Nonprofits›Huntingtons Disease Society Of America Inc

Huntingtons Disease Society Of America Inc

NEW YORK, NY

WebsiteView as a funder

Total revenue

$10.2M

Total expenses

$11.4M

Net assets

$12.6M

Grants received

$6.6M

104 grants

EIN

133349872

Tax year

2024

Mission

Dedicated to improving the lives of people with huntington's disease and their families.

Programs

3 programs

Patient and family services - provides counseling and referral services to patients with huntington's disease and their families.

Expenses: $3.2MGrants: $2.1M

Community outreach - provides workshops, seminars, and symposiums on huntington's disease through a network of chapter affiliates and branches throughout the united states.

Expenses: $826K

Education provides information and education through publication and distribution of newsletters, brochures and science updates

Expenses: $1.9MGrants: $135K

Financials

FY 2024

Revenue

Contributions & grants$9.8M
Program service revenue—
Investment income$205K
Other revenue$146K
Total revenue$10.2M

Expenses

Grants paid$3.4M
Salaries & benefits$4.3M
Fundraising$2.0M
Other expenses$3.7M
Total expenses$11.4M
Total assets$17.3M
Net assets$12.6M

People

26 listed

NameRoleCompensation

ROSEMARY COLUCCIO

CHIEF OPERATIONS OFFICER

Board

$286K

35 hrs/wk

LOUISE VETTER

CHIEF EXECUTIVE OFF (THRU 7/12/2024)

Board

$282K

35 hrs/wk

MARK COE

TRUSTEE

Board

—

6 hrs/wk

ERIN FURR-STIMMING MD

TRUSTEE

Board

—

6 hrs/wk

BETH HOFFMAN

TRUSTEE

Board

—

6 hrs/wk

JONATHAN KLEIN ESQ

TRUSTEE

Board

—

6 hrs/wk

KELSEY PORTER

TRUSTEE (THRU 6/2024)

Board

—

6 hrs/wk

VICTOR SUNG MD

PAST CHAIR

Board

—

6 hrs/wk

LESLIE M THOMPSON PHD

TRUSTEE

Board

—

6 hrs/wk

VICKI WHEELOCK MD

TRUSTEE

Board

—

6 hrs/wk

AMBER SOUTHWELL PHD

TRUSTEE

Board

—

6 hrs/wk

CHRISTOPHER DECESARIS

TRUSTEE

Board

—

6 hrs/wk

DOMINIQUE THOMAS

TRUSTEE

Board

—

6 hrs/wk

TERESA SRAJER

CHAIR

Board

—

6 hrs/wk

ANGELA ALLEN

TREASURER

Board

—

6 hrs/wk

JENNE COLER-DARK

CHAIR ELECT

Board

—

6 hrs/wk

JAY HUGHES

SECRETARY

Board

—

6 hrs/wk

KAMRAN ALAM

TRUSTEE

Board

—

6 hrs/wk

JEFFREY BROWN

TRUSTEE

Board

—

6 hrs/wk

JEFF CARROLL

TRUSTEE

Board

—

6 hrs/wk

ARIK JOHNSON

CHIEF MISSION OFFICER

Staff

$218K

35 hrs/wk

JAMISON SKALA

DIRECTOR, NATIONAL DEVELOPMENT

Staff

$191K

35 hrs/wk

DEBORAH BOYD

REGIONAL DEVELOPMENT DIRECTOR

Staff

$120K

35 hrs/wk

REBECCA CHAN

CONTROLLER

Staff

$120K

35 hrs/wk

JESSICA MARSOLEK

ASSISTANT DIRECTOR, MISSION PROGRAMS

Staff

$112K

35 hrs/wk

NICHOLE MENDOZA

REGIONAL DEVELOPMENT OFFICER PACIFIC WEST

Staff

$103K

35 hrs/wk

Independent contractors

GLOBAL GENES

ONLINE DATA COLLECTION & ANALYTICS PLATF

$655K

LIBSHAP REALTY CORPORATION

REALTY

$302K

J&R GRAPHICS

GRAPHIC DESIGN

$171K

THORN RUN PARTNERS LLC

GOVERNMENT AFFAIRS FIRM

$120K

T-FORMATION

GRAPHIC DESIGN

$114K

Grants received

Showing 104 of 104

FromAmountPurposeYear
AMERICAN ONLINE GIVING FOUNDATION INC
$148K
GENERAL SUPPORT
2024
PAYPAL CHARITABLE GIVING FUND
$95K
GENERAL SUPPORT
2024
RICHMOND AMERICAN FOUNDATION
$50K
GENERAL OPERATING SUPPORT
2024
CHC CREATING HEALTHIER COMMUNITIES
$24K
RESEARCH/PUBLICEDUCATION
2024
AMERICAN ENDOWMENT FOUNDATION
$22K
MEDICAL RESEARCH
2024
KNIGHTS OF COLUMBUS COUNCIL 1883
$15K
OTHER
2024
PLEDGELING FOUNDATION
$12K
GENERAL
2024
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$10K
UNRESTRICTED GENERAL SUPPORT
2024
GS DONOR ADVISED PHILANTHROPY FUND
$10K
MEDICAL / PUBLIC SERVICES
2024
Silicon Valley Community Foundation
$10K
Health
2024
MADISON COMMUNITY FOUNDATION
$8K
FOR RESEARCH
2024
CHICAGO WOLVES CHARITIES
$8K
TO SUPPORT RESEARCH FOR HUNTINGTON'S DISEASE
2024
The Winston-Salem Foundation
$7K
1 grant(s) for varying purposes
2024
SOUTHERN ARIZONA ROADRUNNERS CLUB
$7K
RACE BENEFICIARY
2024
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$5K
UNRESTRICTED GENERAL SUPPORT
2024
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$5K
UNRESTRICTED GENERAL SUPPORT
2024
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$614K
For grant recipient's exempt purposes
2023
DONOR ADVISED CHARITABLE GIVING INC
$537K
HEALTH
2023
AMERICAN ONLINE GIVING FOUNDATION INC
$126K
GENERAL SUPPORT
2023
PAYPAL CHARITABLE GIVING FUND
$47K
—
2023
VANGUARD CHARITABLE ENDOWMENT PROGRAM
$29K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
RAYMOND JAMES CHARITABLE ENDOWMENT FUND
$28K
GENERAL SUPPORT
2023
KOSAIR CHARITIES COMMITTEE INC
$24K
HEALTHCARE
2023
CHC CREATING HEALTHIER COMMUNITIES
$22K
RESEARCH/PUBLICEDUCATION
2023
AMERICAN ENDOWMENT FOUNDATION
$21K
MEDICAL RESEARCH
2023
GS DONOR ADVISED PHILANTHROPY FUND
$15K
MEDICAL / PUBLIC SERVICES
2023
NATIONAL PHILANTHROPIC TRUST
$13K
ENVIRONMENT, ANIMALS
2023
COLUMBUS FOUNDATION
$10K
HEALTH
2023
CHICAGO WOLVES CHARITIES
$9K
TO SUPPORT RESEARCH FOR HUNTINGTON'S DIEASE
2023
SOUTHERN ARIZONA ROADRUNNERS CLUB
$8K
RACE BENEFICIARY
2023
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$8K
UNRESTRICTED GENERAL SUPPORT
2023
PLEDGELING FOUNDATION
$5K
GENERAL
2023
The Winston-Salem Foundation
$5K
1 grant(s) for varying purposes
2023
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$162K
For grant recipient's exempt purposes
2022
AMERICAN ONLINE GIVING FOUNDATION INC
$116K
GENERAL SUPPORT
2022
CHC CREATING HEALTHIER COMMUNITIES
$30K
RESEARCH/PUBLICEDUCATION
2022
THE BLACKBAUD GIVING FUND
$29K
GENERAL SUPPORT
2022
DONOR ADVISED CHARITABLE GIVING INC
$29K
HEALTH
2022
COLUMBUS FOUNDATION
$20K
HEALTH
2022
CHARITIES AID FOUNDATION AMERICA
$16K
CHARITABLE DONATION
2022
NATIONAL PHILANTHROPIC TRUST
$12K
HEALTH
2022
PAYPAL CHARITABLE GIVING FUND
$11K
GENERAL SUPPORT
2022
VANGUARD CHARITABLE ENDOWMENT PROGRAM
$11K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$10K
UNRESTRICTED GENERAL SUPPORT
2022
DIGNITY HEALTH
$10K
COMMUNITY HEALTH
2022
RAYMOND JAMES CHARITABLE ENDOWMENT FUND
$10K
GENERAL SUPPORT
2022
COMMUNITY FOUNDATION FOR SOUTHEAST
$10K
GENERAL OPERATIONS
2022
CHICAGO WOLVES CHARITIES
$9K
TO SUPPORT RESEARCH FOR HUNTINGTON'S DIEASE
2022
COMMUNITY FOUNDATION FOR PALM BEACH AND
$8K
VOLUNTARY HEALTH ASSOCIATIONS & MEDICAL DISCIPLINE
2022
NATL CHRISTIAN CHARITABLE FDN INC
$6K
GROWTH
2022
NATL CHRISTIAN CHARITABLE FDN INC
$6K
GROWTH
2022
THE VAN WERT COUNTY FOUNDATION
$5K
OPERATING GRANT
2022
MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC
$5K
UNRESTRICTED GENERAL SUPPORT
2022
CORNELL UNIVERSITY FOUNDATION
$450K
IN FURTHERANCE OF THE ORGANIZATION'S TAX EXEMPT MISSION
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$233K
For grant recipient's exempt purposes
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$233K
For grant recipient's exempt purposes
2021
VANGUARD CHARITABLE ENDOWMENT PROGRAM
$121K
For recipient's exempt purpose
2021
AMERICAN ONLINE GIVING FOUNDATION INC
$99K
GENERAL SUPPORT
2021
DONOR ADVISED CHARITABLE GIVING INC
$37K
HEALTH
2021
RAYMOND JAMES CHARITABLE ENDOWMENT FUND
$14K
GENERAL SUPPORT
2021
AMERICA'S CHARITIES
$8K
GENERAL SUPPORT
2021
PAYPAL CHARITABLE GIVING FUND
$8K
General Support
2021
EAST BAY COMMUNITY FOUNDATION
$6K
GENERAL SUPPORT
2021
THE UNITED WAY OF SOUTHWESTERN
$5K
DONOR DESIGNATION PR
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$608K
For grant recipient's exempt purposes
2020
CORNELL UNIVERSITY FOUNDATION
$223K
IN FURTHERANCE OF THE ORGANIZATION'S TAX EXEMPT MISSION
2020
AMERICAN ONLINE GIVING FOUNDATION INC
$75K
GENERAL SUPPORT
2020
DONOR ADVISED CHARITABLE GIVING INC
$50K
HEALTH
2020
RICHMOND AMERICAN FOUNDATION
$50K
General Operating Support
2020
VANGUARD CHARITABLE ENDOWMENT PROGRAM
$34K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
CHC CREATING HEALTHIER COMMUNITIES
$32K
RESEARCH/PUBLIC EDUCATION
2020
COLUMBUS FOUNDATION
$30K
HEALTH
2020
DIGNITY HEALTH
$11K
COMMUNITY HEALTH
2020
ADIRA FOUNDATION
$10K
CONVERT ANNUAL CONVENTION TO VIRTUAL EXPERIENCE
2020
THE GOLDMAN SACHS CHARITABLE GIFT FUND
$10K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2020
COMMUNITY FOUNDATION FOR SOUTHEAST
$10K
GENERAL OPERATIONS
2020
PADRES FOUNDATION
$9K
EVENT SPONSORSHIP
2020
PLEDGELING FOUNDATION
$7K
GENERAL
2020
CHICAGO WOLVES CHARITIES
$7K
TO SUPPORT RESEARCH FOR HUNTINGTON'S DIEASE
2020
JEWISH COMMUNAL FUND
$5K
General support
2020
PAYPAL CHARITABLE GIVING FUND
$5K
General Support
2020
CORNELL UNIVERSITY FOUNDATION
$375K
IN FURTHERANCE OF THE ORGANIZATION'S TAX EXEMPT MISSION
2019
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$213K
For grant recipient's exempt purposes
2019
AMERICAN ONLINE GIVING FOUNDATION INC
$210K
GENERAL SUPPORT
2019
DONOR ADVISED CHARITABLE GIVING INC
$30K
HEALTH
2019
DIGNITY HEALTH
$13K
COMMUNITY HEALTH
2019
Anywhere Gives Inc
$12K
General Assistance
2019
JEWISH COMMUNAL FUND
$10K
General support
2019
JEWISHColorado
$10K
General operating
2019
NATIONAL PHILANTHROPIC TRUST
$7K
HEALTH
2019
UNITED WAY MIAMI INC
$5K
GENERAL FUNDS
2019
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$256K
For grant recipient's exempt purposes
2018
CHC CREATING HEALTHIER COMMUNITIES
$45K
RESEARCH/PUBLIC EDUCATION
2018
NETWORK FOR GOOD
$36K
Unrestricted
2018
DONOR ADVISED CHARITABLE GIVING INC
$24K
HEALTH
2018
CHC CREATING HEALTHIER
$8K
RESEARCH/PUBLIC EDUCATION
2018
JEWISH COMMUNAL FUND
$5K
General Support
2018
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$229K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
CHC CREATING HEALTHIER COMMUNITIES
$78K
RESEARCH/PUBLIC EDUCATION
2017
CHC CREATING HEALTHIER COMMUNITIES
$78K
RESEARCH/PUBLIC EDUCATION
2017
DONOR ADVISED CHARITABLE GIVING INC
$14K
HEALTH & HUMAN SERVICES
2017
CHC CREATING HEALTHIER
$12K
RESEARCH/PUBLIC EDUCATION
2017
CHC CREATING HEALTHIER
$12K
RESEARCH/PUBLIC EDUCATION
2017
JEWISH COMMUNAL FUND
$9K
General Support
2017

Funded by

$6.6M from 41 funders · 104 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$2.5M · 8 grants · 2017–2023

Cornell University Foundation

$1.0M · 3 grants · 2019–2021

American Online Giving Foundation Inc

$775K · 6 grants · 2019–2024

Donor Advised Charitable Giving Inc

$720K · 7 grants · 2017–2023

Chc Creating Healthier Communities

$309K · 7 grants · 2017–2024

Vanguard Charitable Endowment Program

$194K · 4 grants · 2020–2023

Paypal Charitable Giving Fund

$166K · 5 grants · 2020–2024

Richmond American Foundation

$100K · 2 grants · 2020–2024

Details

EIN133349872
Subsection03
Ruling date1988-02
Formed1986
Employees36
Volunteers500
HUNTINGTONS DISEASE SOCIETY OF AMERICA INC — Mission, Financials & Grants Received | Grantivo