NonprofitsIllinois Spina Bifida Association

Disease & Medical Research

Illinois Spina Bifida Association

CHICAGO, IL

Total revenue

$268K

Total expenses

$309K

Net assets

$326K

Grants received

$418K

51 grants

EIN

237062317

Tax year

2024

Mission

Works to improve the quality of life of children, adults, and families living with spina bifida.

Programs

2 programs

Support Individuals and Families Through Outreach, Education, and Advocacy: ISBA has built a statewide network of more than 1000 people living with spina bifida through community events, virtual groups, and outreach at hospital outpatient clinics.ISBA has partnerships with Shriners Children's Chicago, where ISBA is co-located, as well as with Ann & Robert H. Lurie Children's Hospital of Chicago, Loyola Medicine, The UChicago Medicine Margaret Hackett Family Program, and OSF HealthCare in Peoria.Education advocacy and legislative advocacy help ensure that people of all ages with spina bifida receive the services they need.

Expenses: $75K

Invest in People Through Targeted Financial Assistance: ISBA provided financial assistance for medical expenses and equipment, scholarships, camp, adaptive sports, and emergency needs.

Expenses: $56KGrants: $64K

Financials

FY 2024

Revenue

Contributions & grants$168K
Program service revenue$3K
Investment income$14K
Other revenue$84K
Total revenue$268K

Expenses

Grants paid$64K
Salaries & benefits$197K
Fundraising$36K
Other expenses$47K
Total expenses$309K
Total assets$348K
Net assets$326K

People

12 listed

NameRoleCompensation

Matt Larsen

Executive Director

Board

$81K

40 hrs/wk

Blanca Jara

Vice Chair

Board

4 hrs/wk

James Marks

Treasurer

Board

4 hrs/wk

Nathan Parris

Secretary

Board

4 hrs/wk

Chris Byrne

Director

Board

2 hrs/wk

Derek Snyder

Director

Board

2 hrs/wk

Rebecca Rupnick

Chairperson

Board

8 hrs/wk

Kevin Dam

Director

Board

2 hrs/wk

Mary Jo Grill

Director

Board

2 hrs/wk

Jessica Barclay

Director resigned 2024

Board

2 hrs/wk

Paul Gerber

Director resigned 2024

Board

2 hrs/wk

Erika Holliday

Director

Board

2 hrs/wk

Grants received

Showing 51 of 51

FromAmountPurposeYear
$5K
GENERAL SUPPORT
2024
$24K
For grant recipient's exempt purposes
2023
$500
GENERAL OPERATING SUPPORT
2023
$150
PROGRAM/OPERATING SUPPORT
2023
$100
MATCHING GIFTS
2023
$36K
For grant recipient's exempt purposes
2022
$5K
To support financial assistance with out-of-pocket costs for medical supplies, services and equipment up to 250
2022
$2K
PROGRAM/OPERATING SUPPORT
2022
$100
PROGRAM/OPERATING SUPPORT
2022
$100
MATCHING GIFTS GRANT
2022
$29K
For grant recipient's exempt purposes
2021
$29K
For grant recipient's exempt purposes
2021
$3K
GENERAL ASSISTANCE
2021
$1K
Further relatedprograms
2021
$21K
For grant recipient's exempt purposes
2020
$20K
COC GRANT
2020
$5K
PEER MENTORING AND SUPPORT
2020
$500
Further relatedprograms
2020
$500
General Operating Support
2020
$500
GENERAL OPERATING SUPPORT
2020
$300
To support the general charitable operations of the organization
2020
$100
MATCHING GIFTS GRANT
2020
$33K
For grant recipient's exempt purposes
2019
$250
GENERAL OPERATING SUPPORT
2019
$13K
For grant recipient's exempt purposes
2018
$6K
DONOR ADVISED FUND
2018
$1K
Further relatedprograms
2018
$1K
MEDICAL RESEARCH
2018
$25
Matching Grant
2018
$21K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017

Funded by

$418K from 21 funders · 51 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$205K · 8 grants · 2017–2023

American Online Giving Foundation Inc

$69K · 5 grants · 2020–2024

Jay Johnson Charitable Trust Xxxxx7008

$35K · 5 grants · 2018–2023

John W Anderson Foundation

$29K · 6 grants · 2018–2024

Global Genes

$20K · 1 grant · 2020

Donor Advised Charitable Giving Inc

$11K · 2 grants · 2021–2023

Imc Chicago Charitable Foundation

$7K · 1 grant · 2020

Details

EIN237062317
NTEE codeG55Z
Subsection03
Ruling date1971-03
Formed1969
Employees10
Volunteers100
ILLINOIS SPINA BIFIDA ASSOCIATION — Mission, Financials & Grants Received | Grantivo