NonprofitsKabuki Syndrome Foundation

Voluntary Health Associations & Medical Disciplines

Kabuki Syndrome Foundation

NORTHBROOK, IL

Total revenue

$1.2M

Total expenses

$929K

Net assets

$2.3M

Grants received

$924K

29 grants

EIN

825401904

Tax year

2024

Mission

Drive research efforts that show promise to treat or cure kabuki syndrome.

Programs

1 program

The foundation funds various research projects that follow the "leap" strategy: learn, enable, accelerate, and prepare. The research projects are the roadmap to potential treatments for kabuki syndrome.

Expenses: $799KGrants: $414K

Financials

FY 2024

Revenue

Contributions & grants$1.4M
Program service revenue
Investment income$54K
Other revenue
Total revenue$1.2M

Expenses

Grants paid$414K
Salaries & benefits
Fundraising$54K
Other expenses$514K
Total expenses$929K
Total assets$2.3M
Net assets$2.3M

People

7 listed

NameRoleCompensation

ANNIE DEAN

CO-PRESIDENT

Board

1 hrs/wk

JILL ORUM DUNBAR

CO-PRESIDENT

Board

1 hrs/wk

PATRICK DUNBAR

TREASURER

Board

1 hrs/wk

THOMAS CINGARI JR

VICE PRESIDENT

Board

1 hrs/wk

EDOARDO ZEGNA DI MONTE RUBELLO

VICE PRESIDENT

Board

1 hrs/wk

LEILA ZEGNA DI MONTE RUBELLO

VICE PRESIDENT

Board

1 hrs/wk

JESSICA MCANDREW

DIRECTOR

Board

1 hrs/wk

Grants received

Showing 29 of 29

FromAmountPurposeYear
$100K
TO DRIVE RESEARCH EFFORTS THAT SHOW PROMISE TO TREAT OR CURE KABUKI SYNDROME THROUGH FUNDRAISING, KNOWLEDGE-SHARING, AND COLLABORATING WITH RESEARCHERS AROUND THE WORLD.
2024
$10K
MEDICAL / PUBLIC SERVICES
2024
$5K
GENERAL DONATION
2024
$1K
GENERAL WELFARE
2024
$75K
General & Unrestricted
2023
$21K
GENERAL SUPPORT
2023
$20K
For grant recipient's exempt purposes
2023
$13K
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
2023
$10K
DONOR-ADVISED, GENERAL
2023
$9K
COMMUNITY & HUMAN SERVICES
2023
$8K
ENVIRONMENT, ANIMALS
2023
$5K
TO SUPPORT PEOPLE WITH A RARE GENETIC DISORDER
2023
$3K
GENERAL PURPOSES OF THE ORGANIZATION
2023
$2K
GENERAL WELFARE
2023
$1K
FOR CHARITABLE PRUPOSES
2023
$10K
TO SUPPORT PEOPLE WITH A RARE GENETIC DISORDER
2022
$3K
GENERAL WELFARE
2022
$3K
GENERAL WELFARE
2021
$2K
GENERAL WELFARE
2020

Funded by

$924K from 20 funders · 29 grants · 2020–2024

Cingari Family Foundation

$310K · 3 grants · 2022–2024

Donor Advised Charitable Giving Inc

$269K · 3 grants · 2021–2023

Steve Wynn Foundation Inc

$100K · 1 grant · 2024

Rather Family Foundation

$21K · 1 grant · 2023

The Kikis Family Foundation

$15K · 2 grants · 2022–2023

Details

EIN825401904
NTEE codeG80
Subsection03
Ruling date2019-02
Formed2018
Employees0
Volunteers6
KABUKI SYNDROME FOUNDATION — Mission, Financials & Grants Received | Grantivo