NonprofitsMyasthenia Gravis Foundation Of America Inc

Medical Research

Myasthenia Gravis Foundation Of America Inc

WESTBOROUGH, MA

Total revenue

$5.7M

Total expenses

$5.1M

Net assets

$11.7M

Grants received

$1.2M

79 grants

EIN

135672224

Tax year

2024

Mission

Committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs and advocacy.

Programs

2 programs

Awareness and Advocacy: MGFA provides over 20 educational brochures on topics important to people living with MG, free of charge to patients and the public. In addition, MGFA provides a professional manual, and other important educational information, for health care professionals. The MGFA conducts an annual awareness campaign, June MG Awareness Month, reaching out through our support groups, an awareness toolkit for all who are interested in raising awareness of MG in their communities, press releases, posters and promotion in social media.

Expenses: $1.6M

Information, Education and Support: MGFA provides material, information and referral, and education and support programs to help people manage the challenges of living with myasthenia gravis. MGFA is a national organization that supports the delivery of programs and services through a myriad of channels including a network of approximately 28 support groups, Partners in MG Care and a number of other networks nationwide. The MGFA website is one of the organization's greatest resources and is a premier source of information. MGFA also hosts a number of live and interactive educational forums, including 18 wellness and research webinars as well as hosted eleven Community Health Fairs in various US cities for MG patients and caregivers to interact, obtain information and learn about MG research and treatment developments from MG experts and corporate industry leaders. MGFA annually hosts a National Patient Conference, a gathering of the MG Community which features MG research updates, patient stories, news about MG treatments and discoveries and many exciting educational topics to help patients and caregivers manage their MG journey. MGFA has also developed an Online Community platform which is a one-of-a-kind virtual neighborhood where the MG Community can connect, share ideas and discoveries and access MG-specific educational materials such as live broadcasts, webinars and information libraries in one place. MGFA also maintains an extensive website which provides patients and caregivers with educational content and news as well as Facebook page to promote awareness and the Organization's educational mission.

Expenses: $523K

Financials

FY 2024

Revenue

Contributions & grants$4.8M
Program service revenue$178K
Investment income$470K
Other revenue$199K
Total revenue$5.7M

Expenses

Grants paid$710K
Salaries & benefits$1.9M
Fundraising$633K
Other expenses$2.5M
Total expenses$5.1M
Total assets$13.6M
Net assets$11.7M

People

25 listed

NameRoleCompensation

Samantha Masterson

Chief Executive Officer

Board

$323K

40 hrs/wk

Craig Stenger

Vice President, Operations

Board

$200K

40 hrs/wk

Michael Antonellis

Vice President, Global Marketing

Board

$182K

40 hrs/wk

Kevin O'Connor MD

Director

Board

4 hrs/wk

Kyle Sell

Director

Board

4 hrs/wk

Paul Strumph MD

Director

Board

4 hrs/wk

Richard J Nowak MD

Director

Board

4 hrs/wk

Brian Gladden

Chair

Board

8 hrs/wk

Marcia Lorimer

Director (non-voting)

Board

4 hrs/wk

Mark Kalish

Director (non-voting)

Board

4 hrs/wk

Sam Schuloff

Director (non-voting)

Board

4 hrs/wk

Susan Klinger

Director (non-voting)

Board

4 hrs/wk

Esther Land

Director (non-voting)

Board

4 hrs/wk

Robert Thomas

Vice Chair

Board

8 hrs/wk

Adrejia Boutte

Secretary

Board

8 hrs/wk

Justin Stachtiaris

Treasurer

Board

8 hrs/wk

Ani Mitra

Director

Board

4 hrs/wk

Callum Schjerning

Director

Board

4 hrs/wk

Clyde Hosein

Director

Board

4 hrs/wk

Kelly Gwathmey MD

Director

Board

4 hrs/wk

Daryl Lee

National Director, Finance

Staff

$124K

40 hrs/wk

Caroline Gaylor

National Senior Director of Development

Staff

$120K

40 hrs/wk

Merideth O'Conner

AVP, Patient Engagement

Staff

$119K

40 hrs/wk

Laura Chandler

National Director, Academic Affiars

Staff

$112K

40 hrs/wk

Tasha Duncan

National Director, Strategic Parternships

Staff

$110K

40 hrs/wk

Grants received

Showing 79 of 79

FromAmountPurposeYear
$38K
GENERAL SUPPORT
2024
$8K
GENERAL SUPPORT
2024
$3K
General & Unrestricted
2024
$2K
General & Unrestricted
2024
$2K
DISCRETIONARY GRANTS
2024
$1K
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
$550
Medical Research
2024
$50
VOLUNTEER PROGRAM
2024
$279K
For grant recipient's exempt purposes
2023
$21K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
$12K
HUMAN SERVICE
2023
$8K
GENERAL SUPPORT
2023
$6K
RESEARCH/PUBLICEDUCATION
2023
$2K
General & Unrestricted
2023
$1K
EDUCATIONAL
2023
$250
EMPLOYEE MATCHING
2023
$100
GENERAL OPERATING SUPPORT
2023
$100
DISEASE
2023
$25
Financial Assistance
2023
$15K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
$11K
For grant recipient's exempt purposes
2022
$9K
GENERAL SUPPORT
2022
$8K
GENERAL SUPPORT
2022
$7K
RESEARCH/PUBLICEDUCATION
2022
$300
GENERAL OPERATING SUPPORT
2022
$250
CHARITABLE PURPOSE
2022
$250
CHARITABLE PURPOSE
2022
$150
MIP PAYOUT FOR 02/07/2022
2022
$100
EMPLOYEE MATCHING GIFT DONATION
2022
$100
HEALTH & HUMAN SERVICES
2022
$50
VOLUNTEER PROGRAM
2022
$50
GENERAL EXEMPT PURPOSE
2022
$50
COMMUNITY SUPPORT
2022
$45
MATCHING GIFTS
2022
$25
MIP PAYOUT FOR 01/27/2022
2022
$10K
For grant recipient's exempt purposes
2021
$10K
For grant recipient's exempt purposes
2021
$8K
For recipient's exempt purpose
2021
$731
GENERAL OPERATING SUPPORT
2021
$105K
MEDICAL / PUBLIC SERVICES
2020
$12K
RESEARCH/PUBLIC EDUCATION
2020
$8K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
$7K
GENERAL SUPPORT
2020
$250
CHARITABLE PURPOSE
2020
$200
COMMUNITY SUPPORT
2020
$150
GENERAL OPERATING SUPPORT
2020
$50
COMMUNITY SUPPORT
2020
$7K
For grant recipient's exempt purposes
2019
$1K
General & Unrestricted
2019
$65K
Unrestricted
2018
$11K
For grant recipient's exempt purposes
2018
$10K
General & Unrestricted
2018
$9K
RESEARCH/PUBLIC EDUCATION
2018
$1K
VOLUNTEER TEAM-BUILDERS & DRIVES
2018
$26
Matching Grant
2018
$24K
RESEARCH/PUBLIC EDUCATION
2017
$24K
RESEARCH/PUBLIC EDUCATION
2017
$9K
GENERAL DONATION
2017
$7K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017

Funded by

$1.2M from 38 funders · 79 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$334K · 7 grants · 2017–2023

The Ayco Charitable Foundation

$205K · 2 grants · 2019–2020

Donor Advised Charitable Giving Inc

$178K · 4 grants · 2018–2022

American Online Giving Foundation Inc

$97K · 6 grants · 2019–2024

Chc Creating Healthier Communities

$83K · 6 grants · 2017–2023

Network For Good

$65K · 1 grant · 2018

Vanguard Charitable Endowment Program

$51K · 4 grants · 2020–2023

Paypal Charitable Giving Fund

$50K · 2 grants · 2023–2024

Details

EIN135672224
NTEE codeH56Z
Subsection03
Ruling date1954-06
Formed1952
Employees15
Volunteers500
MYASTHENIA GRAVIS FOUNDATION OF AMERICA INC — Mission, Financials & Grants Received | Grantivo