NonprofitsLi Fraumeni Syndrome Association

Health Care

Li Fraumeni Syndrome Association

HOLLISTON, MA

Total revenue

$278K

Total expenses

$276K

Net assets

$114K

Grants received

$787K

18 grants

EIN

452284811

Tax year

2024

Mission

Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.

Financials

FY 2024

Revenue

Contributions & grants
Program service revenue$278K
Investment income$6
Other revenue
Total revenue$278K

Expenses

Grants paid
Salaries & benefits
Fundraising
Other expenses$276K
Total expenses$276K
Total assets$114K
Net assets$114K

People

9 listed

NameRoleCompensation

Rob Lufkin

Med. Director

Board

5 hrs/wk

Deb Soprano

Dev. Director

Board

25 hrs/wk

Gina Vild

Comm.

Board

25 hrs/wk

Kathy Higgins

Educ. & Aware.

Board

15 hrs/wk

Sean Downing

Science

Board

3 hrs/wk

Jennifer Perry

President/Co- Founder

Board

25 hrs/wk

Holly Fraumeni

Vice President

Board

25 hrs/wk

Erica Kirschner

Secretary

Board

10 hrs/wk

Michele Giovenelli

Treasurer

Board

2 hrs/wk

Grants received

Showing 18 of 18

FromAmountPurposeYear
$16K
For grant recipient's exempt purposes
2023
$8K
MEDICAL RESEARCH
2023
$4K
CANCER SUPPORT
2023
$16K
For grant recipient's exempt purposes
2022
$5K
CANCER SUPPORT
2022
$6K
CANCER SUPPORT
2021
$50
MATCHING EMPLOYEE DONATION
2021
$11K
For grant recipient's exempt purposes
2020
$5K
CANCER SUPPORT
2020
$31K
For grant recipient's exempt purposes
2019
$9K
Support Sick and hungry kids
2019
$26K
For grant recipient's exempt purposes
2018
$15K
Unrestricted
2018

Funded by

$787K from 9 funders · 18 grants · 2018–2023

Silicon Valley Community Foundation

$615K · 2 grants · 2020–2022

Fidelity Investments Charitable Gift Fund

$100K · 5 grants · 2018–2023

Donor Advised Charitable Giving Inc

$20K · 2 grants · 2020–2022

Leatherwood Foundation-Ima

$20K · 4 grants · 2020–2023

Network For Good

$15K · 1 grant · 2018

Joy In Childhood Foundation Inc

$9K · 1 grant · 2019

The Breast Cancer Research

$8K · 1 grant · 2023

Details

EIN452284811
NTEE codeE86
Subsection03
Ruling date2014-02
Formed2011
Employees0
Volunteers130
LI FRAUMENI SYNDROME ASSOCIATION — Mission, Financials & Grants Received | Grantivo