Mary M Gooley Hemophilia Center Inc

The center provides specialized evaluation and care for patients with hereditary hemochromatosis and iron overload. Typically, patients with these conditions receive regular therapeutic phlebotomies to diminish excess iron stored in their bodies, diminishing risk of permanent organ damage. The center serves approximately 213 hemochromatosis/iod patients.

The center has been actively involved in research and clinical trials in an effort to cultivate advances in hemophilia, von willebrand disease and hemochromatosis. In 2024, the center participated in 2 open research studies addressing a wide range of clinical areas and outcomes. In addition, the center works closely with the center for disease control (cdc) and the american thrombosis and hemostasis network (athn) registries, collecting data as part of a national effort to better understand and care for rare bleeding disorders.

Revenues and expenses for national hemophilia foundation chapter activities.