NonprofitsLymphangiomatosis & Gorhams Disease Alliance Inc

Voluntary Health Associations & Medical Disciplines

Lymphangiomatosis & Gorhams Disease Alliance Inc

SAINT PETERSBURG, FL

Total revenue

$119K

Total expenses

$153K

Net assets

$345K

Grants received

$742K

7 grants

EIN

261224181

Tax year

2024

Mission

Worldwide patient support program which includes a patient registry, a website with rare disease information and patient discussion forum.

Financials

FY 2024

Revenue

Contributions & grants$114K
Program service revenue
Investment income$5K
Other revenue
Total revenue$119K

Expenses

Grants paid$26K
Salaries & benefits
Fundraising
Other expenses$15K
Total expenses$153K
Total assets$354K
Net assets$345K

People

10 listed

NameRoleCompensation

LOUISE MURGIA

DIRECTOR OF OPERATIONS

Board

$65K

40 hrs/wk

MICHAEL KELLY

EXECUTIVE DIRECTOR

Board

$3K

20 hrs/wk

SCOTT WEISNER

PRESIDENT

Board

2 hrs/wk

SCOTT GOLDFARB

TREASURER

Board

2 hrs/wk

TIFFANY FERRY

BOARD MEMBER

Board

2 hrs/wk

MITCH MAERSCH

BOARD MEMBER

Board

2 hrs/wk

SEAN CHASTAIN

BOARD MEMBER

Board

2 hrs/wk

KEVIN MARTIN

BOARD MEMBER

Board

2 hrs/wk

SAMIRA FAROUNI

BOARD MEMBER

Board

2 hrs/wk

OFELIA RODRIGUEZ NIEVAS

BOARD MEMBER

Board

2 hrs/wk

Grants received

Showing 7 of 7

FromAmountPurposeYear
$5K
GENERAL SUPPORT
2024
$15K
MENTAL HEALTH GRANT
2023
$7K
Unrestricted
2018
$5K
DONOR ADVISED FUND
2017

Funded by

$742K from 6 funders · 7 grants · 2017–2024

Silicon Valley Community Foundation

$615K · 2 grants · 2020–2022

Global Genes

$15K · 1 grant · 2023

Network For Good

$7K · 1 grant · 2018

Paypal Charitable Giving Fund

$5K · 1 grant · 2024

Global Impact

$5K · 1 grant · 2017

Details

EIN261224181
NTEE codeG99
Subsection03
Ruling date2008-03
LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC — Mission, Financials & Grants Received | Grantivo