Lupus And Allied Diseases Association Inc
VERONA, NY
Total revenue
$1.1M
Total expenses
$745K
Net assets
$2.6M
Grants received
$125K
15 grants
EIN
161083229
Tax year
2023
Mission
To enhance quality of life for those affected by lupus and allied diseases by providing education and empowerment programs and wielding the patient voice as a catalyst to improve healthcare and treatment access, advance research and promote advocacy and awareness initiatives.
Programs
2 programs
The organization provided public education and advocated for those impacted by lupus and autoimmune diseases in various states and federally through education meetings, briefings, seminars, forums, public testimony, and written comments. The organization also distributed informational materials, newsletters, and issue briefs; developed poster presentations; and represented the lupus and autoimmune patient perspective at education and advocacy initiatives to improve access to medical care and treatments and advance biomedical research to improve patient quality of life.
The organization promoted disease awareness by disseminating information at virtual and in person health and wellness events; participating in media interviews, press releases, speaking engagements and press conferences; posting information and resources to websites and through social media, blogs, op-eds, videos, and e-mails; and hosting informational booths in exhibit halls to improve disease awareness to the general public, medical professional community, public officials, the media, researchers, the healthcare industry, and people with lupus and allied diseases and their loved ones.
Financials
FY 2023
Revenue
Expenses
People
10 listed
Kathleen A Arntsen
President and CEO
—
20 hrs/wk
Lori A Vogel
Treasurer
—
14 hrs/wk
David L Arntsen
Secretary
—
12 hrs/wk
Sandra M Frear
1st Vice President
—
8 hrs/wk
Anne M Zablotowicz
2nd Vice President
—
10 hrs/wk
Jane M Porter
Director
—
8 hrs/wk
Jacqueline L Taylor
Director
—
5 hrs/wk
Dina Thachet
Director
—
8 hrs/wk
Meghan P Valadez
Director
—
4 hrs/wk
Brian J Vogel
Director
—
4 hrs/wk
Grants received
Showing 15 of 15
Funded by
$125K from 8 funders · 15 grants · 2020–2024
$41K · 3 grants · 2022–2024
$29K · 3 grants · 2022–2024
$21K · 2 grants · 2022–2023
$19K · 1 grant · 2021
$8K · 1 grant · 2024
$5K · 1 grant · 2024
$2K · 3 grants · 2022–2024
$100 · 1 grant · 2020