Nonprofits›International Foundation For Cdkl5 Research

Public Foundations

International Foundation For Cdkl5 Research

WADSWORTH, OH

WebsiteView as a funder

Total revenue

$716K

Total expenses

$357K

Net assets

$964K

Grants received

$198K

29 grants

EIN

270950477

Tax year

2024

Mission

To fund research aimed at finding a cure for CDKL5, a rare genetic disorder. A family conference is funded by the Organization every two years to provide support to families whose loved ones suffer from CDKL5.

Financials

FY 2024

Revenue

Contributions & grants$713K
Program service revenue—
Investment income$4K
Other revenue—
Total revenue$716K

Expenses

Grants paid$121K
Salaries & benefits—
Fundraising$3K
Other expenses$236K
Total expenses$357K
Total assets$977K
Net assets$964K

People

8 listed

NameRoleCompensation

Karen Utley

President

Board

—

35 hrs/wk

Rick Upp

Vice President

Board

—

15 hrs/wk

Paul Miller

Secretary

Board

—

15 hrs/wk

Amanda Jaksha

Treasurer

Board

—

15 hrs/wk

Miriam Churgin

Director

Board

—

1 hrs/wk

Garrett Decker

Director

Board

—

1 hrs/wk

Marissa Bishop

Director

Board

—

1 hrs/wk

Melissa Ralston

Board Member Emeritus

Board

—

1 hrs/wk

Grants received

Showing 29 of 29

FromAmountPurposeYear
PAYPAL CHARITABLE GIVING FUND
$13K
GENERAL SUPPORT
2024
AMERICAN ONLINE GIVING FOUNDATION INC
$10K
GENERAL SUPPORT
2024
JPMORGAN CHASE FOUNDATION
$3K
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
THE PFIZER FOUNDATION INC
$100
MATCHING GIFTS
2024
PAYPAL CHARITABLE GIVING FUND
$23K
—
2023
COMMUNITY FOUNDATION OF
$15K
RESEARCH
2023
AMERICAN ONLINE GIVING FOUNDATION INC
$11K
GENERAL SUPPORT
2023
DONOR ADVISED CHARITABLE GIVING INC
$11K
PUBLIC, SOCIETAL BENEFIT
2023
CHARITIES AID FOUNDATION AMERICA
$10K
CHARITABLE DONATION
2023
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$6K
For grant recipient's exempt purposes
2023
JPMORGAN CHASE FOUNDATION
$3K
GENERAL OPERATING SUPPORT
2023
AMERICAN ONLINE GIVING FOUNDATION INC
$22K
GENERAL SUPPORT
2022
DONOR ADVISED CHARITABLE GIVING INC
$12K
PUBLIC, SOCIETAL BENEFIT
2022
JPMORGAN CHASE FOUNDATION
$3K
GENERAL OPERATING SUPPORT
2022
BRISTOL-MYERS SQUIBB FOUNDATION INC
$1K
EMPLOYEE GIVING PROGRAM
2022
BRISTOL-MYERS SQUIBB FOUNDATION INC
$1K
EMPLOYEE GIVING PROGRAM
2022
ESSENDANT CHARITABLE FOUNDATION
$500
GENERAL FUND
2022
AMERICAN ONLINE GIVING FOUNDATION INC
$19K
GENERAL SUPPORT
2021
JPMORGAN CHASE FOUNDATION
$3K
GENERAL OPERATING SUPPORT
2021
THE WARBURG PINCUS FOUNDATION
$2K
TO TREAT AND CURE CDKL5 DEFICIENCY DISORDER BY FUNDING SCIENTIFIC RESEARCH, WHILE HELPING AFFECTED INDIVIDUALS AND THEIR FAMILIES TO THRIVE.
2021
BRISTOL-MYERS SQUIBB FOUNDATION INC
$1K
GENERAL PURPOSE
2021
Haushalter Family Foundation
$500
General & Unrestricted
2021
MONSTER ENERGY CARES
$200
EMPLOYEE MATCHING
2021
JPMORGAN CHASE FOUNDATION
$3K
GENERAL OPERATING SUPPORT
2020
AETNA FOUNDATION INC
$103
GENERAL PURPOSE
2020
AMERICAN ONLINE GIVING FOUNDATION INC
$5K
GENERAL SUPPORT
2019
JPMORGAN CHASE FOUNDATION
$3K
GENERAL OPERATING SUPPORT
2019
DONOR ADVISED CHARITABLE GIVING INC
$10K
PUBLIC, SOCIETAL BENEFIT
2018
DONOR ADVISED CHARITABLE GIVING INC
$10K
HEALTH & HUMAN SERVICES
2017

Funded by

$198K from 14 funders · 29 grants · 2017–2024

American Online Giving Foundation Inc

$67K · 5 grants · 2019–2024

Donor Advised Charitable Giving Inc

$42K · 4 grants · 2017–2023

Paypal Charitable Giving Fund

$36K · 2 grants · 2023–2024

Community Foundation Of

$15K · 1 grant · 2023

Jpmorgan Chase Foundation

$15K · 6 grants · 2019–2024

Charities Aid Foundation America

$10K · 1 grant · 2023

Bristol-Myers Squibb Foundation Inc

$3K · 3 grants · 2021–2022

Details

EIN270950477
NTEE codeT30
Subsection03
Ruling date2010-05
Formed2009
Employees0
Volunteers12
INTERNATIONAL FOUNDATION FOR CDKL5 RESEARCH — Mission, Financials & Grants Received | Grantivo