Neurofibromatosis Midwest

Support/education/awareness neurofibromatosis midwest provides education to individuals and families with neurofibromatosis, to the medical community and to the public through an annual symposium; smaller local meetings; and printed and online materials. We provide free packets of information to newly diagnosed families and phone and online support. An annual grant is provided to send children with nf to camp. We also provide materials and opportunities to raise awareness.