NonprofitsNational Niemann-Pick Disease Foundation

Medical Research

National Niemann-Pick Disease Foundation

FORT ATKINSON, WI

Total revenue

$676K

Total expenses

$589K

Net assets

$586K

Grants received

$154K

17 grants

EIN

351844264

Tax year

2024

Mission

To support and empower patients and families affected by niemann-pick disease through education, collaboration, and research.

Programs

1 program

Research support - nnpdf supports over 450 diagnosed families at all stages of their niemann-pick disease journey. We provide accurate up-to-date information on the latest advances in medicine and science related to niemann-pick disease. Provision and monitoring of scientific research grants and fellowships to research scientists.

Expenses: $6KGrants: $158

Financials

FY 2024

Revenue

Contributions & grants$633K
Program service revenue$30K
Investment income$6K
Other revenue$7K
Total revenue$676K

Expenses

Grants paid$44K
Salaries & benefits$204K
Fundraising$36K
Other expenses$341K
Total expenses$589K
Total assets$607K
Net assets$586K

People

17 listed

NameRoleCompensation

JOSLYN CROWE

EXECUTIVE DIRECTOR THRU SEPTEMBER

Board

$106K

40 hrs/wk

ELIZABETH HEINZE

CHAIR

Board

6 hrs/wk

BECKY MCGUIRE

VICE CHAIR

Board

1 hrs/wk

MIKE SMITH

TREASURER

Board

2 hrs/wk

TAYLOR SABKY

SECRETARY

Board

2 hrs/wk

ANTHONY LEONI

DIRECTOR

Board

1 hrs/wk

CARA GILMORE

DIRECTOR THRU JUNE

Board

1 hrs/wk

CHRYSTELLE BOUGAULT

DIRECTOR

Board

1 hrs/wk

DAWN STITES

DIRECTOR

Board

1 hrs/wk

GAIL KOUJAIAN

DIRECTOR

Board

1 hrs/wk

GARLAND ALVEY

DIRECTOR

Board

1 hrs/wk

KARI LATO

DIRECTOR

Board

1 hrs/wk

KELLY LEE

DIRECTOR

Board

1 hrs/wk

MARY FRANCES HARMON

DIRECTOR

Board

1 hrs/wk

MEGHANN FERGUSON

DIRECTOR

Board

1 hrs/wk

PAUL MERRIGAN

DIRECTOR

Board

1 hrs/wk

TRAVIS OBERMEYER

DIRECTOR

Board

1 hrs/wk

Grants received

Showing 17 of 17

FromAmountPurposeYear
$6K
GENERAL SUPPORT
2024
$400
MATCHING CONTRIBUTION (GENERAL OPERATING SUPPORT)
2024
$7K
UNRESTRICTED
2023
$200
DISEASE
2023
$26K
For grant recipient's exempt purposes
2022
$9K
UNRESTRICTED
2022
$20K
UNRESTRICTED
2021
$23K
Unrestricted
2020
$1K
Matching Gifts
2020
$1K
GENERAL SUPPORT
2020
$900
GENERAL EXEMPT PURPOSE
2020
$50
CHARITABLE PURPOSE
2020
$18K
Unrestricted
2018

Funded by

$154K from 10 funders · 17 grants · 2018–2024

Network For Good

$77K · 5 grants · 2018–2023

American Online Giving Foundation Inc

$41K · 4 grants · 2021–2024

Paypal Charitable Giving Fund

$6K · 1 grant · 2024

The Janus Henderson Foundation

$1K · 1 grant · 2020

Robert I Schattner Foundation Inc

$1K · 1 grant · 2020

Arthur J Gallagher Foundation

$900 · 1 grant · 2020

Jpmorgan Chase Foundation

$400 · 1 grant · 2024

Details

EIN351844264
NTEE codeH110
Subsection03
Ruling date1993-04
Formed1992
Employees3
Volunteers20
NATIONAL NIEMANN-PICK DISEASE FOUNDATION — Mission, Financials & Grants Received | Grantivo