NonprofitsMoebius Syndrome Foundation

Public Foundations

Moebius Syndrome Foundation

DENVER, CO

Total revenue

$338K

Total expenses

$283K

Net assets

$2.0M

Grants received

$135K

27 grants

EIN

133753992

Tax year

2024

Mission

To provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions

Programs

2 programs

Advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

Expenses: $46KGrants: $1K

To provide college scholarships to students with Moebius Syndrome.

Expenses: $21KGrants: $21K

Financials

FY 2024

Revenue

Contributions & grants$276K
Program service revenue$6K
Investment income$56K
Other revenue$351
Total revenue$338K

Expenses

Grants paid$22K
Salaries & benefits$135K
Fundraising$18K
Other expenses$126K
Total expenses$283K
Total assets$2.0M
Net assets$2.0M

People

11 listed

NameRoleCompensation

Jennifer Whitman

Executive Director

Board

$90K

40 hrs/wk

Vicky McCarrell

Board Member

Board

2 hrs/wk

KiOwana Phillips

Board Member

Board

2 hrs/wk

Kathryn Kraus

Board Member

Board

2 hrs/wk

Bryn Webb MD

Board Member

Board

2 hrs/wk

Austin Halls

Board Member

Board

2 hrs/wk

Destiny Bachman

Treasurer

Board

10 hrs/wk

Jon Fisher

Secretary

Board

10 hrs/wk

Steven Maldonado

Vice President

Board

2 hrs/wk

Jacob Licht

Past President

Board

10 hrs/wk

Rebecca Maher

President

Board

10 hrs/wk

Grants received

Showing 27 of 27

FromAmountPurposeYear
$5K
GENERAL SUPPORT
2024
$3K
GRANT TO PEOPLE WITH DISABILITIES
2024
$1K
GENERAL SUPPORT
2024
$7K
UNRESTRICTED
2023
$5K
PROGRAM/OPERATING SUPPORT
2023
$3K
GRANT TO PEOPLE WITH DISABILITIES
2023
$10K
UNRESTRICTED
2022
$5K
PROGRAM/OPERATING SUPPORT
2022
$5K
PROGRAM/OPERATING SUPPORT
2022
$5K
PROGRAM/OPERATING SUPPORT
2022
$2K
Grant to people with disabilities
2022
$525
General & Unrestricted
2022
$100
PROGRAM/OPERATING SUPPORT
2022
$16K
UNRESTRICTED
2021
$2K
GRANTS TO PEOPLE WITH DISABILITIES
2021
$400
EMPLOYEE MATCHING GIFT(S)
2021
$105
CHARITABLE PURPOSE
2021
$12K
Unrestricted
2020
$2K
501C3 ORGANIZATION ASSISTING MEDICAL RESEARCH
2020
$50
CHARITABLE PURPOSE
2020
$12K
SUPPORT NON-PROFIT PHILANTHROPIC ORG
2018
$10K
PROGRAM/OPERATING SUPPORT
2018
$2K
MEDICAL RESEARCH
2018
$13K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
$6K
HEALTH & HUMAN SERVICES
2017

Funded by

$135K from 11 funders · 27 grants · 2017–2024

Network For Good

$44K · 4 grants · 2020–2023

The Bank of America Charitable Foundation Inc

$39K · 8 grants · 2018–2023

Jablon Family Foundation Corp

$14K · 6 grants · 2018–2024

Texas Children's Hospital

$12K · 1 grant · 2018

Paypal Charitable Giving Fund

$5K · 1 grant · 2024

The C & J Flanigan Family

$1K · 1 grant · 2024

Details

EIN133753992
NTEE codeT30
Subsection03
Ruling date1994-09
Formed1994
Employees2
Volunteers5
MOEBIUS SYNDROME FOUNDATION — Mission, Financials & Grants Received | Grantivo