National Fabry Disease Foundation

Community support: the nfdf community support program and assistance program is provided to people with fabry disease and their families. The nfdf hosted its 13th annual fabry family camp at victory junction in randleman, nc. We provided daily phone calls, emails, and written correspondence to support individuals with fabry disease and their families. We provided patients and families with a free 24/7 hotline for counseling and referrals and many innovative resources to help patients/families navigate disease testing, financial management assistance, mental health assistance, and other needs. We provided transportation and other assistance to attend fabry educational meetings, provided financial assistance for one-time or short-term needs not covered by other programs, and continued to provide my-health-handbook-kits for emergency situations. We facilitated testing for diagnoses and access to treatment. We continued to add fabry specialists to our find-a-fabry-specialist searchable database on our website.