NonprofitsLymedisease Org

Lymedisease Org

CHICO, CA

Total revenue

$569K

Total expenses

$682K

Net assets

$1.6M

Grants received

$572K

37 grants

EIN

680214101

Tax year

2024

Mission

Lymedisease.org (formerly calda) advocates nationwide to make the patient voice stroner, to support patient-centered research, to create legislative change, and to create a future where lyme patients can receive the treatments they need to get well.

Programs

3 programs

Research - we conduct and publish research through one of the largest studies of lyme disease through our patient registry and research platform,mylymedata, with over 13,000 patients enrolled to date. We cololaborate with researchers from the university of washington and from ucla, as well as bay arealyme foundationbiobank on a tissue speciment biorepository.

Expenses: $205K

Advocacy - we strive for patient involvement at all levels of decision making. We represent hundreds of thousands of patientsand provide them with the tools essential to empowerment. For over 10 years, we have been involvedin patient-led big data research efforts, conducting large scale patient surveys that engage thousands of patients and are published in peer reviewed journals.

Expenses: $97K

Admin services

Expenses: $51K

Financials

FY 2024

Revenue

Contributions & grants$413K
Program service revenue
Investment income$157K
Other revenue
Total revenue$569K

Expenses

Grants paid
Salaries & benefits$456K
Fundraising$18K
Other expenses$226K
Total expenses$682K
Total assets$1.6M
Net assets$1.6M

People

10 listed

NameRoleCompensation

LORRAINE JOHNSON

CEO

Board

$113K

60 hrs/wk

BARBARA BARSOCCHINI

BOARD MEMBER

Board

18 hrs/wk

CAROLYN DEGNAN

SECRETARY, C

Board

50 hrs/wk

CHRISTINE GREEN

DIRECTOR

Board

3 hrs/wk

MITCHELL HOGGARD

TREASURER

Board

3 hrs/wk

ERICA LEHMAN

DIRECTOR

Board

3 hrs/wk

DOROTHY KUPCHA LELAND

PRESIDENT

Board

20 hrs/wk

RON LINDORF

CHAIRMAN

Board

1 hrs/wk

CALEB MANSCILL

CTO

Board

3 hrs/wk

RAPHAEL STRICKER MD

MEDICAL DIRE

Board

5 hrs/wk

Grants received

Showing 37 of 37

FromAmountPurposeYear
$50K
OPERATIONS
2024
$25K
To support organization
2024
$9K
MEDICAL RESEARCH
2024
$19K
For grant recipient's exempt purposes
2023
$10K
UNRESTRICTED GENERAL SUPPORT
2023
$33K
For grant recipient's exempt purposes
2022
$15K
UNRESTRICTED GENERAL SUPPORT
2022
$100K
MYLYMEDATA PROJECT
2021
$11K
For grant recipient's exempt purposes
2021
$11K
For grant recipient's exempt purposes
2021
$10K
UNRESTRICTED GENERAL SUPPORT
2020
$7K
For grant recipient's exempt purposes
2020
$5K
HEALTHY INDIVIDUALS AND COMMUNITIES
2020
$248
GENERAL PURPOSE
2020
$100
Matching Gifts
2020
$100K
GENERAL OPERATING SUPPORT
2019
$10K
Grants from Donor Advised Funds - Operating Support
2019
$6K
For grant recipient's exempt purposes
2019
$10K
Grants from Donor Advised Funds - Operating Support
2018
$6K
For grant recipient's exempt purposes
2018
$10K
PUBLIC, SOCIETAL BENEFIT
2017
$10K
Grants from Donor Advised Funds - Operating Support
2017
$6K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017

Funded by

$572K from 19 funders · 37 grants · 2017–2024

Bay Area Lyme Major Gift Fund

$200K · 2 grants · 2019–2021

Fidelity Investments Charitable Gift Fund

$100K · 8 grants · 2017–2023

American Gift Fund

$50K · 1 grant · 2024

Natl Christian Charitable Fdn Inc

$48K · 4 grants · 2022–2024

Morgan Stanley Global Impact Funding Trust Inc

$35K · 3 grants · 2020–2023

Jewish Federation Of Metropolitan

$30K · 3 grants · 2017–2019

University Impact

$25K · 1 grant · 2024

Donor Advised Charitable Giving Inc

$20K · 3 grants · 2018–2022

Details

EIN680214101
Subsection03
Ruling date1996-03
Formed1990
Employees2
Volunteers15
LYMEDISEASE ORG — Mission, Financials & Grants Received | Grantivo