Lymedisease Org
CHICO, CA
Total revenue
$569K
Total expenses
$682K
Net assets
$1.6M
Grants received
$572K
37 grants
EIN
680214101
Tax year
2024
Mission
Lymedisease.org (formerly calda) advocates nationwide to make the patient voice stroner, to support patient-centered research, to create legislative change, and to create a future where lyme patients can receive the treatments they need to get well.
Programs
3 programs
Research - we conduct and publish research through one of the largest studies of lyme disease through our patient registry and research platform,mylymedata, with over 13,000 patients enrolled to date. We cololaborate with researchers from the university of washington and from ucla, as well as bay arealyme foundationbiobank on a tissue speciment biorepository.
Advocacy - we strive for patient involvement at all levels of decision making. We represent hundreds of thousands of patientsand provide them with the tools essential to empowerment. For over 10 years, we have been involvedin patient-led big data research efforts, conducting large scale patient surveys that engage thousands of patients and are published in peer reviewed journals.
Admin services
Financials
FY 2024
Revenue
Expenses
People
10 listed
LORRAINE JOHNSON
CEO
$113K
60 hrs/wk
BARBARA BARSOCCHINI
BOARD MEMBER
—
18 hrs/wk
CAROLYN DEGNAN
SECRETARY, C
—
50 hrs/wk
CHRISTINE GREEN
DIRECTOR
—
3 hrs/wk
MITCHELL HOGGARD
TREASURER
—
3 hrs/wk
ERICA LEHMAN
DIRECTOR
—
3 hrs/wk
DOROTHY KUPCHA LELAND
PRESIDENT
—
20 hrs/wk
RON LINDORF
CHAIRMAN
—
1 hrs/wk
CALEB MANSCILL
CTO
—
3 hrs/wk
RAPHAEL STRICKER MD
MEDICAL DIRE
—
5 hrs/wk
Grants received
Showing 37 of 37
Funded by
$572K from 19 funders · 37 grants · 2017–2024
$200K · 2 grants · 2019–2021
$100K · 8 grants · 2017–2023
$50K · 1 grant · 2024
$48K · 4 grants · 2022–2024
$35K · 3 grants · 2020–2023
$30K · 3 grants · 2017–2019
$25K · 1 grant · 2024
$20K · 3 grants · 2018–2022