHAEL LENTINE

CFO

Board

$227K

40 hrs/wk

DANIEL CLAASSEN

CEO (BEGIN 9/1/24)

Board

$156K

40 hrs/wk

ARVIND SREEDHARAN

BOARD MEMBER

Board

1 hrs/wk

WILLIAM HOH

VICE CHAIR

Board

1 hrs/wk

PETER SCHMIDT PHD

CHAIR

Board

1 hrs/wk

JONI STEINMAN

TREASURER (UNTIL NOV. 2024)

Board

1 hrs/wk

ANNE VAN DUSEN

COO

Staff

$260K

40 hrs/wk

ELIZABETH DE BLIECK

SR. DIR, PROJECT MANAGEMENT

Staff

$147K

40 hrs/wk

MELISSA AUSTIN

DIR, CLINICAL OPERATIONS

Staff

$133K

40 hrs/wk

ELISE KAYSON-RUBIN

VP OF CLINICAL OPERATIONS

Staff

$125K

40 hrs/wk

KELLEY MORGAN

SR. PROJECT MANAGER

Staff

$122K

40 hrs/wk

Independent contractors

UNIVERSITY OF ROCHESTER CHETCCTC

PROJECT & DATA MANAGEMENT

$623K

CINCINNATI HYATT OPERATING

CONFERENCE SERVICES

$311K

UNIVERSITY OF TEXAS

SCIENTIFIC LEADERSHIP

$155K

HEREDITARY NEUROLOGICAL DISEASE CENTRE

SITE FEES

$145K

UPSTREAM VISION

PLATFORM FEES

$125K

Grants received

Showing 7 of 7

FromAmountPurposeYear
$32K
For grant recipient's exempt purposes
2023
$30K
Support for annual meeting
2023
$26K
Support for annual meeting
2022
$15K
Support for annual meeting
2021
$10K
General Fund
2021
$25K
Support for virtual annual meeting
2020
$10K
General Fund
2020

Funded by

$148K from 3 funders · 7 grants · 2020–2023

CHDI Foundation Inc

$96K · 4 grants · 2020–2023

The Fox Family Foundation

$20K · 2 grants · 2020–2021

Details

EIN455557987
NTEE codeG20
Subsection03
Ruling date2013-03
Formed2012
Employees36
Volunteers211
HUNTINGTON STUDY GROUP LTD — Mission, Financials & Grants Received | Grantivo