NonprofitsNational Organization Of Disorders Of The Corpus Callosum

Medical Research

National Organization Of Disorders Of The Corpus Callosum

YORBA LINDA, CA

Total revenue

$434K

Total expenses

$437K

Net assets

$512K

Grants received

$134K

8 grants

EIN

331029337

Tax year

2024

Mission

The nodcc has become the leading nonprofit organization for the disorders of the corpus callosum and is dedicated to raising the profile, understanding and acceptance of these disorders through education, networking, advocacy and being a catalyst for research.

Programs

2 programs

The nodcc is deeply committed to improving the lives of those affected by a disorder of the corpus callosum by providing direct support as well as educational resources in collaboration with a wide range of stakeholders to raise awareness and knowledge. In 2024, nodcc staff provided one on one support through phone calls, emails and interactions on social media. We provided welcome packets to newly diagnosed families. We maintain an increasing number of resources on our website, brochure, educational booklets, and educational videos on youtube.

Expenses: $63K

The nodcc conference and regional meetings are a way of providing support and community to our families affected by dcc.

Expenses: $296K

Financials

FY 2024

Revenue

Contributions & grants$126K
Program service revenue$211K
Investment income$27K
Other revenue$70K
Total revenue$434K

Expenses

Grants paid
Salaries & benefits
Fundraising$5K
Other expenses$437K
Total expenses$437K
Total assets$512K
Net assets$512K

People

17 listed

NameRoleCompensation

DEONA KALALA

PRESIDENT

Board

3 hrs/wk

DAVE O'BRIEN

VICE PRESIDENT

Board

3 hrs/wk

NATALIE ERB

SECRETARY

Board

3 hrs/wk

KEVIN HIGHT

TREASURER

Board

3 hrs/wk

HEATHER BAHORICH

DIRECTOR

Board

1 hrs/wk

WARREN BROWN

DIRECTOR

Board

1 hrs/wk

KATHERINE CLAXTON

DIRECTOR

Board

1 hrs/wk

ILANA DAVLIN

DIRECTOR

Board

1 hrs/wk

THOMAS FREY

DIRECTOR

Board

1 hrs/wk

JENNIFER LITTLE

DIRECTOR

Board

1 hrs/wk

KIP OREN

DIRECTOR

Board

1 hrs/wk

DAX NORTON

DIRECTOR

Board

1 hrs/wk

LAYTON SHAFFNER

DIRECTOR

Board

1 hrs/wk

ELLIOTT SHERR

DIRECTOR

Board

1 hrs/wk

JASMIN TURNER

DIRECTOR

Board

1 hrs/wk

LEANN SCHOUTEN

DIRECTOR

Board

1 hrs/wk

MIKE MOLETTIERE

DIRECTOR

Board

1 hrs/wk

Grants received

Showing 8 of 8

FromAmountPurposeYear
$16K
GENERAL SUPPORT
2024
$32K
For grant recipient's exempt purposes
2023
$13K
For grant recipient's exempt purposes
2022
$27K
Unrestricted
2020
$8K
For grant recipient's exempt purposes
2020
$23K
Unrestricted
2018

Funded by

$134K from 5 funders · 8 grants · 2018–2024

Fidelity Investments Charitable Gift Fund

$53K · 3 grants · 2020–2023

Network For Good

$51K · 2 grants · 2018–2020

Paypal Charitable Giving Fund

$16K · 1 grant · 2024

Mightycause Charitable Foundation

$8K · 1 grant · 2024

Details

EIN331029337
NTEE codeH48
Subsection03
Ruling date2003-08
Formed2005
Employees0
Volunteers30
NATIONAL ORGANIZATION OF DISORDERS OF THE CORPUS CALLOSUM — Mission, Financials & Grants Received | Grantivo