Nonprofits›Jansen De Vries Syndrome Foundation
Voluntary Health Associations & Medical Disciplines
Jansen De Vries Syndrome Foundation
NATICK, MA
Total revenue
$39K
Total expenses
$74K
Net assets
$49K
Grants received
$14K
2 grants
EIN
854064822
Tax year
2024
Mission
The foundation is focused on providing education and resources to both families and medical professionals. Its goal is to raise awareness about this rare genetic condition and unite families, researchers, and medical professionals through the facilitation of a patient registry program.
Financials
FY 2024
Revenue
Contributions & grants$38K
Program service revenue—
Investment income—
Other revenue$972
Total revenue$39K
Expenses
Grants paid$55K
Salaries & benefits—
Fundraising—
Other expenses$17K
Total expenses$74K
Total assets$49K
Net assets$49K
People
3 listed
NameRoleCompensation
KARA KILROY
PRESIDENT/DIRECTOR
Board
—
8 hrs/wk
RACHEL HORNE
SECRETARY/VICE PRESIDENT
Board
—
8 hrs/wk
MARINDA DU TOIT
TREASURER
Board
—
8 hrs/wk
Grants received
Showing 2 of 2
FromAmountPurposeYear
Funded by
$14K from 2 funders · 2 grants · 2023
Network For Good
$8K · 1 grant · 2023
American Express Foundation
$6K · 1 grant · 2023
Details
EIN854064822
NTEE codeG01
Subsection03
Ruling date2021-11