Medical Research
National Niemann-Pick Disease Foundation
FORT ATKINSON, WI
Total revenue
$676K
Total expenses
$589K
Net assets
$586K
Grants received
$154K
17 grants
EIN
351844264
Tax year
2024
Mission
To support and empower patients and families affected by niemann-pick disease through education, collaboration, and research.
Programs
1 program
Research support - nnpdf supports over 450 diagnosed families at all stages of their niemann-pick disease journey. We provide accurate up-to-date information on the latest advances in medicine and science related to niemann-pick disease. Provision and monitoring of scientific research grants and fellowships to research scientists.
Financials
FY 2024
Revenue
Expenses
People
17 listed
JOSLYN CROWE
EXECUTIVE DIRECTOR THRU SEPTEMBER
$106K
40 hrs/wk
ELIZABETH HEINZE
CHAIR
—
6 hrs/wk
BECKY MCGUIRE
VICE CHAIR
—
1 hrs/wk
MIKE SMITH
TREASURER
—
2 hrs/wk
TAYLOR SABKY
SECRETARY
—
2 hrs/wk
ANTHONY LEONI
DIRECTOR
—
1 hrs/wk
CARA GILMORE
DIRECTOR THRU JUNE
—
1 hrs/wk
CHRYSTELLE BOUGAULT
DIRECTOR
—
1 hrs/wk
DAWN STITES
DIRECTOR
—
1 hrs/wk
GAIL KOUJAIAN
DIRECTOR
—
1 hrs/wk
GARLAND ALVEY
DIRECTOR
—
1 hrs/wk
KARI LATO
DIRECTOR
—
1 hrs/wk
KELLY LEE
DIRECTOR
—
1 hrs/wk
MARY FRANCES HARMON
DIRECTOR
—
1 hrs/wk
MEGHANN FERGUSON
DIRECTOR
—
1 hrs/wk
PAUL MERRIGAN
DIRECTOR
—
1 hrs/wk
TRAVIS OBERMEYER
DIRECTOR
—
1 hrs/wk
Grants received
Showing 17 of 17
Funded by
$154K from 10 funders · 17 grants · 2018–2024
$77K · 5 grants · 2018–2023
$41K · 4 grants · 2021–2024
$26K · 1 grant · 2022
$6K · 1 grant · 2024
$1K · 1 grant · 2020
$1K · 1 grant · 2020
$900 · 1 grant · 2020
$400 · 1 grant · 2024