Medical Research
National Scleroderma Foundation
DANVERS, MA
Total revenue
$4.9M
Total expenses
$7.0M
Net assets
$8.4M
Grants received
$1.8M
127 grants
EIN
521375827
Tax year
2023
Mission
The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.
Programs
1 program
Education: the foundation provides education about how to live better with scleroderma for those affected by the disease, as well as their caregivers, families and support networks. The foundation is also a cme and cne provider, educating healthcare providers about signs and symptoms, timely diagnosis, and cutting-edge treatments and therapies. The national scleroderma conferenceattracts more than 500 participants annually.support: the foundation serves people living with scleroderma, as well as their caregivers and family members by providing access to support groups.
Financials
FY 2023
Revenue
Expenses
People
19 listed
MARY J WHEATLEY
CEO
$236K
40 hrs/wk
MICHAEL B HYDE
VP OF FINANCE
$158K
40 hrs/wk
MARY BLADES
DIRECTOR
—
2 hrs/wk
TRACY PORTER
DIRECTOR
—
2 hrs/wk
MARK OROZCO III MBA
DIRECTOR
—
2 hrs/wk
LINDA BORNSTEIN BAUM OD
DIRECTOR
—
2 hrs/wk
MARCIA WALKER
DIRECTOR
—
2 hrs/wk
ZEBA HYDER
DIRECTOR
—
2 hrs/wk
COS MALLOZZI
DIRECTOR
—
2 hrs/wk
AJ NAHMAD
DIRECTOR
—
2 hrs/wk
JANE LADAS
DIRECTOR
—
2 hrs/wk
KEVIN BOYANOWSKI
CHAIR (INTERIM TREAS JUL 23-APR 24)
—
2 hrs/wk
CAROL FEGHALI-BOSTWICK PH D
VICE CHAIR
—
2 hrs/wk
J MICHAEL LEVENGOOD ESQ
SECRETARY
—
2 hrs/wk
BLAKE EMBREE
TREASURER (SINCE APR '24)
—
2 hrs/wk
NANCY WALTERMIRE
DIRECTOR
—
2 hrs/wk
COURTNEY CALIENDO
DIRECTOR
—
2 hrs/wk
CHRISTINA LOCCKE
DIRECTOR
—
2 hrs/wk
ASHLEY M PRUETT
VP OF COMMUNITY ENGAGEMENT
$128K
40 hrs/wk
Independent contractors
COMMUNITY COUNSELING SERVICE CO LLC
PROFESSIONAL SERVICES
Grants received
Showing 127 of 127
Funded by
$1.8M from 70 funders · 127 grants · 2017–2024
$419K · 4 grants · 2018–2023
$295K · 8 grants · 2017–2023
$178K · 6 grants · 2019–2024
$176K · 1 grant · 2023
$125K · 3 grants · 2022–2024
$89K · 5 grants · 2017–2023
$65K · 3 grants · 2018–2021
$48K · 2 grants · 2023–2024