Voluntary Health Associations & Medical Disciplines
Koolen-De Vries Syndrome Foundation
WILMINGTON, NC
Total revenue
$263K
Total expenses
$270K
Net assets
$574K
Grants received
$99K
20 grants
EIN
463208388
Tax year
2024
Mission
The koolen-de vries syndrome foundation is an international group that (continued on schedule o) supports, informs, and networks with anyone affected by koolen-de vries syndrome (kdvs) and with any interested professionals. The foundation's activities include social gatherings, patient advocacy summits, supporting research, and providing information regarding kdvs to both the general population and medical professionals.
Programs
2 programs
Providing patient advocacy summits and social gathering events for the kdvs community and interested medical professionals.
0Increasing awareness of kdvs in both the general population and medical profession.
Financials
FY 2024
Revenue
Expenses
People
12 listed
ALAYNA HAYNAM
BOARD MEMBER
—
1 hrs/wk
ASHLEY POINT
PRESIDENT
—
10 hrs/wk
CINDY ASBURY
BOARD MEMBER
—
1 hrs/wk
EMILY LEMKE
BOARD MEMBER
—
2 hrs/wk
GABRIEL STAGNER
TREASURER
—
5 hrs/wk
JESSICA COLLIER
BOARD MEMBER
—
5 hrs/wk
KACI FISHER
BOARD MEMBER
—
5 hrs/wk
NEAL DERMERER
BOARD MEMBER
—
1 hrs/wk
MARIA LUISA VALENTIN DE SOLIS
BOARD MEMBER
—
1 hrs/wk
KATIE MAHER
BOARD MEMBER
—
2 hrs/wk
MATT HOLCOMBE
BOARD MEMBER
—
1 hrs/wk
MEGAN HARTWELL
BOARD MEMBER
—
2 hrs/wk
Grants received
Showing 20 of 20
Funded by
$99K from 12 funders · 20 grants · 2018–2024
$35K · 4 grants · 2021–2023
$16K · 2 grants · 2018
$15K · 3 grants · 2022–2024
$11K · 1 grant · 2024
$10K · 1 grant · 2021
$5K · 2 grants · 2020–2024
$5K · 1 grant · 2023
$500 · 1 grant · 2023