Voluntary Health Associations & Medical Disciplines
Lilly And Blair Foundation
OAKTON, VA
Total revenue
$277K
Total expenses
$217K
Net assets
$275K
Grants received
$45K
9 grants
EIN
933381308
Tax year
2024
Mission
The Lilly and Blair Foundation funds and coordinates research to accelerate treatment development for children affected by de novo spastic paraplegia SPG4, while fostering a collaborative and informed community.
Programs
2 programs
Awareness and Community Engagement: Mobilized families, hosted awareness campaigns, and led community events (golf fundraiser, 5K, year-end campaign) to raise funds for SPG4 research and increase public engagement.
Patient and Family Support: Provided educational resources, coordinated family meetings, and built collaborations to education and bring together the SPG4 community.
Financials
FY 2024
Revenue
Expenses
People
6 listed
Jay Coonan
Director
—
0.25 hrs/wk
Scott Chilson
Director
—
0.25 hrs/wk
Katie Gregg
President
—
20 hrs/wk
Christopher Lorek
Vice President
—
5 hrs/wk
Michael Gregg
Treasurer
—
5 hrs/wk
Stephanie Lorek
Secretary
—
5 hrs/wk
Grants received
Showing 9 of 9
Funded by
$45K from 7 funders · 9 grants · 2023–2024
$14K · 2 grants · 2023–2024
$11K · 1 grant · 2024
$9K · 1 grant · 2023
$5K · 1 grant · 2023
$3K · 1 grant · 2024
$3K · 2 grants · 2023–2024
$1K · 1 grant · 2024