NonprofitsNational Scleroderma Foundation

Medical Research

National Scleroderma Foundation

DANVERS, MA

Total revenue

$4.9M

Total expenses

$7.0M

Net assets

$8.4M

Grants received

$1.8M

127 grants

EIN

521375827

Tax year

2023

Mission

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

Programs

1 program

Education: the foundation provides education about how to live better with scleroderma for those affected by the disease, as well as their caregivers, families and support networks. The foundation is also a cme and cne provider, educating healthcare providers about signs and symptoms, timely diagnosis, and cutting-edge treatments and therapies. The national scleroderma conferenceattracts more than 500 participants annually.support: the foundation serves people living with scleroderma, as well as their caregivers and family members by providing access to support groups.

Expenses: $2.8M

Financials

FY 2023

Revenue

Contributions & grants$3.9M
Program service revenue
Investment income$971K
Other revenue$58K
Total revenue$4.9M

Expenses

Grants paid$1.5M
Salaries & benefits$2.8M
Fundraising$1.0M
Other expenses$2.7M
Total expenses$7.0M
Total assets$11.2M
Net assets$8.4M

People

19 listed

NameRoleCompensation

MARY J WHEATLEY

CEO

Board

$236K

40 hrs/wk

MICHAEL B HYDE

VP OF FINANCE

Board

$158K

40 hrs/wk

MARY BLADES

DIRECTOR

Board

2 hrs/wk

TRACY PORTER

DIRECTOR

Board

2 hrs/wk

MARK OROZCO III MBA

DIRECTOR

Board

2 hrs/wk

LINDA BORNSTEIN BAUM OD

DIRECTOR

Board

2 hrs/wk

MARCIA WALKER

DIRECTOR

Board

2 hrs/wk

ZEBA HYDER

DIRECTOR

Board

2 hrs/wk

COS MALLOZZI

DIRECTOR

Board

2 hrs/wk

AJ NAHMAD

DIRECTOR

Board

2 hrs/wk

JANE LADAS

DIRECTOR

Board

2 hrs/wk

KEVIN BOYANOWSKI

CHAIR (INTERIM TREAS JUL 23-APR 24)

Board

2 hrs/wk

CAROL FEGHALI-BOSTWICK PH D

VICE CHAIR

Board

2 hrs/wk

J MICHAEL LEVENGOOD ESQ

SECRETARY

Board

2 hrs/wk

BLAKE EMBREE

TREASURER (SINCE APR '24)

Board

2 hrs/wk

NANCY WALTERMIRE

DIRECTOR

Board

2 hrs/wk

COURTNEY CALIENDO

DIRECTOR

Board

2 hrs/wk

CHRISTINA LOCCKE

DIRECTOR

Board

2 hrs/wk

ASHLEY M PRUETT

VP OF COMMUNITY ENGAGEMENT

Staff

$128K

40 hrs/wk

Independent contractors

COMMUNITY COUNSELING SERVICE CO LLC

PROFESSIONAL SERVICES

$107K

Grants received

Showing 127 of 127

FromAmountPurposeYear
$70K
GENERAL OPERATIONS
2024
$35K
GENERAL SUPPORT
2024
$20K
General donation
2024
$15K
General Financial Support
2024
$11K
VOLUNTARY HEALTH ASSOCIATIONS
2024
$11K
GENERAL
2024
$10K
UNRESTRICTED GENERAL SUPPORT
2024
$6K
DISEASE/DISORDER
2024
$5K
GENERAL SUPPORT
2024
$5K
ASSISTANCE FOR THE NEEDY/SICK
2024
$3K
General Financial Support
2024
$2K
RESTRICTED TO RESEARCH PROGRAMS.
2024
$1K
General & Unrestricted
2024
$250
GENERAL SUPPORT
2024
$215
MATCHING GIFTS
2024
$200
GENERAL OPERATING PURPOSE
2024
$200
MATCHING GIFTS
2024
$200
GENERAL PURPOSE
2024
$100
CHARITABLE PURPOSE
2024
$80
GENERAL EXEMPT PURPOSE
2024
$176K
SUPPORT, OUTREACH, RESEARCH
2023
$84K
FUND RESEARCH PROJECTS
2023
$30K
GENERAL OPERATIONS
2023
$28K
For grant recipient's exempt purposes
2023
$11K
GENERAL SUPPORT
2023
$11K
VOLUNTARY HEALTH ASSOICATIONS
2023
$10K
UNRESTRICTED GENERAL SUPPORT
2023
$6K
GENERAL
2023
$5K
PROGRAM/OPERATING SUPPORT
2023
$5K
THE NATIONAL SCLERODERMA FOUNDATION'S MISSION IS TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA, THEIR FAMILIES AND SUPPORT NETWORKS. OUR VISION IS TO BE A RELENTLESS FORCE IN FINDING A CURE AND IMPROVING THE LIVES OF PEOPLE AFFECTED BY SCLERODERMA.
2023
$3K
GENERAL
2023
$1K
FOR GENERAL SUPPORT.
2023
$1K
UNRESTRICTED GENERAL
2023
$1K
OPERATIONAL
2023
$1K
General & Unrestricted
2023
$1K
GENERAL CHARITABLE PURPOSES
2023
$500
PROGRAM/OPERATING SUPPORT
2023
$500
PROGRAM/OPERATING SUPPORT
2023
$500
CHARITABLE PURPOSE
2023
$300
MATCHING GIFT
2023
$300
PROGRAM/OPERATING SUPPORT
2023
$250
GENERAL SUPPORT
2023
$225
PROGRAM/OPERATING SUPPORT
2023
$200
Matching Gifts
2023
$200
MEDICAL RESEARCH
2023
$100
SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA
2023
$100
HEALTH AND HUMAN SERVICES
2023
$80
PROGRAM/OPERATING SUPPORT
2023
$50
VOLUNTEER PROGRAM
2023
$50
Matching Gifts
2023
$37
CHARITABLE CONTRIBUTION
2023
$25
OTHER CIVIC / COMMUNITY
2023
$42K
For grant recipient's exempt purposes
2022
$25K
GENERAL OPERATIONS
2022
$15K
FUND RESEARCH PROJECTS
2022
$11K
GENERAL OPERATIONS/VOLUNTARY HEALTH ASSOICATIONS PROGRAM
2022
$10K
TO ACCOMPLISH ITS MISSION
2022
$7K
GENERAL SUPPORT
2022
$7K
IN FURTHERANCE OF GRANTEE'S TAX-EXEMPT PURPOSE
2022
$6K
FOR RECIPIENT'S EXEMPT PURPOSE
2022
$6K
GENERAL PURPOSE
2022
$5K
CHARITABLE DONATION
2022
$5K
DISEASE/DISORDER
2022
$5K
UNRESTRICTED GENERAL SUPPORT
2022
$2K
GENERAL SUPPORT OF CHARITABLE ACTIVITIES
2022
$1K
UNRESTRICTED GENERAL
2022
$1K
GENERAL SUPPORT
2022
$1K
SUPPORT ACTIVITIES THAT BENEFIT THE BLEEDING DISORDERS AND CHRONIC ILLNESS COMMUNITIES
2022
$500
DONATION
2022
$325
THE NATIONAL SCLERODERMA FOUNDATION IS A 501 (C) (3) ORGANIZATION TO ADVANCE MEDICAL RESEARCH, PROMOTE DISEASE AWARENESS, AND PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH SCLERODERMA
2022
$200
HEALTH & HUMAN SERVICES
2022
$110
TO PROVIDE MEDICAL RESEARCH,PROMOTE DISEASE AWARENESS, AND EDUCATION TO PEOPLE WITH SCLERODOMA.
2022
$50
General & Unrestricted
2022
$61K
For grant recipient's exempt purposes
2021
$61K
For grant recipient's exempt purposes
2021
$12K
For recipient's exempt purpose
2021
$2K
General Research and Support
2021
$1K
Program Support
2021
$200
EMPLOYEE MATCHING PROGRAM - FURTHER 501(C)(3) CHARITABLE PURPOSE
2021
$96K
FUND RESEARCH PROJECTS
2020
$35K
For grant recipient's exempt purposes
2020
$22K
FOR RECIPIENT'S EXEMPT PURPOSE
2020
$21K
RESEARCH CONTRIBUTIONS
2020
$10K
OPERATIONS
2020
$9K
GENERAL OPERATIONS
2020
$7K
General support
2020
$6K
GENERAL PURPOSE
2020
$100
UNRESTRICTED USE
2020
$10K
For grant recipient's exempt purposes
2019
$9K
GENERAL PURPOSE
2019
$6K
General Charitable Operation
2019
$224K
FUND RESEARCH PROJECTS
2018
$47K
Unrestricted
2018
$38K
For grant recipient's exempt purposes
2018
$10K
TO ASSIST IN THE ORGANIZATION'S EXEMPT PURPOSES.
2018
$29K
HEALTH & HUMAN SERVICES
2017
$22K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017
$16K
TO ASSIST IN THE ORGANIZATION'S EXEMPT PURPOSES.
2017

Funded by

$1.8M from 70 funders · 127 grants · 2017–2024

Scleroderma Foundation Of Greater

$419K · 4 grants · 2018–2023

Fidelity Investments Charitable Gift Fund

$295K · 8 grants · 2017–2023

American Online Giving Foundation Inc

$178K · 6 grants · 2019–2024

Scleroderma Foundation

$176K · 1 grant · 2023

Albert H And Jane D Nahmad

$125K · 3 grants · 2022–2024

Donor Advised Charitable Giving Inc

$89K · 5 grants · 2017–2023

Scleroderma Foundationnew England Inc

$65K · 3 grants · 2018–2021

Paypal Charitable Giving Fund

$48K · 2 grants · 2023–2024

Details

EIN521375827
NTEE codeH400
Subsection03
Ruling date1985-01
Formed1993
Employees35
Volunteers225
NATIONAL SCLERODERMA FOUNDATION — Mission, Financials & Grants Received | Grantivo