Disease & Medical Research
National Association Of Councils On Developmental Disabilities
WASHINGTON, DC
Total revenue
$2.0M
Total expenses
$2.3M
Net assets
—
Grants received
$880K
17 grants
EIN
161646154
Tax year
2023
Mission
See part iii, line 1
Programs
3 programs
Council services: served the needs of councils by assisting them with their internal operations and state systems issues annual summer conferences produced council services newsletter maintained the nacdd web page provided onsite, inservice training for council orientation and other programmatic needs and conducted special projects.
Bridging aging and disability networks: the national association of councils on developmental disabilities, in partnership with the institute on disability and human development at the university of illinois chicago, lurie institute for disability policy at brandeis university, the arc, and national association of area agencies on aging, seeks to strengthen the collaboration between aging and disability networks to better support individuals with intellectual and developmental disabilities (i/dd) and their families in future planning. We will leverage our collective expertise in aging, disability, and future planning to: 1) build capacity across and within states' aging and disability networks to provide coordinated services and supports that address the needs of aging adults with i/dd and their families as they plan for future care and 2) support, sustain, and replicate emerging and promising practices and policies in states that support the unique needs and preference of adults aging with i/dd and their families to aid them in planning for the future. Because of this project: 1) states will have a more established, culturally competent infrastructure that addresses future planning and more effectively responds to the unique needs of diverse families 2) older adults with i/dd will be living in the community with supports that reflect their needs, wants, and cultural preferences and 3) more policies will be changed to enable more coordinated access across aging and disability networks that improves the experience of people with i/dd and their families as they age. New resources will include a website, promising practices report, and additional materials in plain language and other languages, as determined by states' needs with input from a partnership council.
Public policy: represented the interests of developmental disabilities councils and people with developmental disabilities at the federal level, with congress and the administration kept councils informed about national policies that affect them and their constituents, and ensured the continuation and enforcement of the developmental disabilities act.
Financials
FY 2023
Revenue
Expenses
People
18 listed
DONNA MELTZER
CEO
$101K
40 hrs/wk
JILL JACOBS
EXECUTIVE DIRECTOR/CEO
$90K
40 hrs/wk
KAYLA GREEN
AT-LARGE DIRECTOR
—
5 hrs/wk
EMMANUEL JENKINS
AT-LARGE DIRECTOR
—
5 hrs/wk
JON MEYERS
AT-LARGE DIRECTOR
—
5 hrs/wk
CHRISTINE PISANI
AT-LARGE DIRECTOR
—
5 hrs/wk
KIMBERLY MERCER-SCHLEIDER
IMMEDIATE PAST PRESIDENT
—
20 hrs/wk
KIRSTEN MURPHY
PRESIDENT
—
20 hrs/wk
PATRICK REINHART
AT-LARGE DIRECTOR
—
5 hrs/wk
JON TAYLOR
AT-LARGE DIRECTOR
—
5 hrs/wk
DARRYLE POWELL SR
AT-LARGE DIRECTOR
—
5 hrs/wk
ERIC STOKER
VICE PRESIDENT
—
20 hrs/wk
SHERYL BEARD
AT-LARGE DIRECTOR
—
5 hrs/wk
PATRICK REINHART
TREASURER
—
20 hrs/wk
EMILY HARTLEY
SECRETARY
—
5 hrs/wk
SHERYL MATNEY
TECHNICAL ASSISTANCE
$116K
40 hrs/wk
ROBIN TROUTMAN
DEPUTY DIRECTOR
$113K
40 hrs/wk
ERIN PRANGLEY
DIRECTOR, POLICY
$110K
40 hrs/wk
Grants received
Showing 17 of 17
Funded by
$880K from 9 funders · 17 grants · 2019–2024
$508K · 3 grants · 2020–2023
$123K · 4 grants · 2021–2024
$75K · 1 grant · 2023
$65K · 3 grants · 2020–2023
$57K · 2 grants · 2022–2023
$25K · 1 grant · 2019
$16K · 1 grant · 2020
$10K · 1 grant · 2019