NonprofitsHuntingtons Disease Youth Organization Of America

Disease & Medical Research

Huntingtons Disease Youth Organization Of America

LIVONIA, MI

Total revenue

$416K

Total expenses

$349K

Net assets

$452K

Grants received

$196K

6 grants

EIN

454955538

Tax year

2024

Mission

Support young people around the world impacted by huntington's disease.

Programs

2 programs

Hdyo camp - camp offers young people the chance to meet others impacted by hd to learn about hd through educational workshops, share experiences and also have plenty of fun participating in the many on-site activities like swimming, rock climbing, hiking, archery and much more. This was hosted at camp st. Charles in maryland. We welcomed 34 campers and 26 volunteers for 5 days of intense support and community building. This was held on august 11-15.

Expenses: $72KGrants: $36K

Hdyo uk grant support: hdyo of america supported our sister organization, also known as hdyo, registered as a charity under the united kingdom charity comission. Our grants provided funds for the creation and sharing of joint resources including a website, brochures, educational programs, and much more. Our sister organization works insync with hdyo-america to combine our efforts to provide the best support possible for all young people around the world impacted by hd.

Expenses: $20KGrants: $20K

Financials

FY 2024

Revenue

Contributions & grants$416K
Program service revenue
Investment income
Other revenue
Total revenue$416K

Expenses

Grants paid$56K
Salaries & benefits$110K
Fundraising
Other expenses$183K
Total expenses$349K
Total assets$452K
Net assets$452K

People

14 listed

NameRoleCompensation

JENNA HEILMAN

EXECUTIVE DIRECTOR

Board

$110K

15 hrs/wk

TREY RANDALL

TERM ENDED AUGUST 2024

Board

15 hrs/wk

JARROD STRYDOM

TERM ENDED MARCH 2024

Board

15 hrs/wk

DR KELLY ATKINS

VICE CHAIR, INTERIM SECRETARY

Board

2 hrs/wk

DR LAUREN BYRNE

BOARD MEMBER

Board

2 hrs/wk

LAUREN YOUNGBORG

TERM ENDED AUGUST 2024

Board

2 hrs/wk

ASHLEY CLARKE

BOARD MEMBER

Board

2 hrs/wk

MATTHEW SHORE

TERM ENDED AUGUST 2024

Board

2 hrs/wk

CLARE BRAITHWAITE

BOARD MEMBER

Board

2 hrs/wk

JENNY HARTE

BOARD MEMBER

Board

2 hrs/wk

ARIANA PULLIN

CHAIR

Board

2 hrs/wk

PAUL CONN

BOARD MEMBER

Board

2 hrs/wk

DR BONNIE HENNIG-TRESTMENT

BOARD MEMBER

Board

2 hrs/wk

DR KATHERINE MCDONELL

BOARD MEMBER

Board

2 hrs/wk

Independent contractors

FRESH NONPROFIT SOLUTIONS LLC

$110K

Grants received

Showing 6 of 6

FromAmountPurposeYear
$6K
GENERAL SUPPORT
2024
$50K
For grant recipient's exempt purposes
2023
$45K
For grant recipient's exempt purposes
2021
$45K
For grant recipient's exempt purposes
2021
$45K
For grant recipient's exempt purposes
2020

Funded by

$196K from 3 funders · 6 grants · 2020–2024

Fidelity Investments Charitable Gift Fund

$185K · 4 grants · 2020–2023

Paypal Charitable Giving Fund

$6K · 1 grant · 2024

Details

EIN454955538
NTEE codeG192
Subsection03
Ruling date2014-03
Formed2013
Employees0
Volunteers25
HUNTINGTONS DISEASE YOUTH ORGANIZATION OF AMERICA — Mission, Financials & Grants Received | Grantivo