Medical Research
Myasthenia Gravis Foundation Of America Inc
WESTBOROUGH, MA
Total revenue
$5.7M
Total expenses
$5.1M
Net assets
$11.7M
Grants received
$1.2M
79 grants
EIN
135672224
Tax year
2024
Mission
Committed to finding a cure for myasthenia gravis and closely related disorders, improving treatment options, and providing information and support to people with myasthenia gravis through research, education, community programs and advocacy.
Programs
2 programs
Awareness and Advocacy: MGFA provides over 20 educational brochures on topics important to people living with MG, free of charge to patients and the public. In addition, MGFA provides a professional manual, and other important educational information, for health care professionals. The MGFA conducts an annual awareness campaign, June MG Awareness Month, reaching out through our support groups, an awareness toolkit for all who are interested in raising awareness of MG in their communities, press releases, posters and promotion in social media.
Information, Education and Support: MGFA provides material, information and referral, and education and support programs to help people manage the challenges of living with myasthenia gravis. MGFA is a national organization that supports the delivery of programs and services through a myriad of channels including a network of approximately 28 support groups, Partners in MG Care and a number of other networks nationwide. The MGFA website is one of the organization's greatest resources and is a premier source of information. MGFA also hosts a number of live and interactive educational forums, including 18 wellness and research webinars as well as hosted eleven Community Health Fairs in various US cities for MG patients and caregivers to interact, obtain information and learn about MG research and treatment developments from MG experts and corporate industry leaders. MGFA annually hosts a National Patient Conference, a gathering of the MG Community which features MG research updates, patient stories, news about MG treatments and discoveries and many exciting educational topics to help patients and caregivers manage their MG journey. MGFA has also developed an Online Community platform which is a one-of-a-kind virtual neighborhood where the MG Community can connect, share ideas and discoveries and access MG-specific educational materials such as live broadcasts, webinars and information libraries in one place. MGFA also maintains an extensive website which provides patients and caregivers with educational content and news as well as Facebook page to promote awareness and the Organization's educational mission.
Financials
FY 2024
Revenue
Expenses
People
25 listed
Samantha Masterson
Chief Executive Officer
$323K
40 hrs/wk
Craig Stenger
Vice President, Operations
$200K
40 hrs/wk
Michael Antonellis
Vice President, Global Marketing
$182K
40 hrs/wk
Kevin O'Connor MD
Director
—
4 hrs/wk
Kyle Sell
Director
—
4 hrs/wk
Paul Strumph MD
Director
—
4 hrs/wk
Richard J Nowak MD
Director
—
4 hrs/wk
Brian Gladden
Chair
—
8 hrs/wk
Marcia Lorimer
Director (non-voting)
—
4 hrs/wk
Mark Kalish
Director (non-voting)
—
4 hrs/wk
Sam Schuloff
Director (non-voting)
—
4 hrs/wk
Susan Klinger
Director (non-voting)
—
4 hrs/wk
Esther Land
Director (non-voting)
—
4 hrs/wk
Robert Thomas
Vice Chair
—
8 hrs/wk
Adrejia Boutte
Secretary
—
8 hrs/wk
Justin Stachtiaris
Treasurer
—
8 hrs/wk
Ani Mitra
Director
—
4 hrs/wk
Callum Schjerning
Director
—
4 hrs/wk
Clyde Hosein
Director
—
4 hrs/wk
Kelly Gwathmey MD
Director
—
4 hrs/wk
Daryl Lee
National Director, Finance
$124K
40 hrs/wk
Caroline Gaylor
National Senior Director of Development
$120K
40 hrs/wk
Merideth O'Conner
AVP, Patient Engagement
$119K
40 hrs/wk
Laura Chandler
National Director, Academic Affiars
$112K
40 hrs/wk
Tasha Duncan
National Director, Strategic Parternships
$110K
40 hrs/wk
Grants received
Showing 79 of 79
Funded by
$1.2M from 38 funders · 79 grants · 2017–2024
$334K · 7 grants · 2017–2023
$205K · 2 grants · 2019–2020
$178K · 4 grants · 2018–2022
$97K · 6 grants · 2019–2024
$83K · 6 grants · 2017–2023
$65K · 1 grant · 2018
$51K · 4 grants · 2020–2023
$50K · 2 grants · 2023–2024