NonprofitsNational Down Syndrome Society

National Down Syndrome Society

NEW YORK, NY

Total revenue

$4.0M

Total expenses

$5.3M

Net assets

$11.9M

Grants received

$3.0M

208 grants

EIN

132992567

Tax year

2023

Mission

The National Down Syndrome Society empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.

Programs

2 programs

Resources and support - see schedule o

Expenses: $1.2MGrants: $205K

Advocacy and public policy - see schedule o

Expenses: $1.2MGrants: $17K

Financials

FY 2023

Revenue

Contributions & grants$2.4M
Program service revenue$339K
Investment income$758K
Other revenue$534K
Total revenue$4.0M

Expenses

Grants paid$305K
Salaries & benefits$2.2M
Fundraising$619K
Other expenses$2.8M
Total expenses$5.3M
Total assets$13.0M
Net assets$11.9M

People

26 listed

NameRoleCompensation

KANDI PICKARD

President & CEO

Board

$205K

40 hrs/wk

Carlo P Frappolli

Chairman

Board

1.5 hrs/wk

Thomas Warner

Vice President

Board

1.5 hrs/wk

Janet Eissenstat

Secretary

Board

1.5 hrs/wk

John Short

Treasurer

Board

1.5 hrs/wk

Elizabeth F Goodwin

Director

Board

0.7 hrs/wk

Kerry Sette

Director

Board

0.7 hrs/wk

John Cronin

Director

Board

0.7 hrs/wk

Misty Holmes

Director

Board

0.7 hrs/wk

Marjorie Shavers

Director

Board

0.7 hrs/wk

Mark Johnson

Director

Board

0.7 hrs/wk

Debbie Morris

Director

Board

0.7 hrs/wk

Lisa Pelham

Director

Board

0.7 hrs/wk

Thomas Santos

Director

Board

0.7 hrs/wk

Schunda Murphy

Director

Board

0.7 hrs/wk

Robert Siegel

Director

Board

0.7 hrs/wk

Candace Whiting

Director

Board

0.7 hrs/wk

Lauren Wang

Director

Board

0.7 hrs/wk

C Mitch Taylor

Director

Board

0.7 hrs/wk

Michael Kulma

Director

Board

0.7 hrs/wk

Victoria Tremonti

Director

Board

0.7 hrs/wk

Joe Joyce

Director

Board

0.7 hrs/wk

Courtney Gaines

Director

Board

0.7 hrs/wk

Ciara Siegel

Director

Board

0.7 hrs/wk

Anthony Gostkowski

Director

Board

0.7 hrs/wk

SARA GOLDBERG

VP Strategic Dev

Staff

$93K

40 hrs/wk

Independent contractors

Hyatt Regency Cincinnati

Venue

$177K

Petrizzo Group

Consulting

$165K

CEA SCHOLTES AND ASSOCIATES

CFO

$122K

Hilton Arlington National Landing

Venue

$121K

Manhattan 8E41

Rent

$109K

Grants received

Showing 200 of 208

FromAmountPurposeYear
$82K
GENERAL SUPPORT
2024
$22K
MEDICAL / PUBLIC SERVICES
2024
$21K
GENERAL SUPPORT
2024
$20K
UNRESTRICTED GENERAL SUPPORT
2024
$10K
GENERAL FUND
2024
$6K
GENERAL SUPPORT
2024
$2K
GENERAL OPERATING SUPPORT
2024
$1K
General & Unrestricted
2024
$500
SUPPORT FOR DOWN SYNDROME INDIVIDUAL
2024
$250
FOR CIVIC & COMMUNITY ENGAGEMENT
2024
$150
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
$104
MATCHING GIFTS
2024
$100
The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.
2024
$108K
CULTURE & ARTS
2023
$92K
For grant recipient's exempt purposes
2023
$25K
SUPPORT
2023
$25K
MEDICAL / PUBLIC SERVICES
2023
$23K
The payment in 2023 to the National Down Syndrome Society represents half of the total grant. The grant is to fund a study of the organizations' 321 go! program. The program is used to encouraged physical and mental health among people in the Down Syndrome community and can be utilized at home or in group settings.
2023
$18K
GENERAL SUPPORT
2023
$18K
CHARITABLE DONATION
2023
$15K
UNRESTRICTED GENERAL SUPPORT
2023
$10K
Financial Assistance
2023
$10K
TO CONTINUE CHARITABLE PURPOSE OF ORGANIZATION
2023
$10K
UNRESTRICTED GRANT TO SUPPORT ORGANIZATION'S EXEMPT PURPOSE
2023
$10K
GENERAL FUND
2023
$8K
FOR RECIPIENT'S EXEMPT PURPOSE
2023
$7K
General Support
2023
$6K
TO HELP SUPPORT THE NATIONAL ORGANIZATION FOR DOWN SYNDROME. ALSO THE MASSACHUSETTS DOWN SYNDROME CONGRESS, INC. (MDSC) SPONSORS BUDDY WALKS WITH THE PERMISSION OF THE NATIONAL DOWN SYNDROME SOCIETY (NDSS). THE BUDDY WALK NAME AND PROGRAM ARE TRADEMARK PROPERTIES OF THE NDSS. THE MDSC SENDS A PORTION OF THE CONTRIBUTIONS FROM ITS ANNUAL LOCAL BUDDY WALKS TO THE NDSS.
2023
$5K
RESEARCH AND SUPPORT FOR CONDITION
2023
$3K
GENERAL OPERATING SUPPORT
2023
$2K
GENERAL SUPPORT
2023
$2K
General & Unrestricted
2023
$1K
MATCHING GIFTS
2023
$782
GENERAL OPERATING SUPPORT
2023
$681
MATCHING GIFTS
2023
$500
General & Unrestricted
2023
$500
General Operating Expense
2023
$380
HEALTH
2023
$350
GENERAL SUPPORT
2023
$300
MATCHING GIFT
2023
$276
PROGRAM/OPERATING SUPPORT
2023
$270
GENERAL OPERATING PURPOSE
2023
$261
OTHER CIVIC / COMMUNITY
2023
$261
MATCHING GIFT TO HEALTH & HUMAN SERVICES AGENCY
2023
$250
PROGRAM/OPERATING SUPPORT
2023
$175
OTHER CIVIC / COMMUNITY
2023
$156
MATCHING GIFT
2023
$152
PROGRAM/OPERATING SUPPORT
2023
$125
EMPLOYEE GIVING PROGRAM
2023
$102
OTHER CIVIC / COMMUNITY
2023
$100
EXEMPT PURPOSE
2023
$100
OTHER CIVIC / COMMUNITY
2023
$100
MATCHING GIFTS
2023
$100
The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.
2023
$100
CHARITABLE PURPOSES
2023
$100
EMPLOYEE GIVING PROGRAM
2023
$52
DISEASES, DISORDERS, MEDICAL DISCIPLINES
2023
$52
PROGRAM/OPERATING SUPPORT
2023
$50
Matching Gifts
2023
$50
MATCHING GIFTS
2023
$50
OTHER CIVIC / COMMUNITY
2023
$89K
For grant recipient's exempt purposes
2022
$60K
IN FURTHERANCE OF SECTION 501(C)(3) CHARITABLE PURPOSE.
2022
$50K
RFP PROJECT SUPPORT
2022
$50K
RFP PROJECT SUPPORT
2022
$50K
SUPPORT
2022
$33K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
$25K
MEDICAL / PUBLIC SERVICES
2022
$23K
GENERAL SUPPORT
2022
$18K
GENERAL UNRESTRICTED
2022
$16K
GENERAL SUPPORT
2022
$15K
UNRESTRICTED GENERAL SUPPORT
2022
$12K
TO HELP SUPPORT THE NATIONAL ORGANIZATION FOR DOWN SYNDROME. ALSO THE MASSACHUSETTS DOWN SYNDROME CONGRESS, INC. (MDSC) SPONSORS BUDDY WALKS WITH THE PERMISSION OF THE NATIONAL DOWN SYNDROME SOCIETY (NDSS). THE BUDDY WALK NAME AND PROGRAM ARE TRADEMARK PROPERTIES OF THE NDSS. THE MDSC SENDS A PORTION OF THE CONTRIBUTIONS FROM ITS ANNUAL LOCAL BUDDY WALKS TO THE NDSS.
2022
$10K
GENERAL FUND
2022
$10K
UNRESTRICTED GRANT TO SUPPORT ORGANIZATION'S EXEMPT PURPOSE
2022
$10K
CHARITABLE DONATION
2022
$6K
GENERAL
2022
$5K
RESEARCH AND SUPPORT FOR CONDITION
2022
$3K
MATCHING GIFTS
2022
$3K
TO ENHANCE THE QUALITY OF LIFE FOR INDIVIDUALS WITH DOWN SYNDROME
2022
$2K
General & Unrestricted
2022
$1K
GENERAL SUPPORT
2022
$1K
To support the organizations mission statement.
2022
$758
DONEE'S TAX EXEMPT PURPOSE
2022
$550
EMPLOYEE GIVING PROGRAM
2022
$500
General & Unrestricted
2022
$430
MATCHING GIFTS
2022
$411
GENERAL OPERATING PURPOSES
2022
$400
PROGRAM/OPERATING SUPPORT
2022
$250
Matching Gifts
2022
$209
SUMMER ROUND UP
2022
$188
CHARITABLE
2022
$150
GENERAL SUPPORT
2022
$104
EMPLOYEE GIVING PROGRAM
2022
$102
GENERAL OPERATING FUND
2022
$102
EMPLOYEE GIVING PROGRAM
2022
$100
MATCHING GIFT
2022
$100
General & Unrestricted
2022
$100
CHARITABLE PURPOSES
2022
$100
PROGRAM/OPERATING SUPPORT
2022
$100
The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.
2022
$100
HEALTH SERVICES
2022
$52
PROGRAM/OPERATING SUPPORT
2022
$52
EMPLOYEE MATCHING PROGRAM- FURTHER 501(C)(3) CHARITABLE PURPOSE
2022
$50
COMMUNITY SUPPORT
2022
$93K
For grant recipient's exempt purposes
2021
$93K
For grant recipient's exempt purposes
2021
$35K
HELPING THE DISABLED
2021
$33K
For recipient's exempt purpose
2021
$32K
GENERAL SUPPORT
2021
$20K
GENERAL CONTRIBUTION
2021
$10K
TO HELP SUPPORT THE NATIONAL ORGANIZATION FOR DOWN SYNDROME. ALSO THE MASSACHUSETTS DOWN SYNDROME CONGRESS, INC. (MDSC) SPONSORS BUDDY WALKS WITH THE PERMISSION OF THE NATIONAL DOWN SYNDROME SOCIETY (NDSS). THE BUDDY WALK NAME AND PROGRAM ARE TRADEMARK PROPERTIES OF THE NDSS. THE MDSC SENDS A PORTION OF THE CONTRIBUTIONS FROM ITS ANNUAL LOCAL BUDDY WALKS TO THE NDSS.
2021
$9K
GENERAL
2021
$3K
Program Support
2021
$1K
GENERAL PURPOSE
2021
$1K
GENERAL SUPPORT
2021
$1K
GENERAL SUPPORT
2021
$1K
General & Unrestricted
2021
$500
General & Unrestricted
2021
$500
EMPLOYEE GIVING PROGRAM
2021
$500
GENERAL OPERATING SUPPORT
2021
$100
DONATIONS TO COLLEGES, UNIVERSITIES AND OTHER ORGANIZATIONS UNDER "MATCHING GIFTS PROGRAM."
2021
$100
GENERAL SUPPORT
2021
$70K
For grant recipient's exempt purposes
2020
$45K
TO SUPPORT ORGANIZATION'S MISSION
2020
$44K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
$35K
HELPING THE DISABLED
2020
$25K
GENERAL SUPPORT
2020
$25K
UNRESTRICTED GENERAL SUPPORT
2020
$10K
TO SUPPORT ADVOCATING FOR HUMAN RIGHTS FOR INDIVIDUALS WITH DOWN SYNDROME
2020
$10K
GENERAL FUND
2020
$10K
GENERAL SUPPORT
2020
$5K
The National Down Syndrome Society is the leading human rights organization for all individuals with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities.
2020
$621
EMPLOYEE GIVING PROGRAM
2020
$522
GENERAL OPERATING SUPPORT
2020
$500
General & Unrestricted
2020
$500
EMPLOYEE SPONSORED GIVING NOMINEE
2020
$79
GENERAL PURPOSE
2020
$52
GENERAL EXEMPT PURPOSE
2020
$52
GENERAL SUPPORT
2020
$50
General & Unrestricted
2020
$26
MIP PAYOUT FOR 03/10/20
2020
$27K
GENERAL SUPPORT
2019
$14K
For grant recipient's exempt purposes
2019
$12K
GENERAL OPERATING SUPPORT
2019
$10K
TO HELP SUPPORT THE NATIONAL ORGANIZATION FOR DOWN SYNDROME. ALSO THE MASSACHUSETTS DOWN SYNDROME CONGRESS, INC. (MDSC) SPONSORS BUDDY WALKS WITH THE PERMISSION OF THE NATIONAL DOWN SYNDROME SOCIETY (NDSS). THE BUDDY WALK NAME AND PROGRAM ARE TRADEMARK PROPERTIES OF THE NDSS. THE MDSC SENDS A PORTION OF THE CONTRIBUTIONS FROM ITS ANNUAL LOCAL BUDDY WALKS TO THE NDSS.
2019
$10K
IN SUPPORT OF ADULT ADVOCACY PROGRAMS
2019
$5K
General Charitable Operation
2019
$500
GENERAL PURPOSE
2019
$181K
Unrestricted
2018
$17K
For grant recipient's exempt purposes
2018
$12K
TO HELP SUPPORT THE NATIONAL ORGANIZATION FOR DOWN SYNDROME. ALSO THE MASSACHUSETTS DOWN SYNDROME CONGRESS, INC. (MDSC) SPONSORS BUDDY WALKS WITH THE PERMISSION OF THE NATIONAL DOWN SYNDROME SOCIETY(NDSS). THE BUDDY WALK NAME AND PROGRAM ARE TRADEMARK PROPERTIES OF THE NDSS. THE MDSC SENDS A PORTION OF THE CONTRIBUTIONS FROM ITS ANNUAL LOCAL BUDDY WALKS TO THE NDSS.
2018
$8K
DONOR DIRECTED FUNDS TRANSFERRED TO DESIGNATED CHARITY.
2018
$3K
GENERAL OPERATING SUPPORT
2018
$675
PROGRAM/OPERATING SUPPORT
2018
$500
General & Unrestricted
2018
$406
Matching Grant
2018

Funded by

$3.0M from 93 funders · 208 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$468K · 7 grants · 2018–2023

American Online Giving Foundation Inc

$444K · 6 grants · 2019–2024

National Philanthropic Trust

$342K · 6 grants · 2017–2023

Donor Advised Charitable Giving Inc

$192K · 6 grants · 2017–2023

Network For Good

$181K · 1 grant · 2018

Paypal Charitable Giving Fund

$126K · 2 grants · 2023–2024

Vanguard Charitable Endowment Program

$117K · 4 grants · 2020–2023

With Foundation

$100K · 2 grants · 2022

Details

EIN132992567
Subsection03
Ruling date1979-08
Formed1979
Employees30
Volunteers412
NATIONAL DOWN SYNDROME SOCIETY — Mission, Financials & Grants Received | Grantivo