NonprofitsNeuroacanthocytosis Advocacy Usa Incorporated

Voluntary Health Associations & Medical Disciplines

Neuroacanthocytosis Advocacy Usa Incorporated

MELBOURNE, FL

Total revenue

$83K

Total expenses

$63K

Net assets

$88K

Grants received

$95K

9 grants

EIN

843711526

Tax year

2024

Mission

The primary purpose of this corporation is to operate exclusively for charitable purposes, and in furtherance of such goals is authorized to do any or all activities which it is empowered to do under the Articles of Incorporation and Florida law. No activities will be allowed which would jeopardize the corporation's tax-exempt status or otherwise be inconsistent with its classification as an organization described in sections 501 (c)(3) of the Internal Revenue Code.The specific purposes of the corporation is to support patients with neuroacanthocytosis-related diseases and their caregivers, to promote awareness of neuroacanthocytosis-related diseases, and to support research aimed at alleviation of said diseases.

Financials

FY 2024

Revenue

Contributions & grants$83K
Program service revenue
Investment income$418
Other revenue
Total revenue$83K

Expenses

Grants paid$63K
Salaries & benefits
Fundraising
Other expenses$298
Total expenses$63K
Total assets$88K
Net assets$88K

People

8 listed

NameRoleCompensation

{"_":"Joyce Willard-Williford","attributes":{"referenceDocumentName":"CompensationExplanation"}}

President

Board

4 hrs/wk

{"_":"Susan Wagner","attributes":{"referenceDocumentName":"CompensationExplanation"}}

Vice President

Board

2 hrs/wk

{"_":"Robert Metzger","attributes":{"referenceDocumentName":"CompensationExplanation"}}

Treasurer

Board

2 hrs/wk

{"_":"Julie Kerner","attributes":{"referenceDocumentName":"CompensationExplanation"}}

Secretary

Board

2 hrs/wk

{"_":"Virginia Irvine","attributes":{"referenceDocumentName":"CompensationExplanation"}}

Director

Board

2 hrs/wk

{"_":"Ruth Walker","attributes":{"referenceDocumentName":"CompensationExplanation"}}

Director

Board

2 hrs/wk

{"_":"Ricky Ditzel","attributes":{"referenceDocumentName":"CompensationExplanation"}}

Director

Board

2 hrs/wk

{"_":"Kim Thomson","attributes":{"referenceDocumentName":"CompensationExplanation"}}

Director

Board

2 hrs/wk

Grants received

Showing 9 of 9

FromAmountPurposeYear
$5K
To support exempt purpose
2024
$11K
For grant recipient's exempt purposes
2023
$5K
UNRESTRICTED
2023
$10K
For grant recipient's exempt purposes
2022
$5K
To support exempt purpose
2022
$14K
For grant recipient's exempt purposes
2021
$14K
For grant recipient's exempt purposes
2021
$6K
UNRESTRICTED
2021
$25K
For grant recipient's exempt purposes
2020

Funded by

$95K from 3 funders · 9 grants · 2020–2024

Fidelity Investments Charitable Gift Fund

$74K · 5 grants · 2020–2023

Network For Good

$11K · 2 grants · 2021–2023

Schwartz Charitable Foundation

$10K · 2 grants · 2022–2024

Details

EIN843711526
NTEE codeG50
Subsection03
Ruling date2020-06
NEUROACANTHOCYTOSIS ADVOCACY USA INCORPORATED — Mission, Financials & Grants Received | Grantivo