Neurofibromatosis Incorporated Northeast

The organization serves as a valuable resource for individuals affected by neurofibromatosis, helping patients locate experienced physicians and specialists. It promotes volunteer involvement at events where patients can connect with others who share similar experiences. Through organized gatherings, the organization brings together patients, families, and friends to share medical updates, research developments, and community support. Additionally, it provides scholarships for persons with neourofibromatosis to continue their education after high school and to pursue an undergraduate degree.

Lobbying: the organization lobbied congress for increased funding for neurofibromatosis research at both the national institute of health and the army's neurofibromatosis research program.