Disease & Medical Research
Huntingtons Disease Youth Organization Of America
LIVONIA, MI
Total revenue
$416K
Total expenses
$349K
Net assets
$452K
Grants received
$196K
6 grants
EIN
454955538
Tax year
2024
Mission
Support young people around the world impacted by huntington's disease.
Programs
2 programs
Hdyo camp - camp offers young people the chance to meet others impacted by hd to learn about hd through educational workshops, share experiences and also have plenty of fun participating in the many on-site activities like swimming, rock climbing, hiking, archery and much more. This was hosted at camp st. Charles in maryland. We welcomed 34 campers and 26 volunteers for 5 days of intense support and community building. This was held on august 11-15.
Hdyo uk grant support: hdyo of america supported our sister organization, also known as hdyo, registered as a charity under the united kingdom charity comission. Our grants provided funds for the creation and sharing of joint resources including a website, brochures, educational programs, and much more. Our sister organization works insync with hdyo-america to combine our efforts to provide the best support possible for all young people around the world impacted by hd.
Financials
FY 2024
Revenue
Expenses
People
14 listed
JENNA HEILMAN
EXECUTIVE DIRECTOR
$110K
15 hrs/wk
TREY RANDALL
TERM ENDED AUGUST 2024
—
15 hrs/wk
JARROD STRYDOM
TERM ENDED MARCH 2024
—
15 hrs/wk
DR KELLY ATKINS
VICE CHAIR, INTERIM SECRETARY
—
2 hrs/wk
DR LAUREN BYRNE
BOARD MEMBER
—
2 hrs/wk
LAUREN YOUNGBORG
TERM ENDED AUGUST 2024
—
2 hrs/wk
ASHLEY CLARKE
BOARD MEMBER
—
2 hrs/wk
MATTHEW SHORE
TERM ENDED AUGUST 2024
—
2 hrs/wk
CLARE BRAITHWAITE
BOARD MEMBER
—
2 hrs/wk
JENNY HARTE
BOARD MEMBER
—
2 hrs/wk
ARIANA PULLIN
CHAIR
—
2 hrs/wk
PAUL CONN
BOARD MEMBER
—
2 hrs/wk
DR BONNIE HENNIG-TRESTMENT
BOARD MEMBER
—
2 hrs/wk
DR KATHERINE MCDONELL
BOARD MEMBER
—
2 hrs/wk
Independent contractors
FRESH NONPROFIT SOLUTIONS LLC
Grants received
Showing 6 of 6
Funded by
$196K from 3 funders · 6 grants · 2020–2024
$185K · 4 grants · 2020–2023
$6K · 1 grant · 2024
$5K · 1 grant · 2023