NonprofitsLes Turner Amyotrophic Lateral Sclerosis Foundation

Les Turner Amyotrophic Lateral Sclerosis Foundation

SKOKIE, IL

Total revenue

$4.5M

Total expenses

$3.3M

Net assets

$2.7M

Grants received

$2.5M

119 grants

EIN

362916466

Tax year

2024

Mission

To find a cure for als, provide patient and family support and increase public awareness.

Financials

FY 2024

Revenue

Contributions & grants$5.1M
Program service revenue
Investment income$107K
Other revenue
Total revenue$4.5M

Expenses

Grants paid$1.1M
Salaries & benefits$1.5M
Fundraising$421K
Other expenses$749K
Total expenses$3.3M
Total assets$4.4M
Net assets$2.7M

People

23 listed

NameRoleCompensation

LAURA FREVELETTI

CHIEF EXECUTIVE OFFICER

Board

$191K

40 hrs/wk

JOHN COLEMAN III MD

VICE CHAIR

Board

2 hrs/wk

ROBIN FERN

VICE CHAIR

Board

2 hrs/wk

DEBORAH CROCKETT

TREASURER

Board

2 hrs/wk

TINA CASCIO

DIRECTOR

Board

2 hrs/wk

AALOK DAVE

DIRECTOR

Board

2 hrs/wk

SEAN FALLON

DIRECTOR

Board

2 hrs/wk

BONNY GAFFEN

DIRECTOR

Board

2 hrs/wk

ERIN REARDON COHN

BOARD CHAIR

Board

2 hrs/wk

JODI M HARRIS

DIRECTOR

Board

2 hrs/wk

KEN HOFFMAN

DIRECTOR

Board

2 hrs/wk

JANENE JONAS

DIRECTOR

Board

2 hrs/wk

JOSHUA NEWSOME

DIRECTOR

Board

2 hrs/wk

MARY LOU PISONE

DIRECTOR

Board

2 hrs/wk

DIANA PISONE

DIRECTOR

Board

2 hrs/wk

SARVESH SOI

DIRECTOR

Board

2 hrs/wk

FRANK GRANATA

DIRECTOR

Board

2 hrs/wk

HARVEY GAFFEN

CHAIR EMERITUS

Board

2 hrs/wk

THOMAS F BOLEKY

VICE CHAIR

Board

2 hrs/wk

JOEL A SCHECHTER

VICE CHAIR

Board

2 hrs/wk

MARK HEIDEN

DIRECTOR OF COMMUNICATIONS

Staff

$128K

40 hrs/wk

LAUREN WEBB

CHIEF ADVOCACY AND OUTREACH OFFICER

Staff

$121K

40 hrs/wk

CONSTANCE PAESEL

CHIEF OPERATIONS OFFICER

Staff

$114K

40 hrs/wk

Grants received

Showing 119 of 119

FromAmountPurposeYear
$106K
2024 ALS FUNDRAISER - ALS NONPROFIT ORGANIZATION GRANTEE
2024
$78K
GENERAL OPERATING SUPPORT IN HONOR OF STEVE MCMICHAEL'S ELECTION TO THE PRO FOOTBALL HALL OF FAME
2024
$47K
GENERAL SUPPORT
2024
$10K
MEDICAL / PUBLIC SERVICES
2024
$8K
MEDICAL / PUBLIC SERVICES
2024
$5K
SUPPORT SERVICES FOR PEOPLE WITH ALS
2024
$540
VOLUNTEER PROGRAM
2024
$425
GENERAL EXEMPT PURPOSE
2024
$420
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
$60K
MEDICAL RESEARCH
2023
$57K
For grant recipient's exempt purposes
2023
$45K
General support for programs, operations and other charitable purposes
2023
$30K
EXEMPT PURPOSE OF ORGANIZATION
2023
$22K
Support for community organization
2023
$21K
GRANTS FROM DONOR ADVISED FUNDS- OPERATING SUPPORT
2023
$15K
DISEASE/DISORDER
2023
$9K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
$9K
GENERAL SUPPORT
2023
$8K
MEDICAL / PUBLIC SERVICES
2023
$6K
CHARITABLE DONATION
2023
$5K
MATCH/DISCRETIONARY
2023
$340
GENERAL OPERATING SUPPORT
2023
$150
GENERAL EXEMPT PURPOSE
2023
$100
DISEASES, DISORDERS, MEDICAL DISCIPLINES
2023
$50
MATCHING GIFTS
2023
$25
MATCHING GIFTS
2023
$60K
MEDICAL RESEARCH
2022
$35K
General Operating Support
2022
$25K
EXEMPT PURPOSE OF ORGANIZATION
2022
$24K
For grant recipient's exempt purposes
2022
$22K
Grants from Donor Advised Funds - Operating Support
2022
$20K
GENERAL SUPPORT
2022
$20K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
$16K
Support of research activities
2022
$13K
MEDICAL / PUBLIC SERVICES
2022
$6K
General support
2022
$2K
MATCH/DISCRETIONARY
2022
$170
GENERAL OPERATING SUPPORT
2022
$50
COMMUNITY SUPPORT
2022
$26
MATCHING GIFTS
2022
$50K
General operating support. Contribution at ALS Gala (no tickets or benefits received)
2021
$50K
General operating support. Contribution at ALS Gala (no tickets or benefits received)
2021
$29K
For grant recipient's exempt purposes
2021
$29K
For grant recipient's exempt purposes
2021
$25K
EXEMPT PURPOSE OF ORGANIZATION
2021
$22K
Grants from Donor Advised Funds - Operating Support
2021
$20K
For recipient's exempt purpose
2021
$11K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2021
$8K
GENERAL SUPPORT
2021
$100
GENERAL OPERATING SUPPORT
2021
$45K
GENERAL OPERATING SUPPORT
2020
$41K
For grant recipient's exempt purposes
2020
$20K
EXEMPT PURPOSE OF ORGANIZATION
2020
$19K
Grants from Donor Advised Funds - Operating Support
2020
$14K
Support of community organization
2020
$11K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
$10K
GENERAL CHARITABLE OPERATIONS
2020
$10K
MEDICAL/SCIENTIFIC RESEARCH & PROGRAMS
2020
$5K
GENERAL USE AND/OR SPECIAL FUND/PROJECT
2020
$4K
EMPLOYER MATCHING GIFT PROGRAM
2020
$1K
MATCHING GRANTS
2020
$625
MATCHING GIFTS
2020
$550
COMMUNITY SUPPORT
2020
$134
GENERAL PURPOSE
2020
$100
GENERAL OPERATING FUND
2020
$100
GENERAL EXEMPT PURPOSE
2020
$50
COMMUNITY SUPPORT
2020
$17
GENERAL PURPOSE
2020
$132K
For grant recipient's exempt purposes
2019
$76K
TO SUPPORT THE 2020 HOPE THROUGH CARING EVENT], AND GENERAL OPERATING SUPPORT
2019
$21K
Grants from Donor Advised Funds - Operating Support
2019
$17K
Support of community organization
2019
$10K
GENERAL USE AND/OR SPECIAL FUND/PROJECT
2019
$9K
General Charitable Operation
2019
$9K
COMMUNITY OUTREACH & ENRICHMENT PROGRAMS
2019
$6K
Charitable Donation
2019
$1K
GENERAL OPERATING SUPPORT
2019
$72K
For grant recipient's exempt purposes
2018
$65K
SUPPORT OF THE 2019 HOPE THROUGH CARING GALA
2018
$30K
EXEMPT PURPOSE OF ORGANIZATION
2018
$14K
Grants from Donor Advised Funds - Operating Support
2018
$6K
RESEARCH/PUBLIC EDUCATION
2018
$1K
GENERAL OPERATING SUPPORT
2018
$1K
VOLUNTEER TEAM-BUILDERS & DRIVES
2018
$63K
GENERAL OPERATING SUPPORT
2017
$26K
HEALTH & HUMAN SERVICES
2017
$14K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
$10K
Grants from Donor Advised Funds - Operating Support
2017
$6K
Support of research activities
2017

Funded by

$2.5M from 37 funders · 119 grants · 2017–2024

The Chicago Community Trust

$429K · 8 grants · 2017–2023

Donor Advised Charitable Giving Inc

$416K · 7 grants · 2017–2023

Fidelity Investments Charitable Gift Fund

$400K · 8 grants · 2017–2023

American Online Giving Foundation Inc

$170K · 6 grants · 2019–2024

The Simon Family Foundation

$130K · 5 grants · 2018–2023

Jewish Federation Of Metropolitan

$128K · 7 grants · 2017–2023

Circle Of Service Foundation

$127K · 4 grants · 2022–2023

Rate Foundation Nfp

$106K · 1 grant · 2024

Details

EIN362916466
Subsection03
Ruling date1977-05
Formed1977
Employees19
Volunteers35
LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION — Mission, Financials & Grants Received | Grantivo