NonprofitsLupus And Allied Diseases Association Inc

Lupus And Allied Diseases Association Inc

VERONA, NY

Total revenue

$1.1M

Total expenses

$745K

Net assets

$2.6M

Grants received

$125K

15 grants

EIN

161083229

Tax year

2023

Mission

To enhance quality of life for those affected by lupus and allied diseases by providing education and empowerment programs and wielding the patient voice as a catalyst to improve healthcare and treatment access, advance research and promote advocacy and awareness initiatives.

Programs

2 programs

The organization provided public education and advocated for those impacted by lupus and autoimmune diseases in various states and federally through education meetings, briefings, seminars, forums, public testimony, and written comments. The organization also distributed informational materials, newsletters, and issue briefs; developed poster presentations; and represented the lupus and autoimmune patient perspective at education and advocacy initiatives to improve access to medical care and treatments and advance biomedical research to improve patient quality of life.

Expenses: $125K

The organization promoted disease awareness by disseminating information at virtual and in person health and wellness events; participating in media interviews, press releases, speaking engagements and press conferences; posting information and resources to websites and through social media, blogs, op-eds, videos, and e-mails; and hosting informational booths in exhibit halls to improve disease awareness to the general public, medical professional community, public officials, the media, researchers, the healthcare industry, and people with lupus and allied diseases and their loved ones.

Expenses: $55K

Financials

FY 2023

Revenue

Contributions & grants$990K
Program service revenue
Investment income$86K
Other revenue
Total revenue$1.1M

Expenses

Grants paid$562K
Salaries & benefits
Fundraising$544
Other expenses$182K
Total expenses$745K
Total assets$2.6M
Net assets$2.6M

People

10 listed

NameRoleCompensation

Kathleen A Arntsen

President and CEO

Board

20 hrs/wk

Lori A Vogel

Treasurer

Board

14 hrs/wk

David L Arntsen

Secretary

Board

12 hrs/wk

Sandra M Frear

1st Vice President

Board

8 hrs/wk

Anne M Zablotowicz

2nd Vice President

Board

10 hrs/wk

Jane M Porter

Director

Board

8 hrs/wk

Jacqueline L Taylor

Director

Board

5 hrs/wk

Dina Thachet

Director

Board

8 hrs/wk

Meghan P Valadez

Director

Board

4 hrs/wk

Brian J Vogel

Director

Board

4 hrs/wk

Grants received

Showing 15 of 15

FromAmountPurposeYear
$10K
SPONSORSHIP
2024
$550
MATCHING GIFTS
2024
$11K
GENERAL SUPPORT
2023
$10K
SPONSORSHIP
2023
$550
MATCHING GIFTS
2023
$10K
GENERAL SUPPORT
2022
$9K
SPONSORSHIP - GOUT
2022
$500
MATCHING GIFTS
2022
$19K
UNRESTRICTED
2021
$100
EMPLOYEE GIVING PROGRAM
2020

Funded by

$125K from 8 funders · 15 grants · 2020–2024

Alliance For Patient Access

$29K · 3 grants · 2022–2024

Infusion Access Foundation

$21K · 2 grants · 2022–2023

Network For Good

$19K · 1 grant · 2021

The Pfizer Foundation Inc

$2K · 3 grants · 2022–2024

Details

EIN161083229
Subsection03
Ruling date1980-11
Formed1978
Employees0
Volunteers102
LUPUS AND ALLIED DISEASES ASSOCIATION INC — Mission, Financials & Grants Received | Grantivo