NonprofitsNational Down Syndrome Congress

Disease & Medical Research

National Down Syndrome Congress

CINCINNATI, OH

Total revenue

$1.7M

Total expenses

$1.7M

Net assets

$354K

Grants received

$455K

39 grants

EIN

510163631

Tax year

2024

Mission

The mission of the national down syndrome congress is to provide information, advocacy, and support concerning all aspects of life for individuals with down syndrome.

Programs

1 program

Annual convention - the congress holds a convention each year at a different location in the united states to educate parents, professionals, and self-advocates with down syndrome on current topics.

Expenses: $769K

Financials

FY 2024

Revenue

Contributions & grants$620K
Program service revenue$886K
Investment income$13K
Other revenue$215K
Total revenue$1.7M

Expenses

Grants paid$52K
Salaries & benefits$464K
Fundraising$208K
Other expenses$1.1M
Total expenses$1.7M
Total assets$496K
Net assets$354K

People

17 listed

NameRoleCompensation

JAMES HUDSON

EXECUTIVE DIRECTOR

Board

$87K

40 hrs/wk

BEAU BROOKS

2ND VICE PRESIDENT

Board

6 hrs/wk

ZACHARY CARROLL

3RD VICE PRESIDENT

Board

1 hrs/wk

NICOLE BAUMER

4TH VICE PRESIDENT

Board

1 hrs/wk

MARILYN TOLBERT

PAST PRESIDENT

Board

4 hrs/wk

ANDRE PINEDA

TREASURER

Board

6 hrs/wk

DAVID CHAPLIN

SECRETARY

Board

2 hrs/wk

SEAN SMITH

PRESIDENT

Board

10 hrs/wk

BRADLEY CARLISLE

DIRECTOR

Board

0.5 hrs/wk

BETH FORAKER

DIRECTOR

Board

0.5 hrs/wk

HANNAH LACOUR

DIRECTOR

Board

0.5 hrs/wk

MACARENA LIZAMA MD

DIRECTOR

Board

0.5 hrs/wk

NOEMI SPINAZZI

DIRECTOR

Board

0.5 hrs/wk

CLAIR WALLACE

DIRECTOR

Board

0.5 hrs/wk

CRAIG BLACKBURN

DIRECTOR

Board

0.5 hrs/wk

ANTHONY ZANFORDINO

1ST VICE PRESIDENT

Board

4 hrs/wk

STEPHANIE SMITH LEE

POLICY/ADVOCACY CO-DIRECTOR

Staff

$112K

40 hrs/wk

Independent contractors

IMAGE AUDIOVISUALS INC

AUDIOVISUAL SERVICES

$187K

Grants received

Showing 39 of 39

FromAmountPurposeYear
$25K
COMMUNITY ENRICHMENT
2024
$15K
TO FURTHER THE CHARITABLE PURPOSE
2024
$20K
FOR DOWN SYNDROME SUPPORT.
2023
$15K
TO FURTHER THE CHARITABLE PURPOSE
2023
$14K
MEDICAL OUTREACH
2023
$11K
OPERATIONS & PROGRAM SUPPORT
2023
$75
EMPLOYEE GIVING PROGRAM
2023
$30K
FOR DOWN SYNDROME SUPPORT.
2022
$15K
TO FURTHER THE CHARITABLE PURPOSE
2022
$10K
MEDICAL OUTREACH
2022
$10K
COMMUNITY SUPPORT
2022
$50
GENERAL EXEMPT PURPOSE
2022
$50
HEALTH AND HUMAN SERVICES
2021
$60K
EDUCATIONAL & COMMUNITY PURPOSES
2020
$20K
For grant recipient's exempt purposes
2020
$15K
TO FURTHER THE CHARITABLE PURPOSE
2020
$13K
Provides information, advocacy and support concerning all aspects of life for individuals with Down Syndrome
2020
$13K
Provides information, advocacy and support concerning all aspects of life for individuals with Down Syndrome
2020
$6K
GENERAL SUPPORT
2020
$50
MATCHING GIFT TO HEALTH & HUMAN SERVICES AGENCY
2020
$15K
General operating support
2019
$10K
TO SUPPORT ANOTHER ORGANIZATION WITH A SIMILAR MISSION TO GIGI'S PLAYHOUSE.
2019
$10K
GENERAL SUPPORT
2018
$224
Matching Grant
2018
$10K
GENERAL SUPPORT
2017

Funded by

$455K from 22 funders · 39 grants · 2017–2024

The Anna And John J Sie Foundation

$90K · 5 grants · 2019–2023

Marino Family Charitable Foundation Inc

$60K · 4 grants · 2020–2024

Linlundh Foundation

$60K · 1 grant · 2020

Donor Advised Charitable Giving Inc

$43K · 4 grants · 2020–2023

Southern Company Gas Charitable

$35K · 2 grants · 2022–2024

Kim Edwards Charitable Foundation Inc

$25K · 5 grants · 2018–2023

Down Syndrome Diagnosis Network

$24K · 2 grants · 2022–2023

Details

EIN510163631
NTEE codeG25Z
Subsection03
Ruling date1975-10
Formed1974
Employees12
Volunteers457
NATIONAL DOWN SYNDROME CONGRESS — Mission, Financials & Grants Received | Grantivo