Disease & Medical Research
Illinois Spina Bifida Association
CHICAGO, IL
Total revenue
$268K
Total expenses
$309K
Net assets
$326K
Grants received
$418K
51 grants
EIN
237062317
Tax year
2024
Mission
Works to improve the quality of life of children, adults, and families living with spina bifida.
Programs
2 programs
Support Individuals and Families Through Outreach, Education, and Advocacy: ISBA has built a statewide network of more than 1000 people living with spina bifida through community events, virtual groups, and outreach at hospital outpatient clinics.ISBA has partnerships with Shriners Children's Chicago, where ISBA is co-located, as well as with Ann & Robert H. Lurie Children's Hospital of Chicago, Loyola Medicine, The UChicago Medicine Margaret Hackett Family Program, and OSF HealthCare in Peoria.Education advocacy and legislative advocacy help ensure that people of all ages with spina bifida receive the services they need.
Invest in People Through Targeted Financial Assistance: ISBA provided financial assistance for medical expenses and equipment, scholarships, camp, adaptive sports, and emergency needs.
Financials
FY 2024
Revenue
Expenses
People
12 listed
Matt Larsen
Executive Director
$81K
40 hrs/wk
Blanca Jara
Vice Chair
—
4 hrs/wk
James Marks
Treasurer
—
4 hrs/wk
Nathan Parris
Secretary
—
4 hrs/wk
Chris Byrne
Director
—
2 hrs/wk
Derek Snyder
Director
—
2 hrs/wk
Rebecca Rupnick
Chairperson
—
8 hrs/wk
Kevin Dam
Director
—
2 hrs/wk
Mary Jo Grill
Director
—
2 hrs/wk
Jessica Barclay
Director resigned 2024
—
2 hrs/wk
Paul Gerber
Director resigned 2024
—
2 hrs/wk
Erika Holliday
Director
—
2 hrs/wk
Grants received
Showing 51 of 51
Funded by
$418K from 21 funders · 51 grants · 2017–2024
$205K · 8 grants · 2017–2023
$69K · 5 grants · 2020–2024
$35K · 5 grants · 2018–2023
$29K · 6 grants · 2018–2024
$20K · 1 grant · 2020
$11K · 2 grants · 2021–2023
$10K · 1 grant · 2020
$7K · 1 grant · 2020