NonprofitsLysosomal And Rare Disorders Research And Treatment Center Inc

Medical Research

Lysosomal And Rare Disorders Research And Treatment Center Inc

FAIRFAX, VA

Total revenue

$4.4M

Total expenses

$3.7M

Net assets

$896K

Grants received

$500

1 grants

EIN

455312680

Tax year

2024

Mission

Research and unravel disease causing mechanisms and explore new biomarkers and treatment options.

Programs

2 programs

Treatment & clinical care: in ldrtc's clinic, ldrtc offers extensive medical genetic evaluations for complex medical problems of unknown etiology and that do not fit a particular disease pattern. Case studies involving individualized therapy, institutional collaborations and individual bench science projects were successful during the past year.

Expenses: $1.3M

Education: education is focused around patient meetings, workshops, lecture series, conferences, symposiums and internships. Ldrtc holds various workshops designed to provide opportunities for its attendees to collaborate and promote discussions on all aspects of lysosomal biology.

Expenses: $626K

Financials

FY 2024

Revenue

Contributions & grants$502K
Program service revenue$3.9M
Investment income$4
Other revenue
Total revenue$4.4M

Expenses

Grants paid
Salaries & benefits$1.8M
Fundraising$15K
Other expenses$1.9M
Total expenses$3.7M
Total assets$2.4M
Net assets$896K

People

5 listed

NameRoleCompensation

DR OZLEM GOKER-ALPAN

PRESIDENT / FOUNDER

Board

$318K

40 hrs/wk

LAUREN NOLL

DIRECTOR / MANAGER

Board

$123K

40 hrs/wk

UYENSA BEESE

TREASURER / OPERATIONS DIRECTOR

Board

$110K

40 hrs/wk

BOBBY SANDHU

SECRETARY / LPN

Board

$88K

40 hrs/wk

MARGARITA IVANOVA

DIR. OF TRANSLATIONAL RESEARCH

Staff

$136K

40 hrs/wk

Independent contractors

OZLEM GOKER-ALPAN MD LLC

CLINICAL RESEARCH SERVICES

$296K

Grants received

Showing 1 of 1

FromAmountPurposeYear
$500
To provide research & care for those affected by rare diseases.
2024

Funded by

$500 from 1 funder · 1 grant · 2024

Details

EIN455312680
NTEE codeH80
Subsection03
Ruling date2021-07
Formed2012
Employees26
Volunteers5
LYSOSOMAL AND RARE DISORDERS RESEARCH AND TREATMENT CENTER INC — Mission, Financials & Grants Received | Grantivo