NonprofitsMyelodysplastic Syndromes Foundation

Voluntary Health Associations & Medical Disciplines

Myelodysplastic Syndromes Foundation

NEW YORK, NY

Total revenue

$2.0M

Total expenses

$3.0M

Net assets

$3.6M

Grants received

$374K

35 grants

EIN

223283911

Tax year

2024

Mission

Established by an international group of physicians and researchers to provide an ongoing exchange of information relating to mds.

Programs

2 programs

Educational symposia and a bi-annual conference are conducted for several societies and associations such as the american society of hematology and the oncology nursing society. These informative and interactive symposia are aimed at hematologists and nurses working in hematology, as well as fellows in hematology, pharmacists working with mds patients, and allied health professionals working in the field of mds patient care and treatment.

Expenses: $265K

The mds foundation supports and advances scientific research in myelodysplastic syndromes (mds) through its young investigator research program. The foundation invites early-career investigators to submit proposals focused on basic science or clinical research related to the causes, epidemiology, molecular biology, cytogenetics, morphology, prognosis, and management of mds.in addition to funding individual research, the foundation convenes international working groups composed of leading scientists and physicians to collaboratively improve diagnostic standards, prognostic tools, and treatment strategies.the mds foundation also plays a key role in promoting awareness of ongoing clinical trials and supporting patient recruitment efforts. Through its global network of hematologists and centers of excellence, the foundation helps connect eligible patients to clinical research opportunities aimed at improving care and advancing potential cures.the foundation maintains a global network of hematologists who are informed about ongoing clinical trials and can refer eligible patients into these research protocols, supporting the advancement of mds treatment and care.

Expenses: $355KGrants: $355K

Financials

FY 2024

Revenue

Contributions & grants$1.9M
Program service revenue
Investment income$4K
Other revenue$50K
Total revenue$2.0M

Expenses

Grants paid$355K
Salaries & benefits$850K
Fundraising$603K
Other expenses$1.7M
Total expenses$3.0M
Total assets$3.8M
Net assets$3.6M

People

10 listed

NameRoleCompensation

TRACEY IRACA

EXECUTIVE DIRECTOR (THROUGH 1/25)

Board

$151K

40 hrs/wk

LEA HARRISON

SECRETARY

Board

$93K

40 hrs/wk

DR STEPHEN NIMER

CHAIRMAN

Board

4 hrs/wk

DR MICHAEL SAVONA

DIRECTOR

Board

4 hrs/wk

DR LUCA MALCOVATI

DIRECTOR

Board

4 hrs/wk

SANDY KURTIN

TREASURER

Board

4 hrs/wk

DR PIERRE FENAUX

DIRECTOR

Board

4 hrs/wk

DR PETER GREENBERG

DIRECTOR

Board

4 hrs/wk

ASHLEY R MONCRIEF

PATIENT CARE DIRECTOR

Staff

$137K

40 hrs/wk

TANYA RHODES

DEVELOPMENT DIRECTOR

Staff

$124K

40 hrs/wk

Grants received

Showing 35 of 35

FromAmountPurposeYear
$25K
General & Unrestricted
2024
$9K
GENERAL SUPPORT
2024
$25
MATCHING GIFTS
2024
$50K
General & Unrestricted
2023
$27K
For grant recipient's exempt purposes
2023
$10K
Charitable Event
2023
$200
GENERAL SUPPORT
2023
$126
STAFF MATCHING GRANT TO BE USED FOR GENERAL OPERATING SUPPORT.
2023
$125
MATCHING GIFTS
2023
$25K
General & Unrestricted
2022
$15K
For grant recipient's exempt purposes
2022
$5K
RESEARCH AND EDUCATION
2022
$1K
General & Unrestricted
2022
$125
MATCHING GIFTS
2022
$100
STAFF MATCHING GRANT TO BE USED FOR GENERAL OPERATING SUPPORT
2022
$13K
For grant recipient's exempt purposes
2021
$13K
For grant recipient's exempt purposes
2021
$12K
For recipient's exempt purpose
2021
$10K
General Support
2021
$25K
GENERAL OPERATIONS
2020
$10K
GENERAL SUPPORT
2020
$6K
For grant recipient's exempt purposes
2020
$60
GENERAL OPERATING SUPPORT
2020
$25K
General & Unrestricted
2018
$16K
Unrestricted
2018
$10K
HEALTH & HUMAN SERVICES
2017

Funded by

$374K from 17 funders · 35 grants · 2017–2024

Stanrose Foundation

$135K · 5 grants · 2018–2024

Fidelity Investments Charitable Gift Fund

$73K · 5 grants · 2020–2023

American Online Giving Foundation Inc

$47K · 6 grants · 2019–2024

Cancer Support Community

$25K · 1 grant · 2020

Donor Advised Charitable Giving Inc

$20K · 2 grants · 2017–2023

Paypal Charitable Giving Fund

$18K · 2 grants · 2021–2024

Network For Good

$16K · 1 grant · 2018

Details

EIN223283911
NTEE codeG30
Subsection03
Ruling date2000-04
Formed1999
Employees11
Volunteers6
MYELODYSPLASTIC SYNDROMES FOUNDATION — Mission, Financials & Grants Received | Grantivo